BLOODLINES
Technology Hits HomeMaking PrecedentMapping the FutureTimelineFact or FictionTalk BackResources
Can you pick your children?
Your final case arguments: Read on and rule again Arrow pointing down.

You have educated yourself about the range of testable genetic disorders, and your decision to select the sex of your child came after serious thought, especially about the impact and suffering DMD would have on your child. Since you have decided to do prenatal genetic diagnosis, you have the choice to test for other diseases as well. Given the pain you have been through trying to conceive and your very real knowledge of what a genetic disease can do, are you tempted to screen your embryos for other genetic defects?

Where should you draw the line on what traits to screen for? For only fatal diseases? For late-onset disorders like Alzheimer's? For diseases that are possible but unlikely? For obesity or nearsightedness?

It is now possible to determine the gender of an embryo before it is transferred to your womb. Should you be allowed to direct your doctor to select embryos on the basis of their sex?
 Yes  No
Yes, and I changed my mind No, and I changed my mind
Yes, and I did not change my mind No, and I did not change my mind
Page 5 of 6
Context

There are currently 1,075 clinics and 563 laboratories that can test for 944 diseases worldwide. In February and March of 2003 alone, tests for 11 new diseases were added to a web site that tracks genetic testing. Surprisingly, there are very few laws regulating embryo screening (or pre-implantation genetic diagnosis, PGD). Only a few states have laws that address PGD, and a federal court ruled in the Lifchez case that procedures designed to assist in making reproductive decisions are legal.

Case

In 2000, an American couple decided to have a second child and used prenatal genetic diagnosis to select an embryo that was not only free of a defective gene but could also serve as a bone marrow donor for their first child. This second child was to donate bone marrow to the couple's six-year-old daughter, Molly, who suffered from Fanconi anemia, a disease that leads to bone marrow failure. For the donation to be successful, the couple chose to perform PGD to see which of the embryos they had created would be free of the affected gene and could provide a tissue match for Molly. In the end, Molly received cells from her brother Adam, who was conceived using PGD and IVF. As of 2001, Molly was recovering from her illness better than doctors had expected.

Look Deeper

Critics of unregulated prenatal testing and selection worry that prenatal selection is the beginning of a dangerous path. There are a number of issues: the potential for a consumer approach to childbearing (evident in requests by couples undergoing IVF for a child of a certain sex to "balance the family"); the unrealistic and potentially undermining expectations brought to the life of a carefully "selected" child; and the specter of a private eugenics in which some will have the ability and incentive to select certain kinds of children, while others will not.

PGD, IVF and other reproductive technologies significantly extend reproductive choice, both in the creation of children and the selection of traits within those children, potentially setting the stage for eugenic practices as well as economic inequalities. At the same time, people who conceive without the help of technology are at liberty to have babies for whatever reason they want, including to "catch" a man, fill the void created by the death of a child or to act as caregivers when the parents reach old age. Is this fair? Perhaps more than ever before we are confronted with the questions: What kind of children should there be and who should be allowed to have them? Can you decide?


Can you pick your children?
Watch a clip
"How should the next generation come into the world?"
TV View | Read
Did you know?
A survey by the Pew Charitable Trusts in October 2002 found that two-thirds of respondents approved of using reproductive genetic testing to help parents have a baby free of serious genetic disease, but 70% disapproved of using the same technologies to identify or select for traits such as intelligence or strength. A different poll by USA TODAY/CNN/Gallup Poll showed that "88% of people oppose allowing parents to select the genetic traits of their children."