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Find Web sites, publications and more information about the topics
and issues featured in A LION IN THE HOUSE below:

View a list of sources used for this Web site »

The Film 

ITVS Community: A LION IN THE HOUSE »
Visit the LION outreach site and learn about the campaign focus areas: health disparities, pediatric end-of-life and survivorship. Read letters from the filmmakers, get information on national partners, event listings and resources for community engagement.

IndieWire.com: People: Park City »
Read this January 2006 interview with filmmakers Julia Reichert and Steven Bognar done in conjunction with the Sundance Film Festival premiere.

Public Radio Exchange: A LION IN THE HOUSE »
Listen to this review of LION, which features interviews with filmmakers Steven Bognar and Julia Reichert and with family members from the film. Hear different perspectives of what it was like to film and be filmed throughout the struggles of dealing with pediatric cancer. (Free registration required.)

Cincinnati Children’s Hospital Medical Center »
Learn about Cincinnati Children’s Hospital, where the patients in A LION IN THE HOUSE were treated. The site includes a page for the hematology/oncology department, dedicated to children and adolescents with cancer, blood and immune disorders


Pediatric Cancer: OverviewTop

Pediatric Oncology Resource Center »
The Ped-Onc Resource Center describes itself as “a web site for parents, friends, and families of children who have or had childhood cancer.” Get information and resources in the areas such as treatment and survivorship issues, signs of childhood cancer, emotional support and more.

National Cancer Institute: Childhood Cancers »
Get facts and literature on childhood cancers including treatments, prevention, clinical trials and genetics, provided by the NCI, part of the U.S. Department of Health and Human Services.

CureSearch »
CureSearch represents the combined efforts of the Children’s Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF), organizations dedicated to reaching the day when every child with cancer can be guaranteed a cure. Visit the site for the latest research data, customized information and support tailored to a child’s age, diagnosis, treatment options and treatment phase.

Candlelighters Childhood Cancer Foundation »
This practical and informative site includes tips for dealing with the day-to-day challenges of caring for a child with cancer. The organization provides support, education and advocacy for children and adolescents with cancer, survivors, their families and the professionals who care for them.

Children’s Cancer Web »
A portal for pediatric cancer, Children’s Cancer Web was created to make it easy to find more specific childhood cancer information quickly. Get information on statistics, cancer types, treatments and extensive references for further study.

The Leukemia & Lymphoma Society »
Visit the Web site of the world’s largest voluntary health organization dedicated to funding blood cancer research and providing education and patient services.

The National Children's Cancer Society »
Providing information about financial and in-kind assistance, advocacy, support services and education, the site also includes a newsletter, message boards, summer camp listings and links to helpful organizations.


Research and Clinical Trials
Top

American Cancer Society: Clinical Trials: What You Need to Know »
Read this in-depth FAQ to get background information on clinical trials and links to related topics.

ClinicalTrials.gov »
Search ClinicalTrials.gov for “childhood cancer” and find over 250 results. Get information about a trial's purpose, who may participate, locations and phone numbers. Recommended as a first step before consulting one’s doctor.


Public Policy
Top

Children’s Cause Cancer Advocacy: FDA Pediatric Exclusivity »
Learn how Children's Cause for Cancer Advocacy worked with Congress to ensure that the legislation addresses the needs of pediatric cancer research more directly and learn about the National Cancer Institute’s plans and policies.

Pediatric Cancer: StatisticsTop

American Cancer Society: Cancer Facts & Figures 2006 Graphs and Figures »
Look here to find the most requested graphs and figures for 2006.

National Cancer Institute: Understanding Cancer Statistics »
Confused? Peruse this section of the Institute’s site, which provides several resources to help understand how to read and give context to cancer statistics.


Survivorship
Top

Livestrong: Take Control: Topics »
The Lance Armstrong Foundation (LAF) Web site provides practical information and tools for people living with cancer. LAF’s online educational resource for cancer survivors includes survivorship stories and topics on the physical, emotional and practical issues that may be part of dealing with the disease and its after-effects.

Survivor Alert »
Funded by the Centers for Disease Control and Prevention, visit the Survivor Alert site for information about what young adult childhood cancer survivors can do to stay healthy and how to gain access to medical records and “make the most of the life you’ve won!”

Candlelighters: Comprehensive Follow-Up Programs: A Necessity not a Luxury »
Follow-ups are an important part of survivorship. Read this easy-to-understand article that explains how and why to get on a regular follow-up program.

Centers for Disease Control and Prevention: Cancer Survivorship »
Visit this CDC site for information about the National Action Plan for Cancer Survivorship, listings of service and resources for survivors and more.

The National Cancer Institute: Late Effects of Treatment for Childhood Cancer »
Get general information about risk factors and therapies for late effects from PDQ, NCI's comprehensive cancer information database.

Patient-Centered Guides: Childhood Cancer Survivors »
Read excerpts adapted from Childhood Cancer Survivors: A Practical Guide to Your Future (O’Reilly & Associates, 2000) by Nancy Keene, Wendy Hobbie and Kathy Ruccione. Also, get a list of follow-up clinics throughout the United States at this site.

Re-Mission »
Play Re-Mission, a 3D video game designed for young people with cancer, and visit an online community that connects kids with other young people who have cancer. Visit the community & content section for blogs, message boards, art and poetry posts and links to other sites designed for teens and young adults with cancer.


Caregiving
Top

PBS: Children’s Hospital »
See the site index to get tips and strategies on caring for a critically ill child, including how to explain medical terms, how to get kids to take their medicine and effective strategies for finding financial and moral support. 

Memorial Sloan-Kettering: Help for Caregivers Families and Friends »
Visit the Memorial Sloan-Kettering Cancer Center site to get resources and tips for caregivers, including a downloadable guide and links to information about palliative care.

PBS: & Thou Shalt Honor: Caring for the Caregiver »
This companion site to the PBS program is focused on caring for adults, however caregivers experience the same stresses regardless of the age of the patient. Read this article for some helpful tips on how to get relief.


Quality of Life: Palliative, End-of-Life, and Bereavement Care
Top

American Academy of Pediatrics: A LION IN THE HOUSE »
Visit this section of hte AAP site, which houses the National Center of Medical Home Initiatives for Children with Special Needs and provides resources for palliatives for families and caregivers.

The National Coalition for Cancer Survivorship: About Palliative Care & Symptom Management »
Visit this site to get information about palliative care and symptom management, learn the difference between palliative and hospice and find out how to help patients get access to care.

National Hospice and Palliative Care Organization »
This Web site provides a large amount of useful information about end-of-life issues, palliative care and hospice, as well as useful forms and practical links to donating time and money.

ITVS Community: Facts and Resources for Pediatric Palliative, End of Life and Bereavement Care (PDF) »
Download this fact sheet, produced for the A LION IN THE HOUSE community engagement campaign, which provides information about pediatric palliative, end-of-life and bereavement care.


Health Disparities
Top

The Intercultural Cancer Council (ICC) »
The ICC works “to eliminate the unequal burden of cancer among racial and ethnic minorities and medically underserved populations in the United States and its associated territories.”  Find cancer fact sheets for specific ethnic groups and additional resources on their site.

Center to Reduce Cancer Health Disparities »
Part of the National Cancer Institute, the Center is committed to researching and reducing cancer health disparities. Here you’ll find out what disparities are, learn about programs and initiatives, get resources on non-western cultural disparity and more.