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Joan August is currently caring for her son Bo, who has AIDS. When
he was diagnosed five years ago, she had to deal with the shock
of the revelation. She decided the only way they were going to make
it was for them to focus on the living. Joan was divorced from her
husband, but he moved back in with her to help care for Bo.
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On Caring for Her Son Bo
The first conversation I had with the doctor on the phone, she said
you know people think that just because you have AIDS you just waste
away and die, and that's not true. There are lots of things that we
can do to help someone with AIDS, and we treat it more like a chronic
disease. As soon as I heard that I knew that there was not only support
but also there was possibility and that became part of my resource for
strength. There are times when I'm watching his struggle, I see slides
of him as a baby in front of me. It's just like slides going across
my eyes of just nursing this beautiful round healthy baby, and then
times when he bounds in the house with his baseball cap on backwards
and says hey, Ma, guess what happened. And now I'm watching him paste
himself together and wanting so much to stay alive and doing it, but
on those days it's hard, no matter how many resources you have, and
it hurts.
On Learning of Her Son's Illness
It was a beautiful spring day in March and Bo had said that he had wanted
to talk to me and his dad, and that was really unlike him to make an
appointment with his father and me. We'd been separated and although
we all talk to each other, Bo didn't make an appointment with each of
us. I knew he had been to the doctor because he had had a sore throat
and it wasn't going away. But that appointment that he made with us
and the connection with the doctor, frightened me. But I didn't know,
there was nothing in Bo's lifestyle, nothing about him that would make
me believe this could ever, ever happen.
On Facing Mortality
It must be that, as a society we don't deal that well with illness.
I know for me, the first time I went into this room where my friend's
mother was dying and they asked to just spend the night with her, to
be with her mother and they didn't expect her mom to die. I just had
this very strong sense she was going to die, I thought, and I was terrified,
just absolutely terrified. I thought, I can't do this. I don't know
anything about this. Of course, the experience was extraordinary because
I walked into that house and there was an overwhelming sense of peace
inside of me which I don't know where it came from. I choose to call
it the grace of God, but it was something much more mystical, mysterious
than I could name. Because it didn't feel like my peace, it felt like
something given to me. All I could think of to do was to be present
to her.
On Hope and Healing
Bo knows how to do that. I don't know how to do it as well as he does.
I'll look at him and he'll say, oh, I want to go back to the reunion,
because our family has a big reunion in July. I didn't say this to him
but I'd look at him and I'd think he can't get on that plane and fly
to New York and I don't think we're going to be able to do it, but I'll
go along with this. We've gone to New York two summers now and he's
planning to go this summer and he's gone on other little trips. He makes
plans and he's well for it, and he knows how to get his energy together.
So it's pretty extraordinary to me.
Next: Jim
Locke