Sense of Community
Redefining Care: Finding Support and Recognition
Clip | 1m 50sVideo has Closed Captions
Caring for a disabled child brings emotional, financial hurdles; need for better access to support
Hannah Wingo and Abigail Lacy reveal the emotional and financial hurdles of caring for a child with disabilities, highlighting the need for persistence, better access to support, and a cultural shift in how caregiving is valued.
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Sense of Community is a local public television program presented by OPT
Sense of Community
Redefining Care: Finding Support and Recognition
Clip | 1m 50sVideo has Closed Captions
Hannah Wingo and Abigail Lacy reveal the emotional and financial hurdles of caring for a child with disabilities, highlighting the need for persistence, better access to support, and a cultural shift in how caregiving is valued.
Problems playing video? | Closed Captioning Feedback
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[MUSIC PLAYING] NARRATOR: Hannah Wingo cares for her son Gage, along with her husband and support from home care provider Abigail Lacy.
HANNAH WINGO: One of Gage's therapists through the first steps program, I remember he was probably about a year old when she started mentioning that we should look into support through the Next Step, and we should pursue, like, trying to get Medicaid for him.
And so one of the first obstacles was me because I was like, we don't need that know.
I didn't understand that that would be our lifelong need, and we, in fact, would.
I mean, the cost for his prescription meds alone was more than our family could afford on a monthly basis.
Having some coverage for that also helps us fund other care for Gage through our self-directed employees.
NARRATOR: Abigail Lacey is a friend of the family with a history of providing home care.
ABIGAIL LACEY: Having someone you know is a little easier to transition to than a stranger.
So that was a little over 2 and 1/2 years ago that I started working for Gage.
NARRATOR: She wants people to know how little funding there is to pay for the work she does.
ABIGAIL LACEY: People like to look at the money, and I think when we try to value things based on $1, we're making a huge mistake culturally.
If people could see in and see what it actually takes, both physically and emotionally, to care for someone else who can't meet their own needs, I think that the attitudes about budgets would change.
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Now PlayingRedefining Care: Finding Support and Recognition
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Clip | 1m 50s | Caring for a disabled child brings emotional, financial hurdles; need for better access to support (1m 50s)
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Clip | 1m 58s | Caregivers share emotional struggles while experts suggest therapy, and peer support for stress. (1m 58s)
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Sense of Community is a local public television program presented by OPT