When a Navajo couple discovers their children have a disorder that makes exposure to sunlight fatal, they also learn their reservation is a hotbed for this rare genetic disease. Why?
The filmmakers describe their reasons for making the film as well as the responsibility that comes with telling a personal and sensitive story in a documentary.
Michelle Evans Milota, Executive Director of the XP Family Support Group, travels to a house on the Navajo reservation to help a family protect their home from UV rays.
Harry C. Myers explains the significance of creating the Long Walk National Historic Trail.
The Long Walk was the climax of a brutal war of near-extermination waged against the Navajo people. More than 10,000 Navajos were forced to walk 500 miles—those who could not keep up were shot—and subsequently imprisoned in a camp called Bosque Redondo.
Geneticist Robert Erickson describes a theory behind the prevalence of XP on the Navajo reservation.
Meet Dorey and Yolanda Nez who had two children with XP. Approximately 25 percent of people with XP develop progressive neurological disease. This is expressed in the form of developmental disabilities and the loss of previously attained abilities, such as walking and talking.