ALMOST HOME

Nursing Home Reform

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The Film

Filmmakers’ Web Site: ALMOST HOME
The filmmakers’ Web site for ALMOST HOME includes information on how to purchase the DVD, nursing home reform, a glossary of terms, articles on culture change, Web links, research reports and other key resources.

Saint John’s On The Lake
Learn more about the retirement community featured in ALMOST HOME at the community’s official Web site. Explore the amenities and services offered to residents, view images of culture change in action and read a history of the 135-year-old facility.

NPR: PBS Documents Bid to Build a Better Nursing Home
Read and listen to a February 19, 2006 All Things Considered story about ALMOST HOME and the social model of nursing home care practiced at Saint Johnıs on the Lake.

Nursing Home Reform

National Citizens’ Coalition for Nursing Home Reform (NCCNHR)
Consumers, residents and their advocates make up this group that for thirty years has been working to achieve quality for residents in long term care facilities. Get fact sheets on issues facing advocates, families, caregivers and analysts, government policy updates and more.

American Association of Retired Persons (AARP): Housing Choices
The leading nonprofit, nonpartisan membership organization for people age 50 and over in the U.S., AARP offers information and advocates on issues affecting seniors. This section of their expansive site offers articles on nursing homes and nursing home reform, assisted living and other housing options and links to more information for seniors and caregivers.

Seniorresource.com: Aging in Place
Peruse this senior-focused E-zine to learn about the Aging in Place model of elder care and NORC, or Naturally Occurring Retirement Community. The site includes pointers for hiring personal help and remodeling your home and links to additional resources.

Direct Care Alliance
Find information on key issues including inadequate wages and benefits, poor supervision and job quality at this New York-based organization founded to improve working conditions and wages for direct-care paraprofessionals.

The Eden Alternative
The online home of the Eden Alternative culture change model provides online tools for culture change activists, national listings for Eden homes and employment for those trained in the method.

The Pioneer Network
Find an overview and history of the culture change movement, get resources for practitioners and consumers and read the Pioneer Exchange Weblog, an ongoing news source for researchers, practitioners and culture change activists.

Long Term Care Living.com: Glossary of Terms
Explore this glossary, which outlines common terms of the sometimes-confusing language of senior care. The glossary is part of a larger consumer-oriented site from the American Health Care Association and the National Center for Assisted Living.

Senior Care

Helpguide: Elder Care
Explore the world of elder care on this health and wellness Web site from the Santa Monica Rotary Club. Find descriptions of available services and care options, financial planning tools, caregiver support networks and explanations of common medical conditions. This site also includes factoids on aging in America.

Help Starts Here: Seniors and Aging
Scan this site by social workers specializing in geriatrics to find advice on advanced care planning, news and information on Alzheimer’s disease and Dementia and residential long-term care options.

The National Center for Assisted Living (NCAL)
Get consumer information on assisted living from NCAL, part of the American Health Care Association (AHCA), the country’s largest organization representing long-term care. The site includes training and education materials and links to Web sites for seniors.

PBS: Online Newshour: Today’s Nursing Homes
Visit this comprehensive site on nursing homes, which includes a history of the nursing home from the early 1900s to the ‘90s and a list of nursing home facts. Take a virtual tour of the nursing homes of yesterday, today and tomorrow and find resources on how to choose a nursing home.

The New York Times: The Long-Term Care Conundrum
Find out why Americans are being forced to reckon with barriers to affordable long-term care—including a graying population and Medicaid’s fiscal woes in this December 19, 2005 editorial. (Fee required.)

PBS: & Thou Shalt Honor
Learn more about issues facing those who care for the ill and the aging. This companion Web site for a 2005 PBS caregiver outreach campaign offers audio and video clips of Washington lawmakers on Medicaid and Medicare reform, universal healthcare and long-term care insurance and interviews with caregivers and those who need care. Use the “Follow that Bill” feature to track current caregiver-friendly Congressional bills.

Books

Consumer Reports Complete Guide to Health Services for Seniors: What Your Family Needs to Know About Finding and Financing, Medicare, Assisted Living, Nursing Homes, Home Care, Adult Day Care
by Trudy Lieberman, Consumer Reports Editors

(Three Rivers Press; 1st edition, 2000)
A practical, hands-on guide to senior care options that offers help finding the right care at the lowest cost by Consumer Reports, the nonprofit consumer protection organization.

Nobody's Home: Candid Reflections of a Nursing Home Aide
By Thomas Edward Gass

(ILR Press, 2005)
A firsthand account of the reality of nursing home life by Thomas Gass, a social activist who worked as a poorly paid aide in a long-term care facility in the Midwest.

Life Worth Living: How Someone You Love Can Still Enjoy Life in a Nursing Home—The Eden Alternative in Action
by Doctor William H. Thomas

(Vanderwyk & Burnham, 1996)
Dr. Thomas, a nursing home medical director in upstate New York and creator of the Eden Alternative model of nursing home reform chronicles one facility’s journey to culture change.

Sources

The following served as information sources for sections of the ALMOST HOME web site:

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