
“Dying Broke” Reporters on Long Term Care
Clip: 12/1/2023 | 18m 12sVideo has Closed Captions
Reed Abelson and Jordan Rau join the show.
End-of-life care in the United States is an emotional topic. Many are pushed into financial ruin by the imperatives of long-term care. Reporters Reed Abelson (New York Times) and Jordan Rau (KFF Health News) talked to dozens of families and experts about the reality of caring for the aged and dying in a country with no coherent elder care system.
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“Dying Broke” Reporters on Long Term Care
Clip: 12/1/2023 | 18m 12sVideo has Closed Captions
End-of-life care in the United States is an emotional topic. Many are pushed into financial ruin by the imperatives of long-term care. Reporters Reed Abelson (New York Times) and Jordan Rau (KFF Health News) talked to dozens of families and experts about the reality of caring for the aged and dying in a country with no coherent elder care system.
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Learn Moreabout PBS online sponsorship>>> TURNING NOW TO THE END OF LIFE CARE IN THE UNITED STATES.
AN EMOTIONAL TIME FOR SO MANY FAMILIES AND ALSO A TIME FOR MANY WHO ARE FORCED INTO FINANCIAL RUIN.
REPORTERS REID ABLE SON FROM THE "NEW YORK TIMES" AND JORDAN RALPH FROM KLL HEALTH NEWS TALKED TO DOZENS OF FAMILIES AND EXPERTS ABOUT THE TREMENDOUS TOLL OF TAKING CARE OF DYING LOVED ONES IN A COUNTRY WITH NO COHERENT ELDERLY CARE SYSTEM.
THEIR "NEW YORK TIMES" SERIES IS CALLED "DYING BROKE."
HERE THEY ARE TALKING TO HARI.
>> WHAT WERE YOU SETTING OUT TO FIND IN THIS SERIES "DYING BROKE"?
>> WE WANTED TO FIND PEOPLE'S EXPERIENCE, TRYING TO BOTH FIND BUT ALSO IMPORTANTLY TO AFFORD CARE WHEN THEY GET OLDER.
>> JORDAN, WHAT ARE THE KIND OF ASSUMPTIONS THAT WE ALL HAVE ABOUT HOW OUR ELDER CARE IS GOING TO GO?
WHICH YOUR CERISE CHALLENGES?
>> ONE OF THE BIG ONES IS SO MANY PEOPLE THINK THAT MEDICARE COVERS LONG-TERM CARE ARE.
AND IT DOESN'T.
LONG-TERM CARE IS IF YOU NEED A PERSONAL AIDE TO HELP YOU BECAUSE YOU HAVE DEMENTIA OR YOU NEED HELP GOING TO THE BATHROOM OR WHATEVER.
IT'S TOTALLY SEPARATE.
THAT'S WHY WE WANTED TO FOCUS ON THIS AREA, BECAUSE THERE'S A HUGE GAP.
AND PRIVATE INSURANCE DOESN'T COVER IT, AND PEOPLE THINK IT MIGHT.
MEDICARE DOESN'T COVER IT, AND THEIR CHILDREN ARE SURPRISED THAT THEY'RE ON THEIR OWN FINANCIALLY.
>> REID, JORDAN TOUCHED ON A SUBJECT WHICH IS REALLY JUST KIND OF THE DEFINITION OF OUR UNDERSTANDING OF WHAT LONG-TERM CARE MEANS.
BECAUSE IT'S EASY TO KIND OF FALL INTO A TRAP SAYING, OH, THAT'S NOT GOING TO BE SOMETHING THAT I NEED IN THE FUTURE, I DON'T NEED TULLY ASSISTED LIVING, ET CETERA.
NOBODY PLANS FOR THAT.
>> WELL, SOME PEOPLE DO PLAN FOR IT.
BECAUSE THEY SAVED MONEY FOR THEIR RETIREMENT AND THEY ASSUME THAT WHEN THEY GET OLDER, THEY MAY NEED A LITTLE BIT OF HELP.
BUT I THINK PEOPLE HAVE NO IDEA OF THE STAGGERING COSTS OF AN ASSISTED LIVING FACILITY, OR EVEN A HOME AIDE.
SO THEY REALLY, YOU KNOW -- THE VAST MAJORITY OF PEOPLE SIMPLY CAN'T SAVE ENOUGH FOR THESE COSTS.
AND I THINK THAT'S WHAT THE SERIES REALLY UNDERSCORES.
>> WHAT ARE SOME EXAMPLES?
WHAT KIND OF COSTS ARE WE TALKING ABOUT?
>> WELL, I MEAN, A NURSING HOME.
ASSISTED LIVING FACILITY.
WE'RE TALKING ABOUT TENS OF THOUSANDS A YEAR.
A HOME AIDE, DEPENDS ON HOW MUCH HELP YOU NEED.
AGAIN, THAT CAN BE TENS OF THOUSANDS.
NURSING HOMES ARE EASILY OVER $100,000 A YEAR.
A HIGH-END ASSISTED LIVING FACILITY, IT CAN START BEING THAT MUCH.
AND YOU KNOW, IF YOU'RE TALKING ABOUT SEVERAL YEARS, IF YOU'RE TALKING ABOUT LIVING THERE FOR MORE THAN A YEAR OR TWO, YOU FIND THAT YOU WIPE OUT YOUR SAVINGS.
AND MOST PEOPLE ACTUALLY FIND THAT THEY'RE CAUGHT IN THE MIDDLE.
THAT THEY DON'T QUALIFY FOR MEDICAID, WHICH IS THE STATE AND FEDERAL PROGRAM FOR THE POOR, BUT THEY REALLY CAN'T AFFORD CARE ON THEIR OWN.
AND SO MANY PEOPLE WILL GO WITHOUT CARE.
AND I THINK THE SERIES LOOKED AT VARIOUS EXAMPLES OF THAT.
>> JORDAN, ONE OF THE STATS THAT LEAPT OUT TO ME, TALKING ABOUT COSTS HERE, IS THAT ALMOST HALF OF UPPER MIDDLE CLASS COUPLES WITH LIFETIME EARNINGS OF MORE THAN $4.75 MILLION WILL ALSO END UP ON MEDICAID.
TELL ME ABOUT HOW IT IS THAT THIS SYSTEM IS STRUCTURED WHERE YOU HAVE TO EXHAUST WHAT MIGHT BE YOUR LIFE SAVINGS TO QUALIFY?
>> THE SYSTEM IS SET UP IN VARIOUS FORMS STATE TO STATE, BUT MOST MEDICAID PROGRAMS REQUIRE YOU TO ONLY HAVE $2,000 OR SO BEFORE YOU GET COVERAGE.
THEY REQUIRE YOU TO EXHAUST MOST OF YOUR ASSETS.
THEY'RE VERY, VERY COMPLICATED RULES IN EACH A's STATE ABOUT WHAT HAPPENS IF THE SPOUSE IS THERE, HOW DO THEY GET THEIR MONEY?
REID AND I INTERVIEWED PEOPLE THAT WERE TRYING TO FIGURE OUT HOW TO DO THIS, AND BASICALLY IMPOVERISHED THEMSELVES SO THEY COULD GET THE CARE.
THEY'D HIRE PRIVATE LAWYERS FOR THE HELP.
YOU'VE GOT A SYSTEM FOR THE POOR THAT COSTS MONEY TO ACCESS IT.
>> HOW MUCH, FOR EXAMPLE, DOES ALZHEIMER'S OR HAVING CANCER AT AN OLD AGE COMPLICATE THE COST OF CARE?
I HAVE TO IMAGINE A FACILITY THAT NEEDS TO KEEP ITS DOOR LOCKED TO MAKE SURE PEOPLE AREN'T WANDERING OUT IF THEY HAVE DEMENTIA IS GOING TO BE MORE EXPENSIVE.
>> A PLACE LIKE THAT IS GOING TO BE MORE EXPENSIVE, BUT IT'S ALSO GOING TO BE HARDER TO FIND.
THAT'S ONE OF THE THINGS THAT STRUCK ME IS THAT EVEN PEOPLE WHO REALLY WANTED TO PLACE THEIR LOVED ONE IN A FACILITY BECAUSE THAT'S WHERE IT WAS SAFER, SOMETIMES REALLY HAD VERY FEW OPTIONS.
PARTICULARLY UNDER MEDICAID.
>> A LOT OF THESE PEOPLE HAVE SUBSTANTIAL MEDICAL NEEDS, AND THERE IS ADDITIONAL FINANCIAL COST TO THAT.
AND THERE IS ALSO A HUGE LOGISTICAL COST.
IF YOU HAVE TO GO TO GET CHEMO SOMEWHERE BECAUSE YOU HAVE CANCER, THAT'S A WHOLE EXTRA THING.
THE TRANSPORTATION IS A HUGE ISSUE.
AND SO HAVING BODY OF THESE AREAS IN THE AMERICAN HEALTH CARE SYSTEM FILLED WITH PITFALLS AND TRENCHES THAT YOU COULD SLIP INTO, THEN HAVING TO DEAL WITH THE DOUBLE ISSUES AT ONCE, MAKE IT EVEN MORE PERILOUS FOR PEOPLE AND MORE FINANCIALLY BRUTAL.
>> GIVE ME AN IDEA OF HOW MANY FAMILIES ARE FACING THESE STRESSES RIGHT NOW.
WHAT ARE THE ACTUAL NUMBERS?
>> IT DEPENDS HOW YOU DEFINE IT.
WHAT WE WERE CURIOUS ABOUT FOR OUR DATA PART OF IT WAS, WE TOOK A VERY CONSERVATIVE DEFINITION OF WHO NEEDED LONG-TERM CARE AND FOUND THAT ABOUT 8 MILLION PEOPLE NEEDED IT WHO ARE OLDER AND ABOUT 3 MILLION OF THOSE WERE NOT GETTING ANYTHING.
BUT THAT DOESN'T COUNT A WHOLE BUNCH OF THINGS.
THAT'S REALLY AT THE POINT THAT YOU WOULD QUALIFY FOR BEING IN ASSISTED LIVE OREGON NURSING HOME OR SUCH.
IT'S EVERYBODY.
EVERYBODY WHO HAS A RELATIVE.
ONE OF THE REASONS THIS SERIES RESONATED SO MUCH IS THAT EVERYBODY, EITHER THEMSELVES HAS GONE THROUGH THIS, EXPECTING TO GO THROUGH IT, HAS IT RIGHT NOW, OR HAS FRIENDS THAT ARE GOING THROUGH IT.
WHAT WE TRIED TO DO FOR THOSE PEOPLE WAS CONNECT THE DOTS.
BECAUSE IT'S SUCH A DISPARATE SYSTEM.
BUT NOBODY -- AND OF COURSE, YOU KNOW, ALL OF US ARE IN DANGER AS WELL.
IT'S AS UNIVERSAL A PROBLEM AS YOU CAN GET IN HEALTH CARE, I THINK.
>> LET'S TALK ABOUT WHAT'S HAPPENING TO ALL OF THE PEOPLE AROUND THE INDIVIDUAL THAT NEEDS THE LONG-TERM CARE.
YOU SPOKE TO SO MANY DIFFERENT PEOPLE WHO ARE IN REALLY DIFFERENT LEVELS OF MENTAL, EMOTIONAL, FINANCIAL STRESS.
>> I THINK WHAT WAS STRIKING IS HOW MUCH PEOPLE SACRIFICED FOR THEIR LOVED ONES.
YOU KNOW, I TALKED TO PHELAN LEWIS WHO WAS IN ENGLAND, HAD A PROMISING CAREER, SHE HAD TO GIVE IT ALL UP TO MOVE HOME TO TAKE CARE OF HER MOTHER, WHO HAD HAD A STROKE.
SHE INCURRED DEBT.
SHE REALLY WORRIED ABOUT BEING ABLE AT SOME POINT TO MOVE -- TO GET HER OWN LIFE IN ORDER.
I THINK PEOPLE SACRIFICE ALL THE TIME.
IT'S FASCINATING.
I THINK JORDAN AND I FOUND FAMILIES WHO MOVED AN OLDER RELATIVE INTO THEIR OWN HOME.
AND REALLY SORT OF CHANGED THEIR LIFE TO BE ABLE TO ACCOMMODATE THAT PERSON.
YES, THERE'S A TREMENDOUS BOTH FINANCIAL COST -- YOU KNOW, DECIDING NOT TO WORK, FOR EXAMPLE, OR CUTTING BACK ON WORK, INCURRING DEBT.
BUT THERE'S A REAL EMOTIONAL COST, TOO.
MANY OF THESE FAMILIES HAD CHILDREN TE WERE ALSO JUGGLING ALONG WITH OLDER RELATIVES.
IT'S A VERY TOUGH SITUATION.
>> ONE OF THE FOLKS IN YOUR STORY IS GAY GLENN AND HER MOTHER, BETTY MAY, LIVE IN A NURSING HOME IN KANSAS UNTIL SHE DIED IN OCTOBER.
TELL ME ABOUT THEIR STORY.
>> GAY LIVED IN -- SHE'S ABOUT 60.
SHE LIVED IN CHICAGO.
WHEN HER MOTHER NEEDED CARE, SHE MOVED BACK TO HER HOME IN KANSAS.
AND THE MOTHER WAS IN BETTY MAY, BEFORE SHE PASSED, SHE WAS IN A NURSING HOME, PRIVATE PAY.
AND GAY HAD TO MANAGE ALL OF THAT, AND AT THE SAME TIME, SHE WAS LIVING -- THEY HAVE VERY -- TWO MODEST RENTAL PLACES.
SHE WAS LIVING IN ONE OF THOSE.
AND SHE HAD TO PAY RENT TO HER MOTHER, UNDER MEDICAID RULES, BECAUSE OTHERWISE THEY WOULD HAVE HAD TO SELL IT.
SO SHE WENT INTO HER OWN FINANCIAL TROUBLES JUST TO TAKE CARE OF HER MOTHER.
AND THEN AT THE SAME TIME, THEY HAD TO SELL THE MOTHER'S HOUSE BECAUSE THE WAY HEAD CAID WORKS IS, AFTER YOU DIE, WHILE YOU'RE ALLOWED TO KEEP A RESIDENCE, YOU EVENTUALLY HAVE TO REPAY MEDICAID WITH YOUR ESTATE'S ASSETS.
SO IT WAS, YOU KNOW -- BOTH FINANCIALLY AND EMOTIONALLY, TO HAVE TO BE DOING ALL THESE THINGS AT ONCE, BEING THERE FOR YOUR MOTHER IN THE NURSING HOME, YOU KNOW, TAKING CARE OF YOURSELF FINANCIALLY, THESE ARE ALL THINGS GAY HAD TO WORK THROUGH FOR MULTIPLE YEARS.
>> ONE OF THE STORIES THAT YOU REALLY DUG DEEP ON WAS THE CHALLENGE TO FIND LABOR.
TO BE ABLE TO -- EVEN IF YOU CAN AFFORD A HOME HEALTH AIDE TO DO THIS, WHAT'S HAPPENING WITH THE AGENCIES?
WHAT'S THAT MARKETPLACE LIKE?
>> SO THERE HAS ALWAYS BEEN A CHRONIC SHORTAGE, BUT IT'S GOTTEN MUCH WORSE AS THE JOB MARKET IN GENERAL HAS BECOME STRONGER.
QUITE FRANKLY, YOU KNOW, THESE ARE LOW-PAYING, VERY HARD JOBS.
SO IT'S VERY HARD TO FILL.
THERE'S NO QUESTION THAT THE GAP -- THERE'S ALREADY A GAP.
SO PEOPLE STRUGGLE TO FIND WORKERS.
AND YOU STRUGGLE TO FIND WORKERS EVEN UNDER PUBLIC PROGRAMS LIKE MEDICAID.
SIMILARLY, THOUGH, IT SEEMS IN THE PRIVATE MARKET AND THE PUBLIC MARKETS, THE SITUATION IS ONLY GOING TO GET WORSE.
THERE'S A LOT OF TALK ABOUT HOW TO BUILD A WORKFORCE WHERE PEOPLE ARE AVAILABLE TO HELP OLDER AMERICANS, BUT SO FAR IT JUST LOOKS VERY SCARY.
>> WHAT ARE THE COSTS THAT WE ARE NOT PLANNING FOR?
WHAT SURPRISED YOU AS A CONSISTENT THEME THAT CAME UP IN YOUR REPORTING THAT YOU WISH MORE PEOPLE KNEW ABOUT AND THOUGHT ABOUT IN TERMS OF PLANNING FOR THEIR RETIREMENT OR EVEN LONG-TERM CARE?
>> I THINK PERSONALLY WHAT SURPRISED ME IS HOW LITTLE PLANNING AND HOW LITTLE DISCUSSION -- WHEN I SAY PUBLIC DISCUSSION, I MEAN DISCUSSION AMONG FAMILIES BEFORE SOMETHING HAPPENS.
THERE'S A TENDENCY JUST NOT TO TALK ABOUT IT.
FOR PARENTS NOT TO TALK ABOUT THEIR FINANCES WITH THEIR CHILDREN.
NOT TO TALK ABOUT THEIR WISHES WITH THEIR CHILDREN.
IT'S ALMOST AS IF WE JUST HOPE, IF WE DON'T TALK ABOUT IT, IT WON'T HAPPEN.
>> YEAH.
THE OTHER PROBLEM WITH THIS IN PARTICULAR OF LONG-TERM CARE IS THERE'S A LIMIT TO HOW MUCH PLANNING YOU CAN DO.
YOU CAN'T PLAN TO NOT HAVE DEMENTIA.
YOU CAN'T PLAN WHEN THAT HITS.
YOU CAN'T PLAN IF YOU FALL AND SUDDENLY YOU CAN'T TAKE CARE OF YOURSELF.
YOU CAN'T PLAN WHEN YOUR SPOUSE DIES.
SO THAT'S ONE OF THE PROBLEMS IS YOU'VE GOT THIS THING THAT IS SO UNPREDICTABLE, HAPPENS TO EVERYONE OR EVERYONE'S AT RISK, AND IT'S THE AREA OF THE HEALTH CARE SYSTEM THAT HAS THE FEWEST INSTITUTIONAL GUARDRAILS.
>> REID, DOES IT MAKE A DIFFERENCE IF WE START PLANNING IN OUR 40s AND 50s?
SOMEBODY'S GOING TO WATCH THIS AND SAY, WELL, IF I SPENT EVERYTHING, I'M GOING TO HAVE TO EXHAUST IT ALL ANYWAY BEFORE I QUALIFY FOR MEDICAID.
>> WELL, I DO THINK SAVING DOES HELP.
ALTHOUGH I THINK JORDAN IS PERFECTLY RIGHT IN SAYING THAT YOU CAN'T SAVE YOUR WAY OUT OF BASICALLY WHAT CAN BE A CATASTROPHIC EVENT.
I MEAN, IF YOU HAVE, YOU KNOW -- IF YOU NEED 24/7 CARE FOR 10 YEARS, IT'S REALLY UNLIKELY -- EVEN FIVE YEARS -- IT'S SO UNLIKELY YOU'RE GOING TO HAVE BEEN ABLE TO SAVE ENOUGH.
BUT I THINK IT'S IMPORTANT AT LEAST TO START LOOKING AT YOUR OPTIONS AND TO START THINKING ABOUT IT.
AGAIN, ONE OF THE THINGS BOTH ACTUALLY IN TERMS OF THE READERS' COMMENTS AND IN GENERAL IN THE REPORTING, I WAS STRUCK BY HOW RESILIENT PEOPLE ARE.
PEOPLE CAN BE VERY CREATIVE IN FINDING SOLUTIONS.
AND SO IT'S IMPORTANT TO START THINKING ABOUT THAT EARLY AND START TALKING ABOUT THAT EARLY.
>> SO JORDAN, IF WE LACK THE KIND OF INSTITUTIONAL GUARDRAILS, IS THERE ANY KIND OF RULE FOR STATE GOVERNMENT AND FEDERAL GOVERNMENT TO PLAY, AND HAVE WE TAKEN THOSE STEPS?
HAVE WE TRIED TO TAKE THOSE STEPS?
>> WELL, WE'VE TRIED AND FAILED ON A NATIONAL LEVEL.
WE HAVE FAILED ON THAT.
THERE WAS A PROVISION THAT WAS A VOLUNTARY INSURANCE PROVISION IN THE AFFORDABLE CARE ACT.
AND IT WAS REPEALED EVEN BEFORE TAKING EFFECT BECAUSE IT WAS UNWORKABLE.
SO ON THE FEDERAL LEVEL, THERE'S VERY LITTLE MOVEMENT EXCEPT A TINY BIT OF TINKERING AROUND MEDICAID.
THERE ARE SOME PLACES -- THE STATE OF WASHINGTON HAS INSTITUTED A MANDATORY LONG-TERM CARE INSURANCE PROGRAM.
THAT'S AN EXAMPLE WHERE WORKERS, IF YOU'RE FULLY PAID IN, CAN GET ABOUT $36,000 TO PAY FOR LONG-TERM CARE.
SO THAT IS SOMETHING.
BUT, YOU KNOW, IF THE AVERAGE ASSISTED LIVING FACILITY IS $60,000, YOU CAN DO THE MATH.
EVEN THAT'S NOT GOING TO GO FOR AS LONG.
THERE ARE LITTLE EFFORTS LIKE THAT.
STATE OF CALIFORNIA IS CHANGING ITS LAWSON IT'S A LITTLE BIT EASIER TO HAVE MORE ASSETS AND GET ON MEDICAID.
THERE'S SOME OF THAT.
BUT IT'S ALL PIECEMEAL.
AND OVER ALL, I THINK WE WERE STRUCK BY THE FACT THAT THERE'S SO LITTLE POLITICAL MOVEMENT ON THIS.
IT'S BEEN THE CASE FOR SO MANY YEARS, THAT IT'S ALMOST PEOPLE -- IT'S NOT ALMOST.
PEOPLE TAKE IT POR GRANTED, THIS IS THE WAY IT IS.
IT'S NOT LIKE A LOT OF THESE OTHER BATTLES OVER STATE PRESCRIPTION DRUGS WHERE THERE'S ACTIVE DISCUSSION ON CAPITOL HILL.
>> IF THIS IS THE STATE OF PLAY IN THE UNITED STATES, ARE THERE OTHER COUNTRIES THAT WE CAN LOOK AT AS MODELS THAT WE MIGHT BE ABLE TO LEARN FROM?
>> WE LOOKED AT A LOT OF COUNTRIES.
WE LOOKED AT FIVE IN PARTICULAR IN THE SERIES.
I MEAN, THE BIG PROBLEM IS THAT THERE'S NOT -- THERE'S NO MANDATORY SOCIAL INSURANCE PROGRAM IN THE UNITED STATES.
YOU RULE OUT A LOT OF YOUR NORTHERN COUNTRIES.
THERE ARE SOME PROGRAMS IN OTHER COUNTRIES THAT DO INTERESTING THINGS.
JAPAN, I WAS REALLY STRUCK BY THEY HAVE CASE WORKERS WHO ARE ASSIGNED TO EACH -- TO EVERYONE.
AND THEY GET -- THEY HAVE A CASE LOAD OF ABOUT 40 PEOPLE.
JUST TO HAVE A NAVIGATOR WHO HELPS OUT IS SOMETHING THAT IS A SYSTEMIC CHANGE.
BUT AGAIN, ONE OF THE THINGS THAT I WAS STRUCK IN THE REPORTING WAS HOW MANY PROBLEMS ARE IN THE FOREIGN COUNTRIES, TOO.
THEY HAVE THE SAME AGING INFRASTRUCTURE PROBLEM.
AND THEIR LONG-TERM CARE PROGRAMS ARE NOT AS RADICALLY DIFFERENT IN PLACES LIKE CANADA AND EENLGS LAND AS YOU WOULD THINK THEY WOULD BE.
THOSE ARE PLACES THAT THEY HAVE CENTRALIZED PUBLIC MEDICAL SYSTEMS, BUT THAT'S NOT THE CASE WITH LONG-TERM CARE.
THE UNITED STATES, WE HAVE THIS GREAT CHART IN THE SERIES THAT SHOWS WHERE THE UNITED STATES IS IN TERMS OF SPENDING ON LONG-TERM CARE.
WE ARE WAY DOWN THERE FOR WEALTHY COUNTRIES.
BUT EVERYONE HAS GOT THE PROBLEM.
>> WHAT HAPPENS TO THE CAREGIVERS IN THIS PROCESS?
LET'S SAY IF YOU ARE CARING FOR YOUR OWN FAMILY MEMBER, WHEN THERE'S AN INEVITABLE END TO THIS, WHETHER THEY SEE THIS AS ALMOST A SENSE OF RELIEF?
>> WE ACTUALLY -- THERE WAS PEOPLE THAT I TALKED TO WHEN -- I ASSUME REID DID TOO -- WHO SAID," THERE'S A PART OF ME THAT WANTS THIS OVER."
NOT JUST FOR THEMSELVES BUT ALSO FOR THEIR PARENTS.
IF YOU'RE IN INCREDIBLE PAIN OR YOU'RE JUST SO DEEP INTO DEMENTIA YOU DON'T KNOW WHERE YOU ARE, THAT'S A PAINFUL WAY TO LIVE AND TO SEE SOMEONE THAT YOU LOVE LIVE THAT WAY.
AND FOR THE CAREGIVERS, THERE'S A FINANCIAL ISSUE.
THE SACRIFICES THAT THEY HAVE TO MAKE IN TERMS OF THEIR OWN CAREER AND EARNING POWER.
WHICH THEN BECOMES A FUTURE PROBLEM FOR THEIR FINANCIAL SOL SOLVENCY.
THEN IT EXACERBATES THE FAMILY'S STRESSES.
AND IT'S EVERYTHING.
SO IT'S JUST A VERY, VERY DIFFICULT THING TO BE A CAREGIVER.
>> REID, PRESIDENT BIDEN RECENTLY SIGNED AN EXECUTIVE ORDER THAT WAS SUPPOSED TO HELP THE PAY AND WORKING CONDITIONS OF HOME HEALTH CARE AIDES AND WORKERS.
IS THAT GOING TO MAKE A DIFFERENCE?
>> I THINK IT'S GOING TO MAKE A DIFFERENCE IF IT ACTUALLY TRANSLATES INTO SOMETHING.
FOR EXAMPLE, THERE'S A PROPOSE UNTIL MEDICAID TO MAKE SURE THAT MORE OF THE MONEY THAT GOES TO THE AGENCIES ACTUALLY FLOWS TO THE INDIVIDUALS PROVIDING WORK.
BUT THAT'S A PROPOSED RULE.
IT HASN'T HAPPENED YET.
AND YOU KNOW, WHILE INTENTIONS ARE REALLY IMPORTANT, IT'S VERY IMPORTANT TO MAKE SURE THAT ACTUALLY IT TRANSLATES INTO ACTUAL LAWS OR NEW REGULATIONS.
AND SO FAR, THAT'S BEEN DISAPPOINTING.
CONGRESS HASN'T BEEN WILLING TO REALLY TAKE THIS ON.
I THINK THE FUNDAMENTAL ISSUE IS ALL OF THIS COSTS MONEY.
AND THE REPUBLICANS AREN'T INTERESTED IN SPENDING THAT MONEY.
AND THE DEMOCRATS HAVE A LONG LIST OF PRIORITIES.
SO WHO KNOWS WHETHER AT SOME POINT THERE WILL BE A REAL APPETITE TO SPEND MONEY AND ACTUALLY MIC SOME REAL CHANGES.
>> REID ABLE SON OF "THE NEW YORK TIMES" AND JORDAN RAU, KFF HEALTH NEWS, THANK YOU.
"DYING BROKE."
FIND IT IN "THE NEW YORK TIMES."
>> THANK YOU VERY MUCH.
>> THANK YOU.
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