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SUSAN
DENTZER: The stigma attached to mental illness; disparity in health
insurance coverage; scientific breakthroughs that raise new hopes --
all of these came into focus at today's first-ever White House Conference
on Mental Health. Joining the President were more than 300 mental-health
care consumers, advocates and medical professionals. They were proxies
for roughly 50 million Americans who suffer from mental illness.
PRESIDENT CLINTON: Clearly people with mental illnesses have always
had to struggle to be treated fairly and to get the treatment they need,
and they still do.
SUSAN DENTZER: No one understands that better than 38 year-old Laura
Van Tosh, a professional mental health advocate from Silver Spring,
Maryland. She suffers from bipolar disorder, also known as manic depressive
illness. She was committed involuntarily to a hospital by her mother
when she had her first breakdown at 17. There she got her first taste
of the insensitivities surrounding treatment of mental illness.
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LAURA
VAN TOSH: I was put face down by a couple of orderlies, face down on
a kind of examination table and tied down, both hands and feet, and
then force-drugged, if you will, or force-medicated. I'm someone that
now even has trouble being in an elevator as a result of being tied
down to a table when I was first committed at 17, and in four-point
restraints, and shot up with Thorazine.
SUSAN DENTZER: Doctors eventually put Laura on the drug lithium, enabling
her to pull her life back together. Stable for the next 15 years, at
age 35 she suddenly began to experience toxic effects from the lithium.
Her psychiatrist cut her dose -- but her symptoms of mania returned.
One winter's day, Van Tosh drove to the airport in her nightgown, disrobed
and ran naked into the arms of a security guard.
LAURA VAN TOSH: Luckily I didn't end up in jail, and luckily I'm not
dead.
SUSAN DENTZER: In and out of hospitals for harrowing months afterward,
she was finally stabilized again with more medication and psychotherapy.
LAURA VAN TOSH: As a result of having health care in my life, and having
the ability to seek services and get services, I can work now, and I'm
paying taxes, and I'm voting. I mean, I think that we have to realize
that if we were to bring people all of what they need, all of what they
need to survive and live in this world, that all of us will bring so
much to the rest of the world.
SUSAN
DENTZER: One person also pushing that message is Tipper Gore, wife of
vice president and 2000 presidential candidate Al Gore and the chair
of the White House conference. She recently revealed in an article in
USA Today that she herself had experienced mental illness -- specifically,
major depression, a condition that affects as many as 1 out of 10 U.S.
adults in any given year. The depression struck Mrs. Gore a decade ago
not long after her then 6-year-old son Albert was nearly killed in a
car accident.
TIPPER
GORE: I was clinically depressed, which meant that I could not will
my way out of it, pray my way out of it, or pull myself up by the bootstraps
out of it. I really needed a medication and a form of treatment, which
included therapy, and that worked for me.
SUSAN DENTZER: In large part, Mrs. Gore owes the success of her treatment
to recent breakthroughs in scientific research into the causes of mental
illness.
DR. STEVEN HYMAN: The last decade has been a time of almost unbelievable
progress.
SUSAN DENTZER: Dr. Steven Hyman is director of the National Institute
of Mental Health. He notes that long-standing misconceptions about mental
illness -- including the belief that it was caused by everything from
possession by demons to bad parenting -- have persisted almost to the
present day. Hyman cites the example of autism, a brain disorder that
affects about two in one thousand people. It produces a wide range of
symptoms including rocking and an inability to form emotional bonds.
DR. STEVEN HYMAN: The mother of an autistic child was told that the
reason the child was ill was because of her unconscious wishes. Now,
what mother of an autistic child might not at some time in their life
have the fantasy, maybe it would have been better had Johnny not been
born. Well, the upshot, of course, was not of any treatment benefit,
but what it did do is alienate and demoralize and blame
families.
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SUSAN
DENTZER: All that began to change with the flowering of brain science
in the 1980s. Thanks to high-tech tools like functional magnetic resonance
imaging, scientists were able to see portions of the brain at work as
it performed tasks like thinking or retrieving memories. That allowed
them to distinguish between normal and abnormal brain functions -- and
to see what went wrong in people with mental illnesses.
DR. STEVEN HYMAN: Mental illnesses are diseases of a particular organ,
the brain, I mean, just as coronary artery disease is a disease of another
organ, the heart. Already we can see problems in information processing
in people with schizophrenia. Already we can begin to see circuits involved
in normal fear and how they may go wrong in anxiety disorders, and we're
beginning to get the first really good research showing us the circuits
that are involved in the control of moods, and possibly depression.
SUSAN DENTZER: And thanks to the booming field of genetics, it's increasingly
clear that many of these brain malfunctions stem at least in part from
certain genes; Hyman calls them "vulnerability genes."
DR.
STEVEN HYMAN: This has turned out to be a very, very difficult problem
because unlike some illnesses where a single gene which is readily discovered
causes the illness, in mental illnesses what we have are multiple genes
working together -- that is with gene-gene interactions -- and also
working with the environment to produce illness.
SUSAN DENTZER: In other words, a collection of "vulnerability genes"
might predispose a person to a condition like schizophrenia or depression.
DR. STEVEN HYMAN: Genes might set somebody up to have a risk of severe
depression, for example. But it might very well be environmental events,
changing brain function, that leads ultimately to the disease occurring,
to the disease expressing itself.
SUSAN
DENTZER: And that appears to be what lay the groundwork for Mrs. Gore's
depression. Her mother suffered from bouts of depression and thus may
have passed on to her daughter a genetic predisposition to the illness.
Among other things, Mrs. Gore says, that was propelled into depression
by her son's accident.
TIPPER GORE: There are many instances in life in which a person can
have certain triggers and I had a number of those.
SUSAN DENTZER: In any case, experts say it was an actual change in
brain circuitry and chemistry that produced the feelings of sadness
and despondency Mrs. Gore felt. By the same token, a combination of
psychotherapy and medications apparently restored that function to normal,
as it does in many who suffer from depression. For example, drugs like
Prozac and Zoloft interact with molecules in the brain to increase the
level of a chemical messenger, known as serotonin. What scientists don't
know is precisely how that translates into a change in brain circuitry.
DR.
STEVEN HYMAN: We know that it takes often two or three weeks for these
medications to begin to work, and what we don't know yet, and which
is a very important mystery for us to solve, is how is that increase
in serotonin changing brain function, almost certainly changing brain
structure over the ensuing weeks so that the symptoms of depression
go away.
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SUSAN DENTZER: Now that we now know a great deal about the biological
roots of many mental health conditions -- and stand to know far more
in the future -- advocates are pushing for health insurance to reflect
the advances in science. One is Republican Senator Pete Domenici of
New Mexico. A conservative who is best known as a budget hawk, he is
also the father of eight children. One, a daughter, now in her 30s,
was 18 when she developed symptoms of serious mental illness. Domenici
claims that many private health insurance policies actually discriminate
against mental illness; they do so by imposing limits on treatment that
they don't impose on other medical treatments.
SEN.
PETE DOMENICI: To continue to act as if you are providing health care
in an insurance policy and you don't cover severe, serious mental illnesses
in a major way is to say we don't have health insurance.
SUSAN DENTZER: A 1996 federal law that Domenici sponsored did away with
some limits on mental health coverage, but others remain. For example,
while many insurance policies provide almost unlimited hospital coverage
for medical conditions, they routinely cover just 20 hospital days for
mental illnesses. They may also limit visits to psychiatrists and other
mental health providers to just 20 a year. Finally, they may also require
patients to pay more for anti-psychotic medications than for other drugs.
These restrictions impose a big burden on people like Laura Van Tosh,
who now owes tens of thousands of dollars for hospital care that her
insurance didn't cover. She has worked out a long-term payment plan
with her providers.
LAURA
VAN TOSH: They said that from our estimate it will be at least 50 years
before you have paid all of it off at the rate that you're paying now,
which is not five dollars a month, by the way. I'm paying quite a bit
more than that.
SUSAN DENTZER: Domenici is now sponsoring a bill that would bar health
plans from imposing limits on mental health care that differ from those
placed on medical treatment. But some who pay the nation's health insurance
bills, including many employers, are worried about the potential costs.
Dr. Mary Jane England heads the Washington Business Group on Health,
a group of 165 large employers.
DR. MARY JANE ENGLAND: I think for small and moderate employers, they
are still concerned that a very small increase of any kind in their
health benefits can be -- can actually cause them to be less competitive.
It can really drive them out of business.
SUSAN DENTZER: But Dr. England says the concern that costs would explode
is misguided. Studies of states and managed health plans that have done
away with disparities in mental health coverage showed that the measures
raised overall health costs by less than 1 percent. And in fact, she
says, many employers have found that putting in place broad coverage
for mental illnesses can even save money. That can be especially true
if it fosters better treatment for depression.
DR.
MARY JANE ENGLAND: Actually, Digital and other companies that have,
like Pitney Bowes and Bank One, that have put in place mechanisms by
which we can identify depression early and really have very extensive
employee assistance programs. By identifying it early, they finally
have been able to reduce costs for their mental health programs.
SUSAN DENTZER: To set an example for the nation's employers and insurers,
President Clinton announced that insurance companies covering federal
workers will have to provide full coverage of mental health and substance
abuse treatment. At today's conference, he also called on Congress to
hold hearings on legislation like the Domenici bill. And he unveiled
a new program to improve mental health services in schools.
PRESIDENT
CLINTON: We have to do more to reach out to troubled young people. One
out of ten children suffer from some form of mental illness, from mild
depression to serious mental disease, but fewer than 20 percent receive
proper treatment.
SUSAN DENTZER: The National Institute of Mental Health now plans a
new five-year study. It will explore the real extent of mental illness
among Americans and the types of disabilities that result.
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