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HOPE FOR A CURE


"It used to be there was a breakthrough every six months -Now there's one about every six weeks, and it's wonderful."

CR: When I was injured in 1995, I was given a spinal cord manual. It tells you about spinal cord injury and all the side effects and the problems that go along with it. And most evenings when I wanted to watch Monday Night Football, my nurse Patty made me read the manual, and it's really quite horrific. You're dealing with bladder and bowels and regulating them and literally teaching your body how to behave with this problem and all the things that can happen: collapsed lung, pneumonia, blood clots, etc, all of which I've suffered from anyway. The rehab basically was in order to prepare you to sit in a wheelchair. And now, we're at the stage where leaders in the field like Reggie Edgerton at UCLA, have discovered that exercise is absolutely essential. They're making discoveries so quickly now it's unbelievable. It used to be there was a breakthrough every six months and now there's a breakthrough about every six weeks, and it's wonderful.

AA: How do you know what's false hope and what's real hope?

Photo of  Reeve in recovery
Reeve in recovery.  

CR: I have the privilege of talking to the best minds on the problem around the world. As chairman of a paralysis foundation, we finance the best work in the world, so I can e-mail or call up one of the guys and say "what's happening?"

AA: There are three areas that are being worked on. One is to limit the damage right after an accident, and secondly, to work on those cells that are left intact and help them function, and then to regenerate those that have been severed. Do I have it right?

CR: That's 3 out of 4 and the fourth is remyelenation. I have nerves that are still intact, but are not functioning because they are demyelenated. But they're still there, and if they could be remyelenated, they would work again. You need only 10% of the nerves in the cord to be intact to get function, up to and including walking. (For more on this research, see Born Again Nerves)

AA: That much function, huh? With only 10% CR: Yeah. Because there's literally millions of nerves, and so 10% of millions works out pretty well.
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Photo:Andrew Woods

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