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Books, Journals, Newsletters



Books
Albom, Mitch. "Tuesdays with Morrie: An Old Man, a Young Man and Life's Greatest Lesson." Doubleday Books, 1997.
An account of the author's fourteen Tuesday visits with his former professor, Morrie Schwartz, who was dying from Lou Gherig's disease. Albom, a sportswriter, was dissatisfied with some aspects of his own life and career, and describes how Schwartz helped him gain perspective on life.


Anderson, Patricia, ed. "All of Us: Americans Talk About the Meaning of Death." Delacorte, 1996.
Personal reflections on death from a group of Americans of varying ages and diverse backgrounds.


Arnold, Joan Hagan and Gemma, Penelope Buschman. "A Child Dies: A Portrait of Family Grief," 2nd ed. Charles Press Publishers, 1994.
Speaks about child deaths from infancy to adulthood. Illustrations and quotations from literary and religious/spiritual sources, and two short bibliographies.


Barley, Nigel. "Grave Matters: A Lively History of Death Around the World." Henry Holt, 1997.
Anecdotes of rituals, meanings and metaphors of death around the world, from China to Venezuela, by a witty English anthropologist.


Bennett, Amanda and Terence B. Foley. "In Memoriam: A Practical Guide to Planning a Memorial Service." Simon and Shuster, 1997.
A detailed manual that addresses various types of questions that may come up in planning in service. Includes checklists, sample services both secular and religious, and suggested readings of poetry and selections from the Bible.


Beresford, Larry. "The Hospice Handbook: A Complete Guide." Little Brown & Co., 1993.
An extensive introduction to hospice care that talks about basic concepts of palliative care, when hospice is an appropriate choice, an inside look at how a hospice team operates, and how to choose a hospice.

Bernardin, Joseph Cardinal. "The Gift of Peace." Bantam Doubleday Dell Publishing, 1998.
The popular Catholic Archbishop of Chicago offers inspirational reflections from a Christian perspective on the last three days of his life, including his fight with cancer and decisions to forego a second course of treatment and to die at home.


Bowlby, John. "Loss: Sadness and Depression." Perseus Books, 1999.
John Bowlby's work in developmental psychology is basic in most college courses. This book in particular deals with the attachments people form with others and how people negotiate death. May be useful for anyone who wishes to explore a contemporary model of grief.


Byock, Ira. "Dying Well: Peace and Possibilities at the End of Life." Riverhead Books, 1998.
A book with the message that the immediacy of death can give rare opportunities for emotional and spiritual growth. Dr. Byock tells stories of his own father's death and other families he has known that have found growth, love, and reconciliation in the face of pain, conflict, and death.


Campbell, Margaret L. "Forgoing Life-Sustaining Therapy: How To Care For The Patient Who Is Near Death." American Association of Critical Care Nurses, 1998.
This book gives guidance on issues such as how to stop a ventilator, the use of artificial nutrition and hydration, forgoing dialysis, and management of delirium in the final days of life. Case studies address clinical aspects of care as well as ethical and legal considerations and the processes of communication and decision making.


Capposela, Cappy, and Warnock, Sheila. "Share the Care : How to Organize a Group to Care for Someone Who Is Seriously Ill." Fireside, 1995.
A step-by-step primer on how to organize a group of caregivers. Easy to use reference on each phase of caregiving, and advice on caregiver burnout, spreading responsibility, and other topics. Includes sample forms, checklists, and scripted passages.

Cassel, Christine K., and Fields, Marilyn J., eds. "Approaching Death: Improving Care at the End of Life." National Academy Press,1997.
Complete coverage of issues and barriers surrounding good care at the end of life. Contains a resources section.


Despelder, Lynne Ann, and Strickland, Albert Lee. "The Last Dance: Encountering Death And Dying," 5th ed. Mayfield Publishing Company, 1999.
This is a college-level introductory thanatology textbook. Chapters are devoted to grief, bereavement, funeral practices, suicide, attitudes about immortality and the afterlife, near-death experiences, the health care system, and cross-cultural perspectives on death and dying.


Doka, Kenneth J. "Living With Life-Threatening Illness: A Guide for Patients, Their Families, and Caregivers." Jossey-Bass, 1998.
This book emphasizes the experience of living with illness, rather than simply focusing on its terminal phase, and offers workable suggestions for effective coping. Also includes examples of health care proxies and living wills.


Doyle, Derek, et al., eds. "Oxford Textbook Of Palliative Medicine," 2nd ed. Oxford University Press, 1997.
A comprehensive medical textbook on palliative care. Includes chapters on ethical, cultural, spiritual issues in palliative care as well as rehabilitation, social work, and pediatrics in pallative care.


Frigo, Victoria, et al. "You Can Help Someone Who's Grieving: A How-To Healing Handbook." Penguin, 1996.
Common sense advice on how to help a grieving friend. Discusses grief in general, then provides examples of activities to do with the grieving person as well as tips on how to write condolence notes, keep a grief journal, or write tributes.

Gordon, Jack D., and Doka, Kenneth J., ed. "Living With Grief : Children, Adolescents, and Loss." Hospice Foundation of America, 2000.
Discussion about the grieving process of children who have lost a loved one. Draws from a wide range of contributors, and produced as a companion publication to the Hospice Foundation of America's seventh annual National Bereavement Teleconference.


Irish, Donald P., et al., eds. "Ethnic Variations in Dying, Death, and Grief: Diversity in Universality." Taylor & Francis, 1993.
A survey collection of in-depth articles on ethnic perspectives on death and dying from African Americans, Hmongs, Islamic and Jewish religions, and other groups. Includes a self-assessment tool for cultural readiness and awareness.


Kubler-Ross, Elisabeth. "On Death and Dying:What the Dying Have to Teach Doctors, Nurses, Clergy, and Their Own Families." Simon & Schuster, 1997.
The book introduced the author's "stages of dying" or "stages of grief" model. The stages someone undergoes when they know they will die are denial, anger, bargaining, depression, and acceptance. The model has been applied to bereavement models and other situations where someone experiences a change in social identity.


Laderman, Gary. "The Sacred Remains: American Attitudes Toward Death, 1799-1883." Yale University Press, 1999.
A scholarly perspective on the origins of current American burial practices, focusing on the shift of emphasis from burial as symbolic acts to burial as an industry with attendant professionalized funeral specialists.


Levine, Stephen. "A Year to Live: How to Live This Year As If It Were Your Last." Three Rivers Press, 1998.
Taking up Socrates' call to "practice dying," Levine lived a year of his life as if it were his last. From a largely Zen-Buddhist perspective, he offers a series of guided meditations and practices designed to help readers achieve a similar "life renewal."

Lynch, Thomas. "The Undertaking: Life Studies from the Dismal Trade." Norton, 1997.
A poet's account of his day job as a funeral director.


Lynn, Joanne, and Harrold, Joan. "Handbook For Mortals: Guidance For People Facing Serious Illness." Oxford University Press, 1999.
A comprehensive guide to end of life care, written for a general audience. Includes advice on how to make decisions about care, where to find support and treatment resources, how to communicate with physicians, how to get effective pain management, when to let go of medical treatment, and issues in hastening death. The authors also discuss the ethical issues of assisted suicide.


Lynn,Joanne, and Schuster, Janice Lynch, and Kabcenell, Andrea. "Improving Care for the End Of Life: A Sourcebook for Health Care Managers and Clinicians." Oxford University Press, 1999.
A companion to The Handbook of Mortals directed toward the health care manager.


MacPherson, Myra. "She Came To Live Out Loud: An Inspiring Family Journey Through Illness, Loss, and Grief." Scribner,1999.
Journalist Myra MacPherson gives advice for dealing with grief, drawing on her personal odyssey with the family and friends of a dying woman. This book tells the poignant story of love and death in a family.


Meyer, Charles. "A Good Death: Challenges, Choices and Care Options." Twenty Third Publications, 1998.
A hospital chaplain and administrator's practical and persuasive discussion of the gap between how we typically define a good death and how most of us still actually die. Meyer wants to steer the medical community toward accepting patient's wishes when they are nearing death.


Meyer, Maria, and Derr, Paula. "The Comfort Of Home: An Illustrated Step-by-Step Guide For Caregivers." CareTrust Publications LLC, 1998.
This well-organized handbook covers caregiving basics. Topics include preparing and equipping the home, understanding special equipment, dealing with emergencies, proper nutrition, caring for those with dementia or Alzheimer's Disease, bathing, how to make a bed while someone is in it, and movement and wheelchair transfers. Lists of in-depth resources are also given.

Nixon, Lois Lacivita, and Secundy, Marian Gray, ed. "Trials, Tribulations and Celebrations-African-American Perspectives on Health, Illness, Aging and Loss." Intercultural Press, 1992.
A look at cultural differences in views on life and death, featuring both case studies and an academic approach.


Nuland, Sherwin B. "How We Die: Reflections On Life's Final Chapter." Vintage Books, 1995.
Chapters cover the physiological changes and medical choices that go along with death. It also addresses conditions such as cancer, heart disease, AIDS, Alzheimer's, and severe trauma.


Oldfield, David. "Winnowing." Midway Center for Creative Imagination, 2000.
This is a book for people who have lived a long time, and need - for their own sake, and for the sake of others - to reflect on what they have learned and discovered along the way. Oldfield¹s guide to a very personal and spiritual journey is equally useful to the dying and their loved ones. Available free from http://www.midwaycenter.com/ .


Sendor, Virginia F., and O'Connor, Patrice M. "Hospice and Palliative Care: Questions And Answers." Scarecrow Press, 1997.
This book is written in question and answer format. Topics include what hospice and palliative care is, the services offered to both patient and family (including children), admission requirements, Medicare coverage, reimbursement issues, the resources available to patient and family, and how to locate these resources in the United States. Includes special sections on AIDS, Alzheimer's disease, Advance Directives, bereavement, the role of the physician, the role of volunteers, the concept of informed consent, and euthanasia.


Schaefer, Dan, and Lyons, Christine. "How Do We Tell The Children? A Step-By-Step Guide for Helping Children Two to Teen Cope When Someone Dies." Newmarket Press, 1993.
A book written for parents who are helping their children deal with grief. Suggests activities that may help a child express his or her grief.


Singh, Kathleen Dowling. "The Grace in Dying: How We Are Transformed Spiritually as We Die." Harper San Francisco, 1998.
Singh writes about the connection between "dying, contemplative practice and spiritual growth." Includes useful references and appendices.

Storey, Porter. "The Primer Of Palliative Care." American Academy Of Hospice And Palliative Medicine, 1994.
A quick overview of hospice and palliative care issues suitable for a general audience. The booklet is published by the American Academy Of Hospice And Palliative Medicine.


Sulmasy, D. "The Healer's Calling: A Spirituality for Physicians and Other Health Care Professionals." Paulist Press, 1997.
Addresses the longings of many people in the health care professions for a renewed sense of their work and for a return to spiritual elements of healing.


Tobin, Dan. "Peaceful Dying." Perseus Books, 1998.
Begun as the Faircare program at a Veteran's Administration Hospital, this book's twenty-six step program for peaceful dying ranges from the spiritual to the psychological ("Slowing Down Time and the Mind") to the practical ("Selecting Advance Directives") and sees dying as a learning opportunity for the community.


Webb, Marilyn. "The Good Death: The New American Search To Reshape The End Of Life." Bantam Books, 1997.
An overview of key controversies in modern care for the dying; reviews the legal, ethical, and political aspects of such assisted suicide and aggressive life support for the dying.


Weenolsen, Patricia. "The Art of Dying." St. Martin's, 1996.
Suggestions for how to cope with the multiple logistical and emotional aspects of dying, including diagnostic exercises, checklists and many short commentaries on the attitudes and feelings that may emerge during the dying process.

Journals
"Bioethics Forum"
Quarterly publication of the Midwest Bioethics Center. Sally Goldenbaum, Editor
Contact: (816) 221-1100; www.midbio.org


"Innovations in End-of-Life Care"
An international online forum and peer-reviewed journal for leaders in end-of-life care. Contributors are given the opportunity to describe in some detail the process of designing, implementing, evaluating and sustaining new practices that are designed to improve terminal and palliative care and that show some evidence of doing so.


"Journal of the American Geriatrics Society"
The Society's peer-reviewed journal, rated number one in the ISI Science Citation Index, provides clinically relevant articles and information on health services research, geriatric bioscience, and progress in geriatrics and notices of continuing education courses and available positions.
Contact: Lippincot Williams & Wilkins, at (410) 528-4000. All AGS members receive the journal free as part of their membership. Non-members should request copies from the publisher.


"Journal of Pain and Symptom Management"
Russell Portenoy, M.D., Editor-in-Chief
Contact: (212) 844-1460


"Journal of Palliative Medicine"
David E. Weissman, MD, Editor-in-chief
Contact: Mary Ann Liebert, Inc. Phone: (800) M-LIEBERT

Newsletters
"ABCD Exchange Americans for Better Care of the Dying (ABCD)"
A newsletter on quality improvement efforts and policy.
Contact: (202) 530-9864; www.abcd-caring.com


"Last Acts: Care and Caring at the End of Life Last Acts: A National Coalition to Improve Care and Caring at the End of Life"
Contact: www.lastacts.org