Pam Schmidt Arlington, MN I have a 44 year old brother with PKU. He was born in 1958 before testing and thus was not diagnosed until 1960 and then put on the diet at that time. He is mentally handicapped but does well living in a small group home. He was put on the diet until 17 and then they said that the brain had developed to the point that the diet would not affect him anymore. Now just 3 months ago he was put on the diet saying that the high phen. levels do cause many problems. He has improved in just about everything!!! What a miracle from God. I so far have not been able to find any one with PKU that is his age that is living. Is there anyone out there that could help me get in touch with someone who has PKU that is around 45? Thank-you and if I can be of assist to anyone please feel free to e-mail me. Thanks again... God bless you all Sincerely Pam Schmidt YOUR STORIES Karin M. Amour, Fibromyalgia Lyssa Bode, Chronic Fatigue Immune Disfunction Syndrome Frankie Campling, Chronic Fatigue Syndrome Laura Cerasuolo, Fibromyalgia/Myofacialsyndrome Karen Cerio, Fibromyalgia Rhonda Dewinter, Various Immune Diseases Jennifer Embree, Fibromyalgia/Raynaud's Syndrome Lynne Enman, Turner Syndrome/Various Fibromyalgia Patient, Covington, KY John Kennedy, Chronic Fatigue Immune Disfunction Syndrome Susan Larick, Fibromyalgia Melissa Lawler, Fibromyalgia Irene Leeder, Fibromyalgia/Various Cait Lommel, Pseudotumor Cerebri Jennifer Munn, Chronic Lyme Disease Robin Poole, Fibromyalgia/Lupus Pam Schmidt, Phenylketonuria Lynn Tonoli, Various Various Patient, Haughton, LA Suzanne Witt, Muscular Dystrophy/Fibromyalgia ARCHIVED STORIES WHAT WOULD YOU DO? Jose Pedro Greer, Physician W.F. Nagle, Physician Ronda Riebman, Exercise Cathleen Schilling, Case Manager Jim Sykes Home | Awareness | Patient Files | The Challenge | Your Stories | Outreach | Resources About the Program | About Fred Friendly Seminars | Our Partners | Site Map | Credits © 2001 Fred Friendly Seminars, Inc.