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Pick-up trucks are invaluable in navigating the reservation's vast distances.
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by Ellen L. Rothman
I live among the red rocks of the Southwest. The Navajo Reservation is a
desolate place with a jarring juxtaposition of primitive and modern.
Wooden shade houses, crafted from a ramshackle accumulation of piñon
logs, offer respite from the searing noontime sun. Hogans, the
traditional Navajo dwellings, mounded from the vermilion clay, stand
together with groups of weather-beaten trailers. Suddenly the barren
terrain is broken by fields of steel pylons, embattlements hoisting
thick ropes of power lines to rescue a few clusters of homes from the
isolating darkness of nightfall.
On the reservation, my husband Carlos and I are two members of a staff
of 11 physicians working in a remote clinic that offers routine
outpatient care as well as emergency facilities in a small six-bed
emergency department. We are the only medical facility in a 70-mile
radius, so we see a range of patients, from critically wounded trauma
victims to those with mundane colds and viral illnesses. In addition to
the children Carlos and I trained to care for, we also treat grownups
and elders and pregnant women. We work closely with our colleagues who
are trained in internal medicine and obstetrics to ensure that we
provide high-quality care to all our patients.
All IHS [Indian Health Service] physicians sign an initial contract of
two years. If we decide to stay, we choose to renew our contracts year
by year. Our patients are accustomed to getting to know a new physician
every couple of years, and they rarely identify a primary-care physician
as their own. The IHS offers challenging and rewarding work, but not
necessarily a luxurious lifestyle. We can't own our own homes, but
instead live in the prefab homes or, for the lucky ones, in a newer
double-wide (trailer, that is) that the government provides. Our Boston
friends laughed when they heard that our rent went down this year to
less than $200 per month as our house devalued by one more year. We are
lucky to have a small grocery store right in town, but must drive more
than two hours for basic shopping or to service our cars or to eat out
in a restaurant that doesn't offer collectible theme prizes. It's hard
to imagine building a permanent life here, often hundreds of miles from
family. Our Navajo community has internalized this pervasive transience
and approaches us with hesitation, protecting itself from inevitable
loss. Many of the physicians as well are already planning the next step
within months of their arrival. Some of us stay for the long term, but
most do not.
Prior experience did not prepare me for the challenges I would face in
dealing with patients here. The nearly 250,000 Navajo are spread across
a reservation larger than West Virginia. Navajo traditions are intact,
and most of our elders do not speak English. Nearly 70 percent of our
patients do not have a phone, and 50 percent live without running water
or electricity. The "ve-hicle," or "chitty" -- typically a 4x4 pickup
capable of navigating the unmarked dirt roads that crisscross the
reservation -- is highly valued. Recently, we failed to resuscitate an
elderly man whose family first noticed that he was unresponsive two
hours earlier. The family first had to drive eight miles to reach their
nearest neighbor with a phone to alert 911, and then the ambulance had
to cover more than 40 miles over unmarked roads to retrieve the patient.
The man had already been without a heartbeat for at least one hour by
the time the ambulance arrived at the clinic.
The Navajo have an ambivalent relationship with our Western traditions
and lifestyle. Initially, I was astonished that many of the Navajo do
not experience the lack of amenities as privation, but rather take pride
in sustaining their ancient nomadic ways. They still often describe
their permanent homes as "camps," hearkening back to an era when clans
moved from the desert highlands in the summer to graze the animals and
farm the more fertile lowlands. Of course, this view is not universal.
One mother of seven children said to me, "I just need to get that
running water and 'lectricity." I have learned that this struggle to
maintain the kernels of the ancient traditions while still embracing the
comforts of modern living contributes to tension among the Navajo and
creates dissension when trying to create a vision of the future.
One of the pediatric nurses has managed to bridge modern living and the
traditional culture. She lives in a hogan without running water or
electricity. She wakes every morning at 5:30 to start the fire and haul
the water. She goes for a quick run before preparing breakfast for her
family. She then spends the day administering vaccines and teaching
parents to use car seats before returning home to restart the fire and
prepare dinner. Her mother-in-law also lives in a hogan. When she was
discharged from the hospital on oxygen earlier this winter, Sally had to
keep reminding her not to use the oxygen when the fire was burning:
"It's hard in the cold with no fire. She complains, but what can I do?"
During medical school in Boston, I worked in a primary-care clinic that
served many recent immigrants. I had to counsel Haitians that Gripe
Water, which often contains alcohol and is used to treat colic, is not a
great choice for babies. Many Central Americans insisted on overfeeding
their infants because in a culture of starvation, obesity is a symbol of
health and success. An African mother asked me to circumcise her newborn
daughter so that she would have no trouble finding a husband when she
returned to her homeland. But these families had come to America to
fulfill dreams of an easier and more successful life. Often I had the
opportunity to serve as a cultural interpreter as they struggled to
understand life in this country. They wanted to know what I had to
offer, and they invariably felt that it was an advantage over what their
native lands could provide.

Many rural Navajo continue to live in traditional hogans.
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The Navajo, in contrast, never asked for the white doctors. The earliest
Western doctors clashed with the Navajo. The doctors fought to enforce
their own modern traditions and to terminate the influence of the
traditional medicine men. Since then, more tolerant viewpoints have
prevailed, and we have achieved a sometimes uneasy balance between the
modern and the traditional ways. Still, the government has chosen the
medical structure and the range of services to provide. Approval for new
facilities must come from Washington, far removed from the red lands,
and the process can be so lengthy that by the time the facility is
built, it is already out of touch with the current demands of the
people. The Navajo clearly resent this and are working to establish
their own medical system and wrest control from the government. These
tensions, sometimes present and palpable in the clinic, sometimes not,
depending on the particular patient, make practicing in this land
challenging and occasionally frustrating. My pediatric patients must
come to me in clinic to receive the mandated vaccines and legally
required Western treatment for critical medical problems. Some want what
I have to offer and accept advice willingly, even eagerly. Others would
prefer not to have to come in the first place.
The most challenging and troubling conflicts come over the care of
children. In the Navajo Nation, we live in a bit of a legal never-never
land. The Nation is largely self-governing, determining its own laws and
subject only to federal laws. Except when the Arizona state laws take
precedence. (To make the situation more complicated, the Nation spans
three different states.) The rules seem desultory, irrational, and
improbable at times, difficult to navigate always.
I am currently the medical liaison for the child-protection team. On the
reservation, the department of social services is under tribal
jurisdiction. The caseworkers are all traditional Navajos, fluent in
both languages and fluid with the old traditions as well as the modern
ways. They must be able to interpret any household, to assess the
traditional values and compare them against a modern standard. In a
recent team meeting, we discussed a family who was charged with neglect
for failing to bring the 13-year-old to school. The family had had
multiple written agreements, documented by the social worker, to ensure
that the child went to school. Yet despite these measures, the family
had as of yet failed to comply with any of our requests. In the midst of
the heated discussion about how drastic our censure should be to ensure
that the child would receive an education, the caseworker in charge
silently raised his hand.
"Why does a kid have to go to school anyway?" he asked. "Why isn't it
okay to just follow his grandfather around and learn the traditional
ways? He has to learn things. He has to memorize stuff. Why isn't that
good enough?"
The room was silent.
"I mean, I'm asking because I want to know what to say when the parents
ask. Parents ask this kind of thing all the time. I want to know what I
should say."
At the time, I was angered by the question. These people were selected
by the tribe to ensure that all children received appropriate care at
home. Why couldn't he understand the importance of a well-rounded
education? But as I thought about the issue further, the question seemed
legitimate. Who is to say that my Western education has more value than
his Navajo traditions? The reality is that most of these children will
not move off the reservation; they will not pursue jobs demanding a
Western-style education. But I believe that the children must be given
that choice -- to pursue the future or to preserve the past or some
combination in between. This choice would be impossible without any
formal Western-style education. The state-mandated answer, and the
answer I still believe in, was unequivocally that this child has to go
to school, or at least pass the state examinations. The question exposed
the entrenched cultural differences between our two communities, even
when we try to work together for the good of a child.
There is a deep-seated suspicion among the Navajo that the government is
using IHS physicians to practice and experiment on them. Among a small
subset of the population, this belief is unwavering. Our group of
doctors has struggled for many years to decide how to handle the case of
a child whose father has consistently refused a potentially lifesaving
procedure. The child has a large hole in her heart that allows the blood
to flow unevenly, overloading her lungs and shortchanging her body.
While young, she will most likely not feel the effects of this
imbalance. But the chronic overflow will put her into heart failure by
the time she is an adult and will probably kill her by middle age. The
father will not permit the surgery because he is convinced that the
surgeons want to practice on her, opening her chest and then stitching
her back up without actually performing the lifesaving procedure. We
have allowed the family to defer the surgery because the girl has
several more years before correction is critical for her survival. We
bring them in yearly to readdress the issue, and we are hopeful that
finally this year we may have broken the impasse.
Sometimes, just when I become frustrated and feel that I will never be
able to negotiate a meaningful relationship with the ancient traditions,
I find a moment of understanding. At 15 months of age, Jimmie Calamity
hadn't quite lost the thick shock of fuzzy hair that most Navajo infants
sport before it changes to the finer, flatter coif of early childhood.
He sat in his mother's lap, wearing an Old Navy T-shirt with a
sweatshirt, jeans, and a pair of miniature Nike sneakers. His mother
wore jeans and a sweatshirt. When I asked what brought Jimmie in to the
clinic that day, his mother held him a little closer and looked at me
defiantly. "He was in the hospital for wheezing," she said. "He just got
out."
As I looked back at her toddler, I noted the snotty nose and the coarse,
congested breathing. I thought I heard a faint whine to his breaths, but
even so, he was smiling and giggling in his mother's lap. Bronchiolitis,
I thought. We were in the thick of the winter-long season of the viral
pneumonia that plagues young children. "How has he been since you went
home?" I asked.
"Well, he was pretty sick in the hospital," she said. "But I went to a
medicine man and had a ceremony, and since then, he's been much better.
He's been in and out of the hospital with this wheezing, and none of you
doctors could tell me why this was happening, and you couldn't fix him.
Now he's much better since doing my own kind of medicine." She set her
jaw, clearly testing how I would respond to this.
"I'm glad the medicine man was helpful," I said. "Why did he think
Jimmie was having these problems?"
"Well, I don't know if you can understand this, but he made everything
right. Not just the body, but everything." She began to relax a little
as she spoke, loosening her grip on her son and slouching down a little
more comfortably in her chair. "My grandmother passed on when I was
still pregnant with Jimmie. Jimmie was always moving in my belly, and
the medicine man explained that the spirit of my grandmother was trying
to take him for herself. There was also a lightning storm, and it cast a
spell on the weakest person in the household to make him ill, and being
the baby, he's the weakest person," she explained. "The medicine man did
a ceremony to make everything all right again."
I was glad that she found her traditional methods helpful in a way my
Western medicines couldn't be, but as I put my stethoscope to the baby's
chest, I heard coarseness and prominent wheezing. He still needed my
medicines, and I was afraid that the healing ceremony had been so
effective in the mother's opinion that she would stop using the
medicines I had to offer. I explained to her again that while I believed
that the health of the spirit and mind contributed to physical illness,
my tradition of medicine attributed Jimmie's breathing difficulties to
inflammation deep in the lungs. Our medicines were directed at
alleviating the inflammation and opening the airways.
"Oh, yes," she said. "I've been giving him the pink antibiotic three
times a day for the ear infection. He has two more days left. And I give
him the breathing treatment at least twice a day. They seem to work. He
already finished the other liquid medicine they gave him."
"Excellent," I said. The mother looked fully at ease now. "It sounds
like you have done a great job for him, and he seems to be getting
better. I would expect him to be all better within the next week. If he
is still having trouble or getting worse, please bring him back to see
us. Otherwise, we'll see him at his next well-child appointment." I left
the room feeling healed from the experience, and I think she did, too.
Ellen L. Rothman, M.D. is author of White Coat: Becoming a Doctor at
Harvard Medical School. Names and some personal details were changed in
this article to protect the privacy of her patients.
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The History of Health Care on the Reservation
Indians' first contact with European immigrants brought exposure to
contagious diseases that spawned epidemics. It's not surprising, then,
that the Navajo looked on Western medicine with suspicion. They saw it
as an attempt to replace traditional Navajo forms of curing, and indeed
early practitioners sent to the reservation by the Bureau of Indian
Affairs (BIA) believed just that. The entire Western medical process,
from thermometers to hospitals, was foreign to the Navajo. They were
accustomed to the diagnosis of hand tremblers, who could tell them what
they suffered from and why. Anglo physicians offered relief from
symptoms but not the restoration of harmony a traditional ceremony
brought. These doctors even provided services free of charge, while
payment to a Navajo singer was considered an essential investment in the
healing process.
In 1955, the Department of Human Health Services took over from the BIA,
creating the Navajo Area Indian Health Service and increasing the number
of doctors serving the Navajo through a medical draft. These physicians
possessed a greater appreciation for and sensitivity to Navajo ways
while demonstrating the power to cure tuberculosis and other reservation
scourges untouched by traditional medicine. Ever pragmatic, the Navajo
began to accept that Western medicine was more effective for some
diseases, while traditional ways worked for others. By the 1970s,
however, it was clear that many stereotypes persisted. Assigned to the
reservation for a term of two years, doctors often left just as they
became familiar with Navajo ways. In turn, the Navajo continued to
distrust Western medicine and often arrived at the hospital too sick to
benefit from their help. In response to these problems, the tribe began
to encourage Navajos to enter the medical system. For its part, the IHS
embraced traditional Navajo healing, inviting singers to perform
Blessingway ceremonies at hospital openings and providing private rooms
for rituals. Still, as a federal agency, the IHS remained dogged by
bureaucracy, lack of sufficient funds, and ignorance of life on the
reservation. Now that Navajos were willing to utilize Western medicine,
they wanted a greater say in how that health care was provided.
Established in 1972 by the Tribal Council, the Navajo Health Authority
aimed to establish the first American Indian Medical School while
promoting traditional ways through a department of Native healing
sciences. Five years later the Council created the Navajo Division of
Health (NDOH) to ensure that quality, culturally acceptable health care
was available to all Navajo. That same year, the American Indian Medical
School was approved. Today, the Navajo Area Indian Health Service
(NAIHS), headquartered in Window Rock, Arizona, provides inpatient,
outpatient, contract, and community health care at six hospitals, seven
health centers, and 15 health stations, as well as in-school clinics and
health programs throughout the reservation. A major portion of the NAIHS
health care is delivered through the NDOH, also in Window Rock, which
provides a variety of health services in the areas of nutrition, aging,
substance abuse, community health outreach, and emergency medical
services.
-- Caitlin O'Neil
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