Shari Tritt’s generalized dystonia is a genetic form that affects her whole body. As a child, Shari underwent radical brain surgery that improved her dystonia but left her unable to speak clearly. Undaunted, as an adult she took to the Internet, and in a chat room one day she met Ira, who became her husband. Shari has now been living with dystonia for over 30 years. She and Ira live in Hollywood, Florida.
Tell us how you are doing—have there been any changes in your life or health since the filming?
We have added a new dog to our family after Ira dragged me to the Humane Society. I took one look at those big brown eyes, and the way he wanted to be petted, and said yes to Ira. His name is Rocky. He’s a gentle soul. Our health is fine. No major health problems.
What was it like to be a subject of this film?
Very nerve racking when the camera is always in your face, and Andy says, “Don’t look in the camera….” Where am I supposed to look? All in all we had fun doing the movie. I would love to see what was left on the cutting room floor. We have so many good memories.
What are your plans for the future?
We make no plans for the future when we live for today. However, we hope to go on many trips all over the world. Experience life in other cultures.
What impact would you like this film to have?
I would like the world to know what dystonia is, including doctors. People with dystonia, I feel, are not living their lives to the fullest. They are hiding from the world. Thanks to my parents, I am out there having the time of my life with Ira!
Eventually, I hope that researchers will find a cure for dystonia.
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