(Mai) YOU HAVE A DOCTOR APPOINTMENT TODAY.

I DO?

YES!

CHECK UP, RIGHT?

HMMM?

CHECK UP?

UM HUM.

TAKE YOUR TIME.

TAKE YOUR TIME?

YEAH, I TAKE MY TIME.

YEAH, YOU LOOK LIKE YOU'RE TAKING YOUR TIME.

ANYTHING YOU WANT TO ASK, YOU JUST ASK.

NOTHING.

WHY?

YOU BETTER THINK OF WHAT YOU'RE GONNA ASK.

YEAH, BECAUSE YOU'RE MUCH BIGGER NOW, YOU SHOULD ASK YOUR OWN QUESTIONS.

WHY?

WELL, BECAUSE I SHOULDN'T HAVE TO ASK THEM.

MY QUESTION IS... NOTHING.

NOTHING?

WHY?

I'M SURE YOU MUST HAVE SOMETHING TO SAY ABOUT IT.

YOU WANT TO KNOW WHAT I WANT TO SAY?

NOTHING!

YOU DON'T GET IT.

MR.

FOUA?

IS ANYTHING WRONG?

(Mai) NO, HE'S JUST LAUGHING.

ROOM 3, RIGHT HERE, OK?

HELLO, HI!

IT'S BEEN A YEAR!

(Mai) YEAH, WE DON'T KNOW WHAT'S NEXT YOU'RE GONNA DO SURGERY ON.

WELL, WHAT COMES NEXT IS A DECISION THAT HE SHOULD BE INVOLVED WITH, YOU SHOULD BE INVOLVED WITH, AND I CAN SUGGEST THINGS FOR YOU, BUT YOU SHOULD HAVE SOME CHOICES.

>>YEAH.

CAN YOU TURN YOUR HAND UP?

OTHER WAY.

NOW THAT'S THE THUMB WE WORKED ON FOR YOU ONCE.

YEAH.

UM HUM.

ARE YOU RIDING A BIKE?

OKAY, YEAH.

WHAT KIND OF A BIKE IS IT?

A BIKE BIKE, HUH?

YEAH, A BIKE.

IT HAS TO BE SMALL FOR ME TO RIDE.

WHY DON'T YOU TELL DOCTOR PELTIER WHAT KIND OF SPORT YOU'RE DOING IN SCHOOL.

LAST SUMMER I STAY AFTER SCHOOL AND PLAY SOCCER SOCCER?

AND VOLLEYBALL.

OKAY-- WHEN HE'S ACTIVE LIKE THAT, HE WILL STRETCH OUT A LOT OF THE TIGHT PLACES.

WE'VE ALWAYS TALKED ABOUT THE FACT THAT AN EAR COULD BE BUILT FOR HIM, PROBABLY OUT OF PLASTIC, AT THIS POINT.

ACTUALLY, I THINK BOTH EARS COULD BE FIT WITH PLASTIC EARS THAT WOULD MATCH HIS COLORING, BUT THEY WOULD NOT BE MADE OF HIS TISSUE, SO THEY WOULD GO ON AND COME OFF.

THE EAR ON THE RIGHT WOULD ACTUALLY GO ON A LITTLE POST BUILT INTO THE BONE.

ASIDE FROM HAIR REPLACEMENT SURGERY, THERE ARE WAYS OF GIVING HIM A HEAD OF HAIR AND MATCHING WHAT HE'S GOT AND INTEGRATING IT ALL TOGETHER.

AND SAVE THE SURGICAL KINDS OF THINGS FOR THINGS THAT CAN'T BE DONE ANY OTHER WAY.

SOME OF THE THINGS THAT I WOULD SUGGEST AT THIS POINT WOULD BE HIS UPPER LIP, WOULD BE GOOD.

WE'VE ALWAYS TALKED ABOUT DOING SOME WORK ON HIS EYELIDS.

HIS EYELIDS, YEAH.

PUT YOUR FACE UP TOWARD THE... SEE, HE'S VERY, VERY VERY TIGHT ACROSS THERE.

BUT ALSO WHEN WE PUT SKIN IN THERE, IT SHRANK VERY QUICKLY.

YEAH.

HIS NOSE IS VERY LIKELY APPROACHABLE, BUT NOT EVERYTHING CAN BE DONE AT ONCE.

OH, YEAH, I KNOW THAT.

ONLY ONE THING AT A TIME.

AND JUNE IS THE BEST TIME TO DO THE WORK FOR HIM, SO WE DON'T INTERRUPT HIS SCHOOL, SO HE HAS THE REST OF THE SUMMER TO... BUT I NEED TO HEAR FROM HIM WHAT HE THINKS HIS PROBLEMS ARE.

(Mai) YEAH, I WANT HIM TO TELL YOU.

BECAUSE NOW HE'S MUCH BIGGER.

EVERYTHING'S FINE WITH ME.

WELL, THIS IS A SITUATION WHERE HE NEEDS TO GO HOME AND HE NEEDS TO THINK ABOUT IT.

AND WHEN HE'S READY-- EVERYTHING IS FINE.

THAT'S WHEN I'M READY.

(Patti Klein) WE HAD A DAY WHERE WE WERE GETTING FOUA READY FOR HIS DRESSING CHANGES, AND HE DIDN'T WANT TO GO.

HE WAS SAYING "NO, NO, NO...," I SAID, "OH FOUA, YOU KNOW HONEY, WE HAVE TO DO THIS.

WE JUST HAVE TO DO THIS."

AND WE STARTED TAKING OFF HIS DRESSINGS, AND WE COVERED HIM WITH A DRAPE AND TOOK HIM INTO THE TUB ROOM, AND HE WAS MAD.

I MEAN HE WAS REALLY ANGRY.

HE WAS KIND OF SITTING UP ON A GURNEY TYPE THING THAT HAS RAILINGS, AND I REMEMBER HIM SITTING THERE, AND HE WAS... AND HE LOOKED AT ME AND HE WENT-- "FOO!"

I COULDN'T BELIEVE IT!

HE SPIT RIGHT ON ME!

AND I SAID, "FOUA, DON'T YOU EVER, EVER SPIT!

NO!

", YOU KNOW, AND HIS LITTLE FACE, AND I WAS GOING... BUT INSIDE YOU'RE GOING "YES!!"

"YEAH, BUDDY, FIGHT!!"

"SHOW US SOME SPIRIT.

SHOW US SOME FIGHT, SOME RESISTANCE."

(Dr.

Twomey) ANY TIME I'VE TALKED TO HIM, HE'S A PRETTY INDEPENDENT KID.

HE'S DEVELOPED A STRONG SENSE OF WHO HE IS, IN SPITE OF THE ALTERED OUTWARD APPEARANCE.

AND THANK GOD, BECAUSE WE KNEW THIS IS HOW HE'D BE A SURVIVOR.