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For a list of resources on caregiving, go to Second Opinion, Caregiver Burnout (Episode 507)
For a list of resources on end-of-life planning, go to Second Opinion, End of Life (Episode 313)
For more information about kidney disease and caring for those with kidney disease, use the links below:
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American Association of Kidney Patients |
AAKP is a national organization directed by kidney patients for kidney patients. This is an extensive site with information about specific conditions, treatments, lifestyle improvement, caregiving and the AAKP HealthLine, is a free, one-hour conference call designed to educate you on a variety of topics affecting kidney patients and their families. Conference calls feature kidney healthcare experts from across the country. |
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American Kidney Fund |
AKF provides health education to people with, or at-risk for, kidney disease and direct, treatment-related financial assistance to kidney patients who are in need. The site includes information that ranges from risk factors to living with kidney failure and paying for treatment. AKF is creating a database of stories from people who've been affected by kidney disease. |
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Family Caregiver Alliance |
Family Caregiver Alliance is one of the largest and oldest organizations in the US devoted solely to caregivers. The web site includes information, free publications, and an online caregiver support discussion group. See their article on Taking Care of YOU: Self-Care for Family Caregivers. |
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Kidney and Urology Foundation of America |
KUFA is a national, not-for-profit organization dedicated to helping people with kidney and urologic diseases and individuals waiting for organ and tissue transplants. The site includes a library of articles on kidney disease and kidney health. Patient resources include emergency grants, help in finding a nephrologist or urologist or locating an organ transplant center in your area, and information on clinical trials in nephrology and urology and new FDA drug approvals. They also have a section just for kids. |
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Kidney School |
Kidney School is an educational project of the Life Options Rehabilitation Program. Supported by an unrestricted educational grant from Amgen Inc. and administered by the Medical Education Institute. It is an interactive, web-based learning program in 20-minute modules designed to help people learn what they need to know to understand kidney disease and its treatment, adjust to kidney disease, make good medical choices, and live as fully as possible. |
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National Alliance for Caregiving |
NAC is a joint venture of several private and governmental agencies. They conduct research, develop national projects, and work to increase public awareness of the issues of family caregiving for older Americans. The site includes information for caregivers on how to take care of themselves while providing care. Check the Publications section for online brochures. |
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National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC) |
NKUDIC is an information dissemination service of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK). The NIDDK is part of the National Institutes of Health (NIH), which is part of the U.S. Department of Health and Human Services. The site includes and "A to Z" list of topics and titles, information on clinical trials and Spanish language publications. |
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PBS |
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Second Opinion |
Several other episodes of Second Opinion also explore topics that are relevant to kidney disease and caregiving. They include:
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