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American Association for the Advancement of Science
The American Association for the Advancement of Science (AAAS) is the world's largest general science organization and publisher of the peer-reviewed journal Science. With more than 134,000 members and 272 affiliated societies, AAAS serves as an authoritative source for information on the latest developments in science and bridges gaps among scientists, policy-makers and the public to advance science and science education.

Founded in Philadelphia in 1848, AAAS is among the oldest societies in America. Many of today's most prestigious and influential scientific societies have their historical origins in AAAS. Anyone may join AAAS simply by paying membership dues. A membership guarantees a subscription to Science.

AAAS seeks to "advance science and innovation throughout the world for the benefit of all people." To fulfill this mission, the AAAS Board has set the following broad goals:

  • Foster Communication Among Scientists, Engineers and the Public
  • Enhance International Cooperation in Science and Its Applications
  • Promote the Responsible Conduct and Use of Science and Technology
  • Foster Education in Science and Technology for Everyone
  • Enhance the Science and Technology Workforce and Infrastructure
  • Increase Public Understanding and Appreciation of Science and Technology and
  • Strengthen Support for the Science and Technology Enterprise
Web site: http://www.aaas.org/

American Health Decisions
American Health Decisions, a non-profit organization, is a national coalition of citizens' groups focused on ethical issues in health care. Local activities help people understand health care choices, articulate the values that shape them, and participate in the health policy process. Founded in 1987, American Health Decisions includes 12 affiliated organizations in eight states and interested individuals throughout the country. Member organizations sponsor community meetings, local study groups, educational programs, and public opinion research projects. These activities empower citizens to play an active role personal decisions and in shaping health policy. The national office of American Health Decisions is located at The Hastings Center in Garrison, New York.
Web site: http://www.AHD.org
Email: AHD@thehastingscenter.org

American Museum of Natural History
Founded in 1869, the American Museum of Natural History is one of the world's preeminent institutions of scientific research and education.

Today, under the direction of President Ellen V. Futter, the Museum's scientific, education, and exhibition staff are working to discover, interpret, and disseminate knowledge and human cultures, the natural world, and the universe. Prepared for the challenges of 21st century society, the Museum is committed not only to making contributions to science, but to improving science education and enhancing science literacy nationwide.
Web site: http://www.amnh.org

The College Board
The College Board is a national nonprofit membership association whose mission is to prepare, inspire, and connect students to college and opportunity. Founded in 1900, the association is composed of more than 4,200 schools, colleges, universities, and other educationalorganizations. Each year, the College Board serves over three million students and their parents, 22,000 high schools, and 3,500 colleges through major programs and services in college admissions, guidance,assessment, financial aid, enrollment, and teaching and learning. Among its best-known programs are the SAT®, the PSAT/NMSQT®, and the Advanced Placement Program® (AP®). The College Board is committed to the principles of excellence and equity, and that commitment is embodied in all of its programs, services, activities, and concerns.
Web site: http://www.collegeboard.com

Columbia Scholastic Press Association
The Columbia Scholastic Press Association helps student journalists to educate their peers about emerging issues such as chronic care, within their school and community. By helping these readers and viewers make sense out of conflicting information, student reporters and editors bring to light how issues from afar affect them. The CSPA is an educational press organization providing services to student newspapers, magazines and yearbooks at 2,000 schools and colleges. CSPA's services include written evaluations of individual student publications, award competitions, and journalism conferences and workshops.
Web site: http://www.columbia.edu/cu/cspa/index.html

Communities of Color & Genetics Policy Project
The Communities of Color & Genetics Policy Project was conducted by a consortium of three universities: University of Michigan, Michigan State University, and Tuskegee University. The project developed a process for engaging communities of color of diverse socio-economic levels in dialogues relating to genome research and its resulting technology, and from these dialogues developed recommendations for laws, professional standards and institutional policies regarding the use and application of genome research and technology. Recommendations were shared with government officials at the State and Federal levels and are being disseminated at professional conferences and in publications.
Web site: http://www.sph.umich.edu/genpolicy

Council for Responsible Genetics
The Council for Responsible Genetics fosters public debate about the social, ethical and environmental implications of genetic technologies. Founded in 1983, CRG is a non-profit, non-governmental organization based in Cambridge, Massachusetts. CRG works through the media and concerned citizens to distribute accurate information and represent the public interest on emerging issues in biotechnology. CRG also publishes a bimonthly magazine, GeneWatch, the only publication of its kind in the nation.
Web site: http://www.gene-watch.org

Fresh Angles
What commenced as Teenvoice.com has recently evolved into FreshAngles.com-a fresh approach to the same simple idea-articles written for teens. Their goal is to serve as a voice for teens both nationally and internationally via the Internet so that a teen with online access will have the power to express his or her views to the entire online community in a dynamic, user-friendly format.
Web site: http://www.freshangles.com/perspectives/genes/

Geneforum is emerging as a leading nonprofit organization promoting dialogue and educating people about genome science and its impact on their lives. In that role, we help the general populace learn more about genetic science and the ethical issues emerging from its application aimed at creating an informed and engaged citizenry with the capacity to help guide the development of public policies for the common good.
Web site: http://www.geneforum.org

Genetic Alliance
The Genetic Alliance is an international coalition representing more than 300 consumer and health professional organizations with millions of members--all working together to promote healthy lives for everyone impacted by genetics. The Alliance supports individuals with genetic conditions and their families, educates the public and advocates for consumer-informed public policies.
Web site: http://www.geneticalliance.org/

The Hastings Center
The Hastings Center addresses fundamental ethical issues in the areas of health, medicine, and the environment as they affect individuals, communities, and societies. With a small staff of senior researchers at the Center and drawing upon an internationally renowned group of over 100 elected Fellows for their expertise, The Hastings Center pursues interdisciplinary research and education that includes both theory and practice. Founded in 1969 by philosopher Daniel Callahan and psychoanalyst Willard Gaylin, The Hastings Center is the oldest independent, nonpartisan, interdisciplinary research institute of its kind in the world. From its earliest days The Hastings Center has understood that the moral problems arising from rapid advances in medicine and biology are set within a broad intellectual and social context. The Center's collaborations with policymakers, in the private as well as the public sphere, assist them in analyzing the ethical dimensions of their work.
Web site: http://www.thehastingscenter.org

International Society of Nurses in Genetics
The Vision of the International Society of Nurses in Genetics, Inc., is "caring for people's genetic health."

The Mission of the International Society of Nurses in Genetics, Inc., is to foster the scientific, professional and personal development of members in the management of genetic information. In service of this mission, the Society's goals include but are not limited to the following:

  • Provide a forum to promote the integration of the nursing process into the delivery of genetic health care services.
  • Encourage the incorporation of principles of human genetics at all levels of nursing education.
  • Promote the utilization of standards of practice for nurses providing genetic health care services.
  • Advance nursing research in human genetics.
  • Provide a forum for dialogue with other members of the nursing, genetics, and lay communities.
  • Promote the incorporation of genetics into health care for all persons, which includes addressing the associated ethical, legal, societal and personal issues.
  • Provide a forum for continuing education of its members.
Web site: http://nursing1.creighton.edu/isong

March of Dimes
The March of Dimes is a national voluntary health agency whose mission is to improve the health of babies by preventing birth defects and infant mortality. Founded in 1938, the March of Dimes funds programs of research, community services, education, and advocacy to save babies. For more information, visit the March of Dimes Web site at www.modimes.org or the Spanish Web site at www.nacersano.org, or call 1-888-MODIMES.
Web site: http://www.modimes.org

Midwest Bioethics Center
Midwest Bioethics Center is a freestanding bioethics center founded around the vision of a society in which the dignity and health of all people is advanced through ethical discourse and action. Our mission is to raise and respond to ethical issues in health and health care.
Web site: http://www.midbio.org

National Association of Women Judges
The National Association of Women Judges provides strong, committed judicial leadership to ensure fairness and gender equality in American courts. Through effective judicial education and interaction, we promote equal access to justice for vulnerable populations. We also offer professional and personal support to enable our members to achieve their full potential on the bench.
Web site: http://www.nawj.org/

National Coalition for Health Professional Education in Genetics
Our mission is to promote health professional education and access to information about advances in human genetics, to improve the health care of the nation.
Web site: http://www.nchpeg.org

National Conference of State Legislatures
The National Conference of State Legislatures serves the legislators and staffs of the nation's 50 states, its commonwealths, and territories. NCSL is a bipartisan organization with three objectives:

  • To improve the quality and effectiveness of state legislatures,
  • To foster interstate communication and cooperation,
  • To ensure states a strong cohesive voice in the federal system.
The Conference operates from offices in Denver, Colorado, and Washington, D.C.
NCSL Main Web site: http://www.ncsl.org
NCSL Genetic Technologies Project Web site: http://www.ncsl.org/programs/health/genetics.htm

National Human Genome Research Institute
The National Human Genome Research Institute (NHGRI) leads the National Institutes of Health's (NIH) contribution to the International Human Genome Project, which has as its primary goal the sequencing of the human genome. As this project nears successful completion, the NHGRI's mission has expanded to encompass a broad range of studies aimed at understanding the structure and function of the human genome and its role in health and disease.

To that end NHGRI supports the development of resources and technology that will accelerate genome research and its application to human health. A critical part of the NHGRI mission continues to be the study of the ethical, legal and social implications (ELSI) of genome research. NHGRI also supports the training of investigators and the dissemination of genome information to the public and to health professionals.
Web site: http://www.genome.org/
Web site: http://www.ornl.gov/hgmis

National Society of Genetic Counselors
The Society's Vision: to be the leading voice, authority and advocate for the genetic counseling profession. The Society's Mission: to promote the genetic counseling profession as a recognized and integral part of health care delivery, education, research and public policy. The Society promotes the professional interests of genetic counselors and provides a network for professional communications. Local and national continuing education opportunities and the discussion of all issues relevant to human genetics and the genetic counseling profession are an integral part of belonging to the NSGC.
Web site: http://www.nsgc.org/

National Video Resources
National Video Resources (NVR) is a not-for-profit organization established in 1990 by the Rockefeller Foundation. Our mission is to increase the public's awareness of and access to independently produced film and video. NVR designs and implements projects that enable individuals and organizations such as public libraries, colleges and universities, and other non-profits to acquire and use independent film and video. NVR also publishes curated catalogs of videos around specific themes, and provides video curation services to organizations.

NVR is using part one of Our Genes/Our Choices in a national film viewing and discussion program entitled "The Research Revolution: Science and the Shaping of Modern Life." The program will be presented in 100 libraries across the country beginning in January, 2003. For more information, please contact NVR at nvrinfo@nvr.org
Web site: http://www.nvr.org/

Project Vote Smart
Project Vote Smart is a 501(c) (3) national research library that gathers and disseminates factual information on more than 40,000 incumbents and candidates for president, U.S. House and Senate, governors, state legislatures, and county and local offices. Information such as voting records, campaign contributions, backgrounds, contact information, issue positions, and ratings by competing special interests is available through the toll-free Voter's Research Hotline (1-888-VOTE SMART), the Vote Smart Web site (www.vote-smart.org), and in free printed publications. The Project was founded by 40 national leaders such as George McGovern and Barry Goldwater, Bill Frenzel and Geraldine Ferraro, is funded entirely by foundation grants and the contributions of more than 45,000 individual members, and is operated through the efforts of hundreds of student interns and volunteers of all ages.
Web site: www.vote-smart.org

Sarah Lawrence College-Human Genetics Graduate Program
Sarah Lawrence is a small coeducational liberal arts college, offering undergraduate as well as graduate degrees, and is nationally renowned for its rigorous academic standards. In 1969, Sarah Lawrence College established the first program in human genetics in the United States. It remains the largest program of its kind in the country and has trained half of the nation's genetic counselors, including the directors of many other human genetics programs in the United States and Canada. Sarah Lawrence alumni also serve as the sole genetic counselors in several nations of South and Central America, Europe, and the South Pacific. The program strives to identify and train future genetic counselors who diversify the professional community and represent minority populations.

Web site: www.slc.edu/human_genetics/

Woodrow Wilson National Fellowship Foundation - Leadership Program for Teachers
Founded in 1945, the Woodrow Wilson National Fellowship Foundation is dedicated to the encouragement of excellence in education through the identification of critical needs and the development of effective national programs to address them. The Foundation's three broad areas of concern are: A Liberal Arts Renaissance, Access and Opportunity, and Partnerships for Learning. Its programs include fellowships for graduate study, professional development for teachers, educational opportunities for women and minorities, relating the academy to society, and national service. Through its programs, the Foundation seeks to encourage a new generation of leaders.
Web site: http://www.woodrow.org

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