END-OF-LIFE TOOLS WEB SITES
AgeNet is a user-friendly Web site for older adults and their caregivers
presented in a newsletter format. Along with the information it
provides, the Web site gives you the opportunity to ask health professionals
(including a pharmacist and an occupational therapist) questions.
One of the most notable features is a section containing reviews
of drugs for health problems ranging from Alzheimer's
Disease to stroke.
Aging with Dignity
Aging with Dignity is an organization that advocates for the needs
of elderly Americans and their caregivers. The Web site provides an
overview of the organization's publications and projects.
Institute of Life-Threatening Illnesses
The American Institute of Life-Threatening Illnesses is based in
the Columbia-Presbyterian Medical Center of New York City. Their
Web site provides information on a wide variety of diseases, research,
policy initiatives, and quality-of-life issues.
Americans for Better Care of the Dying (ABCD)
The Americans for Better Care of the Dying Web site is dedicated to
advocacy for better support and care systems for the seriously ill.
It contains news updates, a resource directory and information on
Before I Die
The Before I Die Web site was the online companion guide to the 1997
PBS broadcast "Before I Die: Medical Care and Personal Choices."
It uses a narrative format to treat complex end-of-life medical,
ethical, and social issues.
Community-State Partnerships to Improve End-of-Life Care
Community-State Partnerships to Improve End-of-Life Care is dedicated to advocating for the dying. The Web site is directed towards
anyone concerned with end-of-life issues and provides useful information
including state resources.
Death: An Inquiry Into Man's Mortal Weakness
This well-designed Web site for the ThinkQuest Internet challenge is
divided into three sections: causes of death, coping with death,
and following death. The easy-to-browse format also includes tips
The Dying Well Web site, created by Dr. Ira Byock, past president of
the American Academy of Hospice and Palliative Medicine, contains
a wide range of resources on death and life-threatening illness,
plus articles by Dr. Byock and information on his books.
The End of Life: Exploring Death in America
A comprehensive Web site on death in the U.S. for people with life-threatening
diseases or those who are terminally ill. The transcripts section
includes links for those that wish to listen to or read specific
topics and stories relating to death or dying.
End of Life
Physician Education Resource Center (EPERC)
An initiative of the Medical College of Wisconsin and the Robert
Wood Johnson Foundation, EPERC provides information to physician
educators about end-of-life training materials, publications, and
conferences. The Web site requires registration for access.
Education for Physicians on End-of-Life Care (EPEC)
Robert Wood Johnson Foundation-funded project to educate physicians on the essential clinical competencies in end-of-life care. Includes resource guide,
information on obtaining EPEC curriculum and list of EPEC conference
End-of-Life Nursing Education Consortium(ELNEC)
Robert Wood Johnson Foundation-funded project
to educate nurses about End of Life Care. Also contact American Association of Colleges of Nursing: Fran Weed (202) 463-6930
Growth House, Inc. Resource Directory
Growth House is a San Francisco-based non-profit organization that
offers a broad range of online information on end-of-life care:
from hospice handbooks to sites that give tips on explaining death
to children. The Web site also includes an Inter-Institutional Collaborating
Network (IICN) that joins major end-of-life care organizations from
the United States, Canada, the United Kingdom, and Spain in an online
Innovations in End-of-Life Care
journal and forum on best practices to improve and manage a dying patient's
quality of life and care.
Last Acts, part of a national campaign by the Robert Wood Johnson
Foundation to improve end-of-life care, offers an extensive resource
directory, information on palliative care, daily journal articles, guides to coping with grief and bereavement, news, an electronic newsletter, and campaign updates.
Search Medicaid for explanations of their payment policies for consumers
and healthcare professionals.
Medicare Rights Center
General information resource center for the Medicare program.
Community-based center which provides an array of educational programs
for professionals and laymen dealing with healthcare ethics.
Missoula Demonstration Project
Web site that studies the impact of the impact of community-based care
on the quality of life of patients and their families.
National Reverse Mortgage Lenders Association (NRMLA)
The Web site for the NRMLA, a national non-profit trade association
for companies that originate, service, and invest in reverse mortgages--
a frequent financing option for end-of-life care. Also contains
general information on estate planning.
Partnership for Caring
Partnership for Caring is an advocacy organization for end-of life
care. Their Web site provides information on advance directives, pending
legislation, and a range of publications and services to foster
communication about end-of-life decisions.
Philadelphia Online: "Seeking A Good Death"
A well-organized and clearly presented Web site with many news articles
about Americans' attitudes towards death and dying. The series won
a Pulitzer Prize for photography in 1997.
Project on Death in America
Project designed to explore and fundamentally change the perception
of dying and death through research, education and policy.
Promoting Excellence in End-Of-Life Care
Robert Wood Johnson Foundation national
program office overseeing 22 innovative projectives nationwide to improve
quality of care for terminally-ill people and their families. Includes
project descriptions, resources, newsletter and links.