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FEATURE:
Faith and Disability
June 1, 2001    Episode no. 440
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Disability: A Lament
Helen R. Betenbaugh


(the prayer is excerpted from Betenbaugh's and Marjorie Procter-Smith's chapter in Eiesland and Saliers,
HUMAN DISABILITY AND THE SERVICE OF GOD: REASSESSING RELIGIOUS PRACTICE, Abingdon Press, 1998)


Creating God:

You made the sky,
clouds of purest white,
with rays of fuschia and orange and magenta at sunset,
and faces dear with the smiles of loved ones.
Today thousands were born without sight;
thousands more lost theirs because of injury or disease.
And it was evening and morning of another day.
Did you call this Good?

You made the finest sands,
snow to crunch under our boots,
fields of green grass,
cool on the soles of our bare feet on a hot summer's day,
and streams to hike alongside with loved ones.
Today thousands were born without feet or legs,
or with legs so twisted or spastic that they would never walk on them;
thousands more lost the use of theirs because of injury or disease.
And it was evening and morning of another day.
Did you call this Good?

You made the song of the birds,
the sound of waves lapping against the shore,
the warning wail of the siren,
music, the laughter of children,
and the tender words of loved ones.
Today thousands were born deaf;
thousands more lost their hearing because of injury or disease.
And it was evening and morning of another day.
Did you call this Good?

You made minds,
quick to invent the wheel,
to discover electricity,
to find a way to journey to the Moon,
and to fashion words of poetry for loved ones.
Today thousands were born with mental retardation,
with developmental or learning disabilities;
thousands more were rendered "incompetent," "vegetables,"
because of injury or disease.
And it was evening and morning of another day.
Did you call this Good?

Your hands pushed back the waters
to reveal the dry land,
And fashioned us from clay.
You made our hands to sculpt,
to move with grace like Pavlova or Baryshnikov,
and to caress the bodies of loved ones.
Today thousands were born with no hands or arms,
or with short stumps for arms and flippers where hands should be;
thousands more lost the use of their hands and arms
because of injury or disease.
And it was evening and morning of another day.
Did you call this Good?

You made us to sing,
to shout,
to laugh,
to communicate through important words,
and to speak from our hearts to the hearts of loved ones.
Today thousands were born without speech,
or with speech so difficult that it scarce can be uttered or understood;
thousands more lost the use of their voices
because of injury or disease.
And it was evening and morning of another day.
Did you call this Good?

You made a world of love,
of life shared in community,
of choices and decisions,
safe boundaries,
and relationships with loved ones.
Today thousands were born with autism
or other emotional illnesses;
thousands more entered the fog of emotional illness
because of abuse or injury or disease.
And it was evening and morning of another day.
Did you call this Good?

You breathed into us ruach, the breath of life.
You filled the world with the sweet perfumes of flowers.
You made us to breathe the tangy aromas of spices,
the scents of budding trees,
the incense arising from prayers for our loved ones.
You made us to taste the bread and the wine,
Body and Blood of your -- and our -- Loved One.
Today thousands were born so allergic that they cannot dare smell,
dreading the reaction to what they might suffer if they taste;
thousands more were made allergic
because of injury or disease.
And it was evening and morning of another day.
Did you call this Good?

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Where and when can we hold you accountable?
Where are bodies assembled that are guaranteed by the union label?
Where is the card proudly claiming "Packaged for you by Angel 33?"
Where is Quality Control? Customer Service?
Where do we get exchanges?
Where demand parts that work, that hold up under stress,
that permit us to have choices in living our lives?
WE call this Good.

Must we expect less of You than we do of each other?

Hear our prayer.

Where is the mercy you promised us?
Do you remember the Covenant?
Or were these hollow,
mere platitudes?

Does the rainbow mean something to you
or has it become an innocuous icon
for kindergarten teachers and Hallmark cards?

Jeremiah and the Psalmist wailed,
Job raged,
and Jesus wept.
Has God hardened God's own heart?

Hear our prayer.

Are our prayers less valid because we cannot see the candles flickering on the altar?
Do you ignore us if we cannot kneel to implore you to listen?
Do you choose not to hear us if we cannot hear the Sanctus bell?
Do you demand that we bring a high IQ to this discussion?
Do you judge us insincere if we have no hands to fold in prayer?
Do you get bored and turn away if we speak slowly, or not at all?
Do you sneer at us if we cannot speak to you rationally, in our "right minds?"
Do you find us unholy if we cannot tolerate the Bread and the Wine?

What, for Christ's sake, would it take for you to hear us?

We are yours, yet we see you distant, irresponsible.
We see you washing your hands of us
just as Pilate washed his hands of your Son.

We see angels taken over by pop culture.
Where are the angels you promised you would give charge over us?
Instead of cute pins on our shoulders
we want angels of mercy.
Mercy to end the unremitting pain,
to stop the infernal, eternal twitching and jerking,
to loose the tongue,
mercy to still the flailing arm,
to open the ears,
to quicken the brain,
mercy to relax the spasm,
to restore the eyes,
to walk and leap and dance,
mercy to touch,
and to feed ourselves with hands of grace,
to extend a greeting to the stranger,
to be free to breathe and taste,
and to soothe the anguished mind.

We want mercy.
Mercy to end Duschenne muscular dystrophy, Down Syndrome, Tourette Syndrome,
ALL Syndromes.
Mercy to halt Huntington's chorea and multiple sclerosis.
Mercy to end birth defects. All of them.
Mercy to stop strokes, and blinding diabetes.
Mercy for healing all in body, mind and spirit.
Balm in Gilead.
Unction.
Now.

Here is our prayer.

Hear our prayer.

We are weary of trying to name Paul's "thorn in the flesh."
We want to know why you left it there.
We are sick of celebrating Annie Sullivan.
We want to know why Helen Keller became Blind, Deaf, and Mute.

We are angry at fights about whether or not a President
can be shown "wheelchair bound."
We want to know why you didn't heal FDR from his polio
so he wasn't.
Don't tell us Christopher Reeve is a "true" Superman now.
We want to know why you didn't put him back on his horse.

At last, again our prayer.

Hear our prayer.

Mercy for healing all in body, mind and spirit.
Balm in Gilead.
Unction.
Now.


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