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A Report on Parkinson's Disease
Notes & Updates

Production News -- Help Us Reshape This Site

By David Iverson on March 25, 2008 7:26 AM | | Comments (6)

Since we began this blog, we have been very gratified by the growing responsiveness of everyone who has found their way here.  We have been moved by many of your postings and heartened to see that a community is taking shape around our project.

Originally, our hope was to continue to our current pattern of regular weekly postings right up to our broadcast, which we had anticipated would be in late May.  But due to changes in the PBS schedule, it now appears that our actual broadcast will be moved to the fall of 2008, most likely shortly after the election.  Just to be clear: that's only our best guess at the moment; we could air sooner or later. As soon as we have confirmation, we will post the news here.

As a result of this delay, we've made a couple of decisions: first, we intend to keep this site live, and to continue posting, though on a somewhat more irregular basis than before now.  If you subscribe to the RSS feed or some of the other tools at the bottom of the comments pages, you'll continue to get notification when we post something new (and if you haven't subscribed, just click on the RSS button on the home page to get started). We'll continue to post videos from our work in progress, such as excerpts of interviews and extra content that may not fit in the final one-hour program.  We're also planning new ways to keep our blog content up-to-date and interesting, including inviting guest bloggers to join the discussion. And, as always, we welcome your own comments. In between our postings, we hope that you will continue the conversations you've started and bring new ideas and exchanges to this site. For starters, let us know how you think we can best utilize this space over the next few months.

We'll resume weekly postings about two months before our actual air date -- and if you watch this space, you'll be among the first to know when that will be.

Thanks again for participating, and we look forward to continuing the discussion.

-Michael Schwarz

 

6 Comments

Margaret Hegarty said:

And Life Goes on!I was diagnosed four years ago (on the 15th January 2004 at 3.21 pm)and was devastated at the time and acceptance came slowly .However I think I was one of the lucky ones as I was working in the field of life and business coaching and realised that I had a lot of tools to help me manage this disease .Exercise and hot baths or showers in the mornng to get you going are really important and a bucket load of positive thinking .Since I was diagnoised I have stopped working learnt how to sing (this has been such a positive and healing step and has definetly improved my energy levels)and recduced my golf handicap by 6 shots!I really want to help others with Parkinsons come to terms with it I dont think we ever get acceptance but we can get optimum quality of life .I need to get a voice and be heard we can all make a difference if we take ownership of this disease . I have so much I want to say but typing this is slow and I am waiting for the meds to kick in .Finding a cure is the ultimate goal and in the meantime managing the illness is essential.Lets make a documentary on this aspect I think it would be amazing !Mags

Sue Lifschiz said:

Dear Dave,

I think it is wonderful what you are doing on Frontline. Raising the public's awareness helps all of us with this disease.
Do you live in the SF Bay Area? (I noticed the photo with John Argue in Berkeley.) If you do, would you consider talking to our Marin County Parkinson's Support Group? We meet the 4th Tuesday of every month from 1-2PM at the Redwoods at 140 Camino Alto, Mill Valley.
It would really be a boost for us PWP's as well as for our caregivers to hear first hand about your Frontline project.
Hope to hear from you soon. 415-454-2234
Sincerely,
Sue Lifschiz
P.S. I am off to NYC April 25 where I will join in the annual Parkinson's Unity Walk, and I will be honored as one of 28 persons featured in the new book published by the makers of Azilect. It is called "Proud Hands" and celebrates folks who continue to do creative things in spite of the disease.

Ellie Bryant said:

Thanks so much for your work and your positive attitude. My husband just six days ago was diagnosed with PD after a night at University of Vermont's sleep clinic. I had begged him to have the study because of sleep disturbances I've noticed during the past year, which I now understand is a symptom of the disease. Harry is big and strong and has been an athlete all his life. At 56 he still plays ice hockey twice a week. Now he's worried that he will lose his motor skills, which he believes define him, and I'm worried that he will fall into deep depression (and worried also about my own psychological health). I'll keep checking your blog for support, and I very much look forward to your PBS broadcast. Thanks again.

Dave Iverson said:

Hi Ellie:

As you're already discovering, every PD story is different, but I do think exercise can make a huge difference ... I'm a few years older than your husband and I know for me, at least, staying active has been hugely helpful.

All the best,
Dave

Dave Iverson said:

Hi Sue;

Yes, I'd be happy to speak with your group. I live in the Bay Area and can be reached at dwiverson@gmail.com. And congratulations on your award, that's terrific!
Best,
Dave

Michael Sanders said:

Dave,
I'm pretty sure you are the Dave Iverson I worked with in West Lafayette back in 1978...WLFI. I was having a look back at my beginnings in TV and your name popped up...a google later..I see you...and although your bio does not include LFI....I think we both began a long trek thru this business with our beginnings in that station. Obviously, from your site I see that you are facing some challenges ahead...I wish you all the luck and good science that is to come....
Michael Sanders
President
The Sanders Group
Indianpolis IN

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