Caregivers for younger people ...
Tim and Diane of Celina, OH write:
Our biggest concern was for our son's future, when we were no longer able to care for him (or when we just needed a break). A nursing home was not an option for us - we were not impressed with the care we had seen for other residents. We want families to know there are other options - in home environments in their own communities, with staff who WANT to be there. This means better pay and benefits for those who choose to care for our loved ones when we are no longer able to do so.
Jim of Ridgefield, CT:
Surely my health has suffered over the years, but there is no one here to take care of me. We're pretty much on our own, left to make decisions about nursing homes, caregivers, health care as time and money permit. I wish we had a national healthcare system which would allow her to go into a nursing home without financially ruining my retirement savings. When that does happen - and surely it will - I will have to take a long, deep breath and gear up to face my continuing to work thoughout my "golden" retirement years.
Katie of Orange City, FL:
I do receive funds now for services for them as I was picked to be in a pilot program to be a "Consumer Directed Service" It still is not easy to find the help I need when I need it.
My most important worries are wondering who will do my job when I'm no longer able to. I have such a fear of "homes" since I've heard of the sexual assaults in them. How do we protect our loved ones when we can't be there? Is there an advocacy group for this? God Bless us all and give us strength to do for our loved ones.
Desiree of Tunkhannock, PA:
It was heart-wrenching to watch my own child get sicker without any hope, but to watch these other children with nobody but the nurses, doctors and therapists to care for them just made me sick. There were even children there whose families were not intellectually or emotionally ready to care for them at home. I often thought that there is a need for a non-hospital setting to care for children who were in this category of too sick to go home, but otherwise functional. What about an Eden Alternative for chronically ill children?
Sally of Portland writes: