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The Boy in the Bubble
Further Reading

Web Sites | Books and Articles


National Human Genome Research Institute: Learning about Severe Combined Immunodeficiency
http://www.genome.gov/13014325
This site from the National Institutes of Health provides basic information about SCID, with links to recent research studies.

History Wired: Mobile Suit
http://historywired.si.edu/object.cfm?ID=3
Explore the Smithsonian Institution's online presentation of the mobile isolation suit NASA made for David Vetter.

The University of Pennsylvania Center for Bioethics
http://www.bioethics.upenn.edu/
This academic center presents many resources for learning about current bioethics issues. Of particular interest is the High School Bioethics Project, which presents a brief history of bioethics, information on gene therapy and genetically modified organisms, and a number of ethics cases under the heading "clinical briefs," including questions on prescription drugs, do not resuscitate orders, reproductive ethics, and more.


Web Sites | Books and Articles


Baxter, Ernie. "My Untouchable Baby." Ladies Home Journal, March 1973: 82-161.

Callahan, Daniel. The Tyranny of Survival and Other Pathologies of Civilized Life. New York: Macmillan, 1973.

Demaret, Kent, and "David's mother." "David's Story." (2 parts), People Weekly, October 29, 1984, and November 5, 1984.

Freedman, D. A., Montgomery, J. R., Wilson, R., Bealmear, P. M., South, M. A. "Further Observations on the Effect of Reverse Isolation from Birth on Cognitive and Affective Development." Journal of the American Academy of Child Psychiatry, 15(4):593-603, 1976.

Gordon, Cathy. "Spirit of Boy in Bubble Lives on at School." Houston Chronicle, April 27, 1998.

Hamilton, Allan J. "Who Shall Live and Who Shall Die." Newsweek, March 26, 1984: 15.

Jaroff, Leon. "Brave New Babies: Using Gene Therapy to Treat Severe Combined Immunodeficiency in Newborn Infants." Time, May 31, 1993.

Lawrence, R. J. "David the 'Bubble Boy' and the Boundaries of the Human." Journal of the American Medical Association, January 1985; 253: 74-76.

Malinak, L. R., Wilson, R., South, M. A., Montgomery, J. R., Mumford, D. M., Flowers, C. E. Jr. "Germ-Free Delivery. The Initiation of Management of Infants With a High Probability of Congenital Immune Deficiency States." American Journal of Obstetrics & Gynecology, 116(2):201-4, May 15, 1973.

Rennie, D. "'Bubble Boy.'" Journal of the American Medical Association, January 1985; 253: 78-80.

Schmeck, Jr., Harold M. "Hereditary Disease: New Therapies Are Closer." The New York Times, January 28, 1986.

Silberner, Joanne. "Establishing a Link." Science News, June, 1, 1985.

Simmons, K. "'Bubble Boy' Reacts Well to Marrow Transplant." Journal of the American Medical Association, Nov 1983; 250: 2751.

----. "Physicians Continue to Study Cause(s) of 'Bubble' Boy's Death." Journal of the American Medical Association, Apr 1984; 251: 1929-1931.

Sullivan, Joseph. "Wider Issues Raised in Girl-in-Coma Suit." The New York Times, September 23, 1975: 79.

Vaux, Kenneth L. "Seeing Hope in a Bubble Boy." Chicago Tribune, March 9, 1984.

Williamson, Alice P., ed. "A Special Report: Four-year Study of a Boy with Combined Immune Deficiency Maintained in Strict Reverse Isolation From Birth." Pediatric Research, January 1977.

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