A few weeks ago, we brought you the story of Robert Vise, an eight year old boy from Louisville, who is fighting an extremely rare disease.

It turns out the treatment Robert is receiving today is all because of another Louisville family who first advocated for the treatment of this illness.

Nearly 30 years ago, our Kelcey Starks brings us the incredible story of Marque dad who was told his son wouldn't live past ten years old.

And today he's 35.

I can remember laying on the floor at night next to Ryan's bed thinking this probably won't come in time for Ryan.

But what we're doing today will change the generations from generations forward.

We will change those lives we'll never meet.

That's what devices are doing.

They're changing things for Robert, but they're also changing the future for children they'll never meet, for families they'll never know of when they're diagnosed.

They'll hear your son or he has or your daughter has more Kiel syndrome.

But there's a treatment, and it really works well.

And Prince sees there's Helen and Bobby and Robert and his sister that they'll never know.

And their friends, they're changing tomorrow for all these families.

What an incredible gift.

And could you have ever imagined?

No.

You know, my my real job back in Texas was I was a police officer for 32 years.

You nothing about science.

What does that have to do with finding a treatment?

You can't as a police officer, but you can as a dad.

You can as a mom, and you can as a friend.

I was in Germany once a few years ago, speaking at a conference in mines.

It was at a hospital and the director of the hospital said, I want to show you our infusion lab.

So we went down the hall on another floor and I walked in and there were four or five little children walking around pushing I.V.

poles.

They were getting I.V.

infusions of all different types of drugs.

And I looked on the label of one of them, and it said elder Design.

That's right.

The drug.

That moment I pictured all the people in Dallas who gave up their personal wealth.

They gave so many hours of their personal time to help that little girl.

They'll never me.

We're seeing a poll that said Elders.

I read it.

She looked up at me and she smiled and she walked on with her life.

It was one of those moments that I'll never forget because I picture the people in Kentucky and in Texas and across the nation who said, I won't give up on her.