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This list of questions is a good starting point for discussion with your doctor. However, it is not a comprehensive list.
Before you begin to ask questions of your doctor, there are questions you need to ask yourself:
- How much value do I place on extending my life as opposed to the quality of my life?
- What is most important to me when I consider my treatment options – living longer, minimizing pain, maximizing function?
- How much pain and risk would I be willing to accept if my chances of recovery are good?
- What conditions would make me decide not to use life-prolonging treatment?
- Do financial considerations influence my medical care decisions?
Then ask you doctor:
- Do you agree with my philosophy and goals? If not, can you still support them?
- What is my (my loved one's) prognosis?
- What are the best outcomes that I might reasonably hope for?
- What is the shortest and longest time that I (my loved one) can expect to live?
- How confident are you about this prognosis?
- What should I expect as the illness worsens?
- Will you be able to relieve pain, yet still allow me (my loved one) to be able to recognize and respond to family and friends?
- What will you be able to do to make sure I (my loved one) won't have to endure overwhelming pain, shortness of breath, or other symptoms?
- What do you expect of us?
- What are the things to consider when choosing between aggressive treatment and comfort care?
- How much experience have you had in providing palliative care?
- How long can I still take care of myself?
- What should I consider when choosing where I (my loved one) will be cared for?
- At home?
- At a live-in hospice home?
- At a hospital palliative care facility?
- Will you minimize transitions between services, settings, and personnel? When they are necessary, will you make sure they go smoothly?
- Do you visit assisted living facilities, nursing homes, or hospitals to take care of patients?
- How difficult is caring for a dying loved one at home? What issues should the caregiver be prepared to face?
- What physical and emotional palliative care options will be available and which do you think might be of help?
- When caring for a loved one at home:
- When should the caregiver call for professional help?
- How can caregivers provide physical comfort?
- How can caregivers provide emotional comfort?
- What can I do instead of going to the hospital in an emergency?
- How do I make it known that I don't want CPR in case of an emergency?
- When should a decision about entering a hospice program be made?
- Who can help me find and tap into needed services?
- Will you support my family before, during, and after my death?
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