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Growing Up Different

 
   
Science Hotline
Photo of Kenna Margaret Kenna
e-mail questions before November 27, 2001
 

Margaret A. Kenna, MD, is an Associate Professor of Otology and Laryngology at the Harvard Medical School and a full-time pediatric otolaryngologist at the Children's Hospital, Boston. She is Director of the Pediatric Cochlear Implant Program at Children's and Director of the hearing impaired program in the Department of Otolaryngology and Communication Disorders. She has published over 100 journal articles, book chapters, and other types of publications in the field of pediatric otolaryngology. Her areas of research include sensorineural hearing loss and otitis media in children.

     

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Kenna responds :

11.13.01 Suzie McCarthy asks:
I am a student at a deaf/hearing mixed school in Los Angeles County and as part of the integration program I am now in my third year of ASL. So I am very interested in the deaf community and culture. I have heard different views on the whole "Cochlear Controversy" and the one thing that does concern me is that it seems a small child given the implant might socially end up in a type of no-man's land. Not totally fitting into the deaf culture but not being completely hearing either. Also, if the child receives the implant at a young age he/she doesn't really have a say in the whole procedure. Please do not take me wrong. I am not anti- the implant at all but every time I hear this subject debated I wonder about the kid. Based on your experience is this a problem?
Thank you so much for your work, care, and your time, Suzie McCarthy, Granada Hills High School

Kenna's response:
If a child undergoes a CI early in life and develops normal or near normal speech and language, that child will grow up in the "hearing world."

I agree that he/she would still be deaf, but since the primary forma of communication is spoken language that child will be in the spoken language world. I agree, that the child does not get to participate in the decision. Unfortunately, if you watied until the child was old enough to have a definite opinion about CI vs no CI, that child would very possibly be too old to derive much benefit from the implant. If the child grows up using ASL and never uses his/her hearing, then an implant as an adult will probably be doomed to failure (in terms of that person developing usable spoken language). If the person is oral deaf (ie, using only spoken language already, or bilingual, speaking and signing) then there is a greater possibility that they will benefit, because they have been using their residual usable (albeit very little) hearing all along and will probably have both speaking and signing friends.

11.12.01 Pam Tontodonato asks:
Dear Dr. Kenna,
My question concerns the policy of determining suitability for a cochlear implant. Besides the cost issue, why is an implant only considered appropriate for a person who can't use hearing aids? I am asking this because I have a four-year-old son with profound hearing loss in the left ear, and moderate sloping hearing loss in the right ear (of unknown etiology). He wears a hearing aid for his right ear. Why is he not considered a candidate for a CI for his left ear? Thanks for your comments.
Pam Tontodonato Hudson, OH

Kenna's response:
The FDA has guidelines that are followed by most implant teams, and these guidelines include auditory thresholds as well as a number of other tests. Since the implant can provide a lot of benefit, but not normal hearing, many people are reluctant to implant a child who still has usable hearing in one ear. Having said that, there is a move to consider implanting "less deaf adults" and there may be certain circumstances in which this may apply to a child as well. Also, the hearing from a hearing aid is not the same as hearing from an implant. If the hearing with a hearing aid in the better ear is pretty good, the person actually might prefer that ear to the implanted ear and not use their implant.

11.12.01:
Dear Dr. Kenna,
I 'played' the interactive cochlear implant game on the SAF Web site. My question is: What does it really sound like to the implantee? Does it ever get any clearer? Thank you.

Kenna's response:
Good question. It does get clearer - or at least the sounds start to make much more sense - to many patients over time. But how clear and usable the sound is depends a lot on the age at implant, the reason for implant, how the device is programmed, etc.


 

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