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BLOODLINES
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A list of many web links related to BLOODLINES.

Bioethics

The Center for Bioethics at the University of Pennsylvania

The Stanford Center for Biomedical Ethics

American Journal of Bioethics

Ethical, Legal and Social Implications Research Program

Human Genome Project Information: Ethics

The Institute for Science, Law & Technology, Illinois Institute of Technology

Information Sources for Bioethics
Extensive list of related web sites

Institute for Bioethics, Health Policy and Law at the University of Louisville

Kennedy Institute of Ethics at Georgetown University

Institute of Public Health Genetics at University of Washington

American Journal of Bioethics Knowledge Tools
Links to legal issues, government policies, ethics guidelines and general genetics information

The National Reference Center for Bioethics Literature

Cloning

Human Cloning Timeline

The History of Cloning, a timeline from Dartmouth University

Detailed timeline about cloning advances in 1999, from AgBiotechNet

National Conference of State Legislatures
Links to resources about cloning legislature and activities

Cloning Fact Sheet, from Doegenomes.org

The President's Council on Bioethics

Consumer Information and Disease Groups

Genetic Alliance
Network and advocacy for patient groups

The Huntington's Disease Society of America

Alpha1 Association

MedicineNet.com
Includes directory of groups

Educational Materials

The Human Genome Project
Online multimedia kit, including interactive timeline

DNA Learning Center

Human Genome Project Genomic Primers

American Association for the Advancement of Science
Bioethics material

Center for Bioethics at the University of Minnesota
Reading packets on important issues, including stem cells, organ transplantation and genetic testing

Access Excellence
Education site developed by Genentech

Backbone Media, "A Question of Genes" (two-hour PBS special about genetic testing)
Includes discussion guide

Center for Genetics and Society

High School Bioethics Resources at the University of Pennsylvania Center for Bioethics

"Your Genes, Your Choices" (online book)
Describes the Human Genome Project, the science behind it and the ethical, legal and social issues it raises

Federal Agencies and Programs

National Human Genome Research Institute

Food and Drug Administration (FDA)

Human Genome Project

The President's Council on Bioethics

National Bioethics Advisory Committee
Web site of the federal commission set up to make recommendations to the president (now disbanded and replaced)

Office of Genomics and Disease Prevention at Centers of Disease Control

U.S. Patent and Trademark Office

Health Resources and Services Administration

National Center for Biotechnology Information

Office of Rare Diseases

Online Mendelian Inheritance in Man

Cancer Genome Anatomy Project
Many links to detailed genetic and sequencing information

Genetics

National Human Genome Research Institute

National Conference of State Legislatures: Genetics Technologies Homepage

Kansas University Medical Center
Links to genetics information

Pew Charitable Trusts Genetics and Public Policy Center

March of Dimes
Information about birth defects

National Coalition for Health Professional Education in Genetics

National Organization for Rare Disorders

National Newborn Screening and Genetics Resource Center

Orchid BioSciences

GeneTests

GeneSage

Foundation for Genetic Medicine

Recombinant DNA Advisory Committee (RAC)
About the RAC and gene transfer

The Genetic Science Learning Center at the University of Utah

The Recombinant DNA Advisory Committee, National Institutes of Health, Department of Health and Human Services
Gene therapy for human patients: information for the general public

The Foundation for Genetic Education and Counseling

Glossaries

Human Genome Project Glossary Page

Public Policy Genetics Glossary (sponsored by national conference of state legislatures)

Foundation for Genetic Medicine Glossary

Industry

Biotechnology Industry Organization
Biotechnology industry statistics

Celera Genomics
Biotechnology discovery company

Pharmaceuticals Research & Manufacturers of America

Legislation, Codes and Court Cases

The Scopes "Monkey" Trial
From the University of Missouri-Kansas City School of Law

The National Conference of State Legislatures

Government, Politics and Law
Links to state laws, court decisions and federal legislation

Genomics Legislation and Regulation

Clinical Laboratory Improvement Amendments of 1988: A Summary, from the CDC

The Nuremberg Code

Newsletters/News Sources

Human Genetics Alert
An independent watchdog group on genetic research

Bioethics.net
The American Journal of Bioethics, offering weekly news updates

Progress Educational Trust
Promotes the benefits of reproductive and genetic science; also publishes BioNews, a weekly newsletter on assisted reproduction and genetics

Center for Bioethics at the University of Minnesota

Genes in the News
Daily headlines compiled by the Cold Spring Harbor Laboratory

Genetic Engineering News

Center for Genetics and Society
Works to inform the public about and encourage societal governance of reproductive and genetic technologies.

Council for Responsible Genetics
Covers ethical, social and environmental issues in new biotechnologies; also publishes GeneWatch monthly.

Genetics and Disease Prevention Genomics Weekly Update
Weekly update from the CDC about the impact of human genetic research on disease prevention and public health

KaiserNetwork.org
Health policy and resources

Yahoo News, science coverage

Patents

U.S. Patent and Trademark Office

Plant Patent Act
Summary from the Institute of Public Law

webpatent.com

Who Owns Life?
From the Center for Bioethics at the University of Pennsylvania

Canada Rejects Patents on Higher Life Forms, from Institute of Science and Sustainability
Article about initial ruling against the patentability of the Harvard Mouse, which was genetically altered to develop cancer.

Professional Societies and Organizations

American College of Medical Genetics

The Association of Professors of Medical Genetics

Genetics Society of America

American Society of Human Genetics

American Board of Medical Genetics

National Society for Genetic Counselors

Children's Hospital of Cincinnati Genetics Program for Nursing Faculty

International Society of Nurses in Genetics

American Medical Association

Reproductive Technology and Rights

RESOLVE The National Infertility Organization

American Society for Reproductive Medicine
Includes ethics literature and research reports

American Life League
Includes pro-life organization's positions on stem cells and links to other organizations' statements on the topic

Religious Coalition for Reproductive Choice
Comprises national Christian, Jewish and other religious organizations; includes positions on biotechnologies

National Center for Lesbian Rights

The Organization of Parents Through Surrogacy
A membership and lobbying organization; includes updated list of the laws and bills regarding surrogacy in each state

Conceptive Technologies Chronology, from the Center for the History of Science, Technology and Medicine

In Vitro Fertilization, a History, from ReproMed, the Center for Reproductive Medicine, Bristol

Treating Infertility with IVF, From TimelineScience

History of reproductive issues during the 1960s, from Planned Parenthood Federation of America

Legal Overview of Surrogacy Laws by State

Stem Cells

National Academy of Sciences

American Association for the Advancement of Science

The National Institutes of Health: Stem cell information

Lasker Foundation: Stem cell research history

Clearlyexplained.com
Stem cell history and explanation

Coalition for the Advancement of Medical Research
Embryonic stem cell research

Traditional Values Coalition
A group that objects to stem cell research

National Conference of Catholic Bishops
Web site that aims to express the concerns of the Catholic community

Surveys/Public Opinion

U.S. Residents 'Hopeful, Fearful' About Reproductive Genetic Technologies

Attitudes about Reproductive Genetics

Timelines (not on sites mentioned elsewhere)

GE Free New Zealand in Food and Environment
Key events in the evolution of biotechnology

Biotech Timeline, from The North Carolina Biotechnology Center

Biotechnology Timeline, from Biochip Technologies

A Timeline of Biotechnology, from Biotechnology Industry Organization

Highlights of the biotechnology revolution, 1953-present

Xenotransplantation

Xenotransplantation on the Web

WGBH Frontline
A Frontline report on xenotransplantation

Timelinescience, student resources Organ Transplants Timeline

Secretary's Advisory Committee on Xenotransplantation

Campaign for Responsible Transplantation



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