I too had a very life threatening illness -- a subarrachnoid hemmorage of the basilar artery in my brain. Survival rate without lasting deficits: about 5% when all is said and done.
I got nothing, in three months of hospitalization, but excellent, compassionate and attentive care. I made a full and astounding recovery. I trusted my doctors, did what I was told and have no complaints about my care. My family was relatively useless in the process, although they visited routinely. My biggest complaint: Whenever I tell people what I survived, they credit God and prayer with my survival. I credit my doctors, their sacrifices and skill. I was never afraid I was going to die and my close brush with death has made me absolutely unafraid of the end of life or physicians. I don't know of any physicians who go to work each day saying "Who can I misdiagnose or mistreat today?" Do they make mistakes? Of course. But do I have the skill, education or background to undermine their opinion or question their diagnosis? Of course not. This isn't to discount the second opinion, but self-diagnosis is just plain stupid. When a patient spends six hours on the Internet and thinks they have as much medical knowledge as their doctor, they get the scorn and dismissal they deserve.
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