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COVER STORY:
Medical Ethics
August 23, 2002    Episode no. 551
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LUCKY SEVERSON, guest anchor: Twenty-five years ago there were virtually no courses or training offered in U.S. medical schools on the subject of ethics. Now it's part of almost every curriculum, and hospitals everywhere operate with ethics committees. It has become an important and fundamental part of health care in this country.

Photo of University of Chicago Medical School This is the University of Chicago Hospital, one of the top rated in the country. It's also a teaching hospital, which explains why so many of these worn out, preoccupied faces with doctor smocks look so young, almost too young, it seems, to be saving lives. So, are they mature enough to make decisions laden with such important moral consequences?

SEVERSON: Dr. Mark Siegler is a pioneer in the field of ethics and medicine and the founding director of the University's MacLean Center for Clinical Medical Ethics

Dr. MARK SIEGLER (Founding Director, MacLean Center for Clinical Medical Ethics): If we teach one thing about clinical ethics, it is that the patient is the center of the universe of concern.

SEVERSON: Dr. Lainie Ross is on the ethics faculty.

Dr. LAINIE ROSS (Ethics Faculty, MacLean Center for Clinical Medical Ethics): You can't necessarily train someone to act ethically. What you can train is to think about the ethics involved in their decisions, so they become conscious of it. I think one of the most important things about ethics training is to be aware of your biases, of your own values, so that you realize when you're talking facts, when you're talking values.

SEVERSON: The clinical ethics program here at the University of Chicago Hospital is the first of its kind in the U.S., and a model for medical schools all around the country. What they are trying to do here is integrate ethics and medicine, so the doctor is prepared to treat the patient, not just the disease.

Photo of Dr. Eric Weil ERIC WEIL (Student, University of Chicago Hospital): What stuck out the most was a physician who said the thing he had to do when residency was over was relearn how to be humane.

SEVERSON: Eric Weil is a third year student who hopes he can survive the grueling schedule and 100-hour-work-weeks with his humanity intact. Soldrea Roberts and Elizabeth Kieff are in their fourth year.

SOLDREA ROBERTS (Student, University of Chicago Hospital): There are frameworks of ethics in how you think about an issue. But there are also your own morals, your own emotions that are in this. And I think there are times where you have to separate your morals, you have to separate your emotions.

ELIZABETH KIEFF (Student, University of Chicago Hospital); How do you help patients arrive at the best decisions for them when it goes against your own morals? And that's something for which the ethics training we've had has been invaluable.

SEVERSON: All the medical students and the doctors here are taught, counseled, tutored and constantly reminded that medicine is more than science. Dr. David Rubin.

Photo of Dr. David Rubin Dr. DAVID RUBIN (Faculty member, MacLean Center for Clinical Medical Ethics): I think that very often ethics is struggling to keep up with the advancements of science. What we've tried to do here is reverse that by saying, "Before the science goes any further, let's take a step back and look at where the ethical issues are."

SEVERSON: Consider the ethical issues that have not been confronted before, like genetic testing. With some diseases, knowing you're going to get it, when there is nothing you can do about it, only prolongs the agony.

This panel is considering a new test for Crohn's disease which could tell whether an individual has a gene that makes him or her susceptible to Crohn's. Susceptible, but not certain that they'll get the painful digestive tract disease.

Dr. RUBIN: What will happen, if they know they have a susceptibility gene, to their quality of life? Every time they sneeze do they think they have developed Crohn's disease now? Do they think that perhaps it would be be harder to get married or have children? Do they fear insurance discrimination?

Photo of Dr. Ross Dr. ROSS: It's about using technology. It's about withholding technology -- it's one of the big ones. It's about the death and dying process and how families deal with that. It's about ambiguity and uncertainty.

SEVERSON: It's about the patient in intensive care, with a terminal illness who has lost three limbs so far because of a degenerative cardiovascular condition. Should the doctor advise the family to remove life support?

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Dr. ROSS: We've come to realize that these aren't objective decisions. These aren't decisions that only doctors can make. They need to be made in consultation with the family. There's a lot of values in what type of life you want for yourself and for your family members.

SEVERSON: It's also about religion, which is often the unspoken but prevailing influence in life and death decisions.

Photo of Elizabeth Kieff Ms. KIEFF: We have been taught to pay attention to the patient's religious beliefs. I have participated in prayer circles, and made sure to get pastors, ministers, or rabbis to patient's bedsides -- because for them the religious component of their ethics or their decision making is really fundamental.

SEVERSON: And, oh yes, it's also about money and insurance -- perhaps not so much a factor here because it's a teaching hospital -- but always a factor.

Mr. WEIL: It comes up everyday. What kind of insurance does this person have? What can we afford to do for these kids? It's just the most frustrating aspect I've seen so far.

SEVERSON: Sometimes all the money in the world can't save babies born at 23 weeks, weighing less than a pound. And for some, even if doctors can keep them alive, will it be a life worth living?

Photo of Dr. Jeremy Marks Dr. JEREMY MARKS (Founding Director, MacLean Center for Clinical Medical Ethics): The kids look normal. They look very small, but they look normal. And, they are on the ventilator but they look pink. And to tell a mother that there is a very bad bleed in the brain or the lungs -- that despite our maximum therapy, this baby won't do well -- is very difficult.

SEVERSON: But it's the end of life issues that haunt doctors and medical students more than any other.

Ms. ROBERTS: There have definitely been times where I have cried with patients and cried with their families about their prognosis and the fact that they are going to die.

Photo of Tracy Koogler Dr. TRACY KOOGLER (Founding Director, MacLean Center for Clinical Medical Ethics): She told the children that she did not want any heroic efforts taken to keep her alive.

SEVERSON: It's difficult enough when everyone agrees on a course of action for the patient. But often, as with this elderly woman with third degree burns, the family can't agree, and Dr. Tracy Koogler is in the middle.

Dr. KOOGLER: She has five children who all love her and come to see her on a regular basis. They have some very different feelings, which is pretty common for a large family. There's one family member who happens to be a nurse who is quite concerned that maybe we are being too aggressive. However, there is another family member who happens to be a fireman, who believes that his mother is going to get better and things are going to work out.

SEVERSON: In the beginning, Dr. Koogler wasn't sure if the patient would survive. Now she thinks she will survive, but with a lesser quality of life. The process has been painful for everyone.

Photo of critical patient Mr. WEIL: We don't always have to use every single technique we have before we start thinking, "How is this going to affect this person's long term life, their enjoyment of life, and their relationships?" So, thus far, I have not felt like any of my humanity has decreased. It has probably increased with some of these encounters with patients.

SEVERSON: They can learn humane medicine, and apply it, but it never seems to get any easier.

Dr. RUBIN: I still lose sleep over decisions we make and over the amazing human frailties and tragedies that we face. I think this is probably one of the most wonderful professions in the world, but it takes its toll. It can be very difficult to be involved in this level of intimacy with patients and their families.

SEVERSON: The good news is 90 percent of medical schools now teach ethics in one form or another. It doesn't relieve pain or stop the dying process, but it does lend some dignity to it.

Informed consent, patient confidentiality, and medical research are other areas where medical ethics play a vital role.

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