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I'm sitting here watching

I'm sitting here watching your show on caregivers. It seemed to focus only on atheimers. These caregivers,, although they don't know when, there is light at the end of the tunnel. The forgotten are younger caregivers of Mulitply disabled children. I took care of my daughter, who couldn't walk talk or see.. She came home from the hospital after 3 weeks in the NICU unit with a G-tube. After 6 weeks I had her drinking from a bottle. My Ex couldn't deal with the sorrow. I fed her every meal she ever ate. By the time she passed away at the age of six, from a seizure in her sleep, she was eating chicken nuggets. There are parents of similar children who outlive their parents, and their whole lives are spent caregiving. You might say I was lucky, but it is such a mixture of feelings. Please don't forget the forgotten caregivers.


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