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Q:
When did you find out you had Williams syndrome?
Steven:
When I was fifteen years old. We didn't know about Williams
syndrome before then. When we found out we had Williams syndrome,
it turned our whole lives around.
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Dr.
Ursula Bellugi studies the genes behind Williams syndrome
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Scott:
When I found out I had Williams syndrome, I did not realize
what that was. When I went to my first Williams syndrome convention,
it was wonderful. It was like being at a cloning convention.
I'd turn around and somebody would look like me. I'd turn
around again and somebody else would look like me. It was
really neat. You could interact with people just like you
and they could have such a big heart. I felt understood. I
felt relaxed and I felt that people really cared.
Q:
People with Williams tend to be musical. Does either of you
play instruments?
Steven: My brother and I play instruments by ear.
I used to play saxophone in high school. I play organ and
sometimes synthesizer and harmonica also. It's fun. I enjoy
music.
Scott: I played keyboard and I was in the marching
band. I played trumpet and sousaphone and, one time, this
percussionist who played snare drum didn't come so I filled
in for him. I dabble with the trumpet every once in a while.
I love bagpipes. I love going to where people play the bagpipes.
I always wanted to go to the Williams syndrome music camp.
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