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For a list of resources on caregiving, go to Second Opinion, Caregiver Burnout (Episode 507)
For a list of resources on end-of-life planning, go to Second Opinion, End of Life (Episode 313)
For more information about Alzheimer's Disease, use the links below:
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Alzheimer's Association |
The Alzheimer's Association is a national U.S. non-profit organization providing support to families and caregivers. Their extensive web site includes basic information on Alzheimer's and resources for patients and caregivers, including a list of local Alzheimer's Association chapters which give information on care services, and links to online chat and support groups. The site also provides an overview of current research. Contact its 24/7 Helpline at 800-272-3900 for more information, referral, and support. |
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Alzheimer's Disease Education and Referral Center |
The ADEAR Center is a service of the National Institute on Aging (NIA). Their web site provides a toll free phone number and an email address for access to experts who can answer questions about Alzheimer's. On-line publications include updates on current NIA research, Alzheimer's fact sheets and extensive yearly progress reports on the state of Alzheimer's research. The site also includes a searchable bibliographic database of more than 5,000 abstracts of books and journal articles on Alzheimer's and a searchable database of clinical drug trials. |
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Alzheimer's Disease International |
ADI is the umbrella organization of Alzheimer associations around the world. The site includes information on the disease, how to find help and resources for caregivers. |
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Alzheimer's Research Forum |
The Alzheimer's Research Forum is a non-profit organization that promotes collaboration among Alzheimer's disease researchers. Though primarily directed towards researchers and other professionals working with Alzheimer's, it does include a section for laypersons, which provides abstracts of current research papers, a diagnosis and treatment guide, and links to Alzheimer's news sources, research centers and support groups for caregivers. The section dedicated to physicians includes a series of interviews with top researchers in the field and posts articles for discussion and comment. |
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Eldercare Locator |
Operated by the U.S. Administration on Aging, this is a nationwide directory of state and area agencies that deal with services for the aging. There's also a toll-free number – 1-800-677-1116-which operates Monday though Friday, 9:00 a.m. to 8:00 p.m., Eastern time. |
| Family Caregiver's Alliance |
A public voice for caregivers, FCA provides information, education, services, research and advocacy to support and sustain the important work of families nationwide caring for loved ones with chronic, disabling health conditions. |
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Healthassist |
Healthassist puts the client at the center of every interaction with the healthcare and insurance system. With years of experience on both the direct patient care side and business side of healthcare, Principal Dianne Savastano has the skills to offer consulting, coaching, information and assistance to help empower you to make the best decisions regarding your family's healthcare. |
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The National Family Caregivers Association |
The National Family Caregivers Association educates, supports, empowers and speaks up for the more than 50 million Americans who care for loved ones with a chronic illness or disability or the frailties of old age. NFCA reaches across the boundaries of diagnoses, relationships and life stages to help transform family caregivers' lives by removing barriers to health and well being. |
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National Alliance for Caregiving |
Established in 1996, The National Alliance for Caregiving is a non-profit coalition of national organizations focusing on issues of family caregiving. Alliance members include grassroots organizations, professional associations, service organizations, disease-specific organizations, a government agency, and corporations. |
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