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COVER STORY:
Organ Donation
May 31, 2002    Episode no. 539
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BOB ABERNETHY, anchor: Now, a special report on the ethics of letting human organs be bought and sold. Right now, thousands of Americans die every year because there are not enough organs for transplants -- not enough being donated after death, and not enough being given now. It's illegal to buy or sell them.

Photo of Kate Prager and Toby Appel At its meeting next month, the American Medical Association will consider recommending a test to see if financial incentives will increase donations of organs after death. But would that become a slippery slope leading to legalizing an organ market? And why would that be a problem? Kim Lawton reports.

KIM LAWTON: Toby Appel and Kate Prager have been good friends for nearly 30 years. They're about to have an even closer bond: Kate is giving Toby one of her kidneys.

At the Washington Hospital Center, they're getting last-minute instructions and doing the final blood tests before surgery. In 1989, Toby was diagnosed with polycystic kidney disease, a hereditary disorder in which cysts progressively impair kidney function. She suffered kidney failure in December of 2000 and was put on dialysis. Her doctor told her she needed a transplant in order to survive.

TOBY APPEL: But the waiting list for my blood type is about five years. I am Type O blood, and that is the most difficult to receive a donation because it matches only with other Type O.

LAWTON: Two of Toby's relatives volunteered to be tested, but neither was a good match. It looked like Toby had a long and frightening wait ahead.

KATE PRAGER: We were talking by phone a year ago and she had told me that some of her relatives had tried to donate, but they were the wrong blood type. And so I said, "What blood type do you need?" She said, "O" and I said, "I'm O," and it just went from there. It's like, "Wow, I could possibly help her."

Photo of Toby Appel Ms. APPEL: I was really surprised, and I couldn't believe it at first. I was also very excited about the idea, and I had wanted to make it as easy as possible for her.

LAWTON: New drugs and better surgical techniques are indeed making it easier for non-blood relatives such as Kate to donate a kidney or a piece of their liver or lung for transplant. But it is still major surgery, done under general anesthesia. While the majority of kidney transplants are now done from live donors, most other transplants come from donations taken upon death.

More and more transplant surgeries are taking place each year, but it's still not enough to meet the need. Over 80,000 patients are currently awaiting transplants; about 16 people on the waiting list die every day. And that shortage is expected to increase even more dramatically over the next few years.

The medical community is urgently searching for new ways to stimulate more organ and tissue donation. Many are suggesting it may be time to explore something long considered taboo: financial incentives.

Dr. Frank Riddick chairs the American Medical Association's Council of Ethical and Judicial Affairs. His committee is urging the AMA to endorse a pilot program to study whether modest financial payments would encourage a larger pool of people to donate their organs after death.

Photo of Dr. Frank Riddick Dr. FRANK RIDDICK (American Medical Association): These are organs which will be buried or cremated unless they are transplanted, and we would like to increase the percentage of them that actually get to be transplanted. ... There is an ethical obligation to do everything possible to improve the health of the public and to meet the needs of the patient population.

LAWTON: Since 1984, federal law has banned the buying and selling of organs for transplants. AMA officials acknowledge a congressional waiver would be required for any pilot incentive program. But many observers say an endorsement from the prestigious AMA could convince Congress to give it a try.

Some ethicists fear any introduction of money will turn the entire organ donation process into a commodity transaction.

Photo of Dr. Walter Robinsion Dr. WALTER ROBINSON (Harvard Medical School): I'm concerned by commercializing that exchange you bring that exchange into the kind of usual market exchange that we have in the U.S.

LAWTON: Others worry that financial incentives could go higher and higher, with organs eventually being sold to the highest bidder. Some speculate poor people could be exploited or coerced into selling their organs.

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In many Third World countries, there is already a flourishing black market for organs. Many believe there is a huge potential market here as well. A Rochester, New York man recently took out a classified ad looking for a living kidney donor. Several respondents offered to do it -- for a price.

AMA officials say their proposal is very narrow. It would only be a study, and it would only apply to donations after death.

One possible test case could be a measure passed in Pennsylvania two years ago. Lawmakers approved a plan to give $300 to organ donor families specifically for the funeral expenses of the donors. That measure was never implemented because it was determined to conflict with the federal law.

Photo of transplan surgery Dr. RIDDICK: What we are not doing is advocating any form of an open marketplace for organs. We are not advocating any change in how we allocate the organs.

LAWTON: But it's controversial, even within the AMA. Dr. Walter Robinson of Harvard Medical School is among those who worry that financial incentives may actually lower the number of donations.

Dr. ROBINSON: The experience of the donor families I think would be changed by introducing money into this exchange. It would change it from a gift to a sale. And when there is payment offered, that the importance of altruism -- and the donation -- might actually decrease.

LAWTON: For the past 30 years, the organ donation system has depended solely on altruism -- people voluntarily deciding to become donors, often signing up at their local Department of Motor Vehicles.

Transplant advocates have supported public awareness campaigns to encourage more people to make that choice. One popular event is a 5K Race for Life. Race volunteer Georgette Ruth is a vocal advocate of organ donation. Her 21-year-old son Chad was killed in an accident in 1999. Georgette says she has received much comfort in knowing he helped numerous others through donating his organs and tissue.

Photo of Georgette Ruth GEORGETTE RUTH: My compensation is knowing that he did that and know that he lives on in other people. For me, I wouldn't want any compensation. I have my compensation.

LAWTON: U.S. Secretary of Health and Human Services Tommy Thompson has made organ donation a priority for his department. He's teamed up with Olympic athlete Chris Klug, who won a snowboarding bronze medal just 18 months after his liver transplant. But many say such campaigns just aren't enough. Secretary Thompson says he's keeping an open mind about financial incentives.

Photo of Tommy Thompson TOMMY THOMPSON (U.S. Secretary of Health and Human Services): I think we should look at it. I'm not there yet as a way we should go, but I think it should be studied and reviewed and I'm glad the American medical society is doing it.

LAWTON: Proponents say enough safeguards could be put into place to prevent coercion and exploitation. Dr. Jimmy Light, who performed Toby Appel's transplant surgery, says he would support going beyond the AMA proposal to reward living donors, such as Kate Prager.

Dr. JIMMY LIGHT: I think removing financial disincentives would be the way I would look at it. People have to be fairly well off to be a donor. They miss work. Some people don't have sick time. So not only do the donors have to sacrifice part of themselves, they have to sacrifice economically.

LAWTON: Kate says the idea of compensation or reward would not have made any difference for her.

Ms. PRAGER: Toby's my friend. I had something that she desperately needed and I would give it to her. I mean, that's awesome, to think I have that gift to give somebody.

Ms. APPEL: It's a gift that could never be repaid. It's a wonderful gift of love, and I have never felt this loved.

LAWTON: The question is how that gift can ethically be extended to others. I'm Kim Lawton in Washington.

BOB ABERNETHY: Since their surgeries on May 9th, both Toby and Kate are doing well. Kate, the kidney donor, has already returned to work, part-time. Toby, the recipient plans to go back next week. She told us her entire world has opened up.

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