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FOR CAREGIVERS
Caregiver Burnout
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For a list of resources on end-of-life planning, go to Second Opinion, End of Life (Episode 313)

For more information about caregiver burnout, use the links below:

AARP

AARP is a nonprofit, nonpartisan membership organization devoted to people who are 50 or older.  Their web site includes a section on Caring for Those You Care About featuring free online seminars on planning for and managing caregiving. 

Administration on Aging (AOA)

An agency of the U.S. Department of Health and Human Services, AOA is the focal point for older persons and their concerns at the federal level.  The site provides a comprehensive overview of a wide variety of topics, programs and services related to aging as well as links to government, nonprofit, and commercial caregiver Web sites.

AMA (Public Health) Caregiver Self-Assessment Tool

This caregiver self assessment questionnaire is available in English and in Spanish to help caregivers determine how they are coping with the challenges and stresses of giving care to a loved one.

Eldercare Locator

Operated by the U.S. Administration on Aging, this is a nationwide directory of state and area agencies that deal with services for the aging. There's also a toll-free number – 1-800-677-1116 – which operates Monday through Friday, 9:00 a.m. to 8:00 p.m., Eastern time.

Family Caregiver Alliance

Family Caregiver Alliance is one of the largest and oldest organizations in the US devoted solely to caregivers. The web site includes information, free publications, and an online caregiver support discussion group.  See their article on Taking Care of YOU: Self-Care for Family Caregivers.

National Alliance for Caregiving 

NAC is a joint venture of several private and governmental agencies.  They conduct research, develop national projects, and work to increase public awareness of the issues of family caregiving for older Americans.  The site includes information for caregivers on how to take care of themselves while providing care. Check the Publications section for online brochures.

National Council on the Aging and BenefitsCheckUp

NCOA is a nonprofit organization with a national network of more than 14,000 organizations and leaders. Members include senior centers, area agencies on aging, adult day service centers, faith-based service organizations, senior housing facilities, employment services, consumer groups, and leaders from academia, business, and labor. 

BenefitsCheckUp includes information on more than 1,550 public and private benefits programs from all 50 states and the District of Columbia, such as:

  • Prescription drugs
  • Nutrition (including Food Stamps)
  • Energy assistance
  • Financial
  • Legal
  • Health care
  • Social Security
  • Housing
  • In-home services
  • Tax relief
  • Transportation
  • Educational assistance
  • Employment
  • Volunteer services

National Family Caregivers Association

This site identifies federal and state assistance programs for older Americans in each community. Check out their TAKE CARE! - Self Care for the Family Caregiver quarterly newsletter.

PBS

Second Opinion

Several other episodes of Second Opinion also explore topics that are relevant to caregiver burnout. They include:

Well Spouse Foundation

This nonprofit organization provides support and other resources to husbands, wives, and partners of chronically ill or disabled individuals. They are a peer led, mutual aid, self-help support organization. The web site will help you find a support group in your area.

Women's Health Information Center

This site offers useful resources on topics that affect women caregivers. It is part of the U.S. Department of Health and Human Services' Office of Women's Health.  See their section of Caregiver Stress.

National Associations
For information and assistance resources for individuals with particular diseases and conditions, national associations provide a great deal of information and guides to supportive services. Many of the associations also have local offices.

 
 
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