
Parenting with a Chronic Illness - English
5/16/2023 | 1m 21sVideo has Closed Captions
A mom living with MS shares how she and her son turn tough moments into fun adventures.
This video features a mom living with multiple sclerosis, who highlights ways that she and her son have turned tough moments into fun adventures.
Problems playing video? | Closed Captioning Feedback
Problems playing video? | Closed Captioning Feedback

Parenting with a Chronic Illness - English
5/16/2023 | 1m 21sVideo has Closed Captions
This video features a mom living with multiple sclerosis, who highlights ways that she and her son have turned tough moments into fun adventures.
Problems playing video? | Closed Captioning Feedback
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Learn Moreabout PBS online sponsorship(gentle music) - Hi.
My name is Julie.
My husband Adam and I have a six-year-old named Jack.
I have had multiple sclerosis, also known as MS, for 16 years now.
MS is a chronic, degenerative, often invisible illness that I battle daily.
And while you might not be able to see it, I certainly feel it every single day.
When Jack was little, I always said "help Mama up," so I would give him my hand and he would help me up.
And I was telling a physician about this one day, and he said, "No, change the language to 'show me Super Jack.
Let me see those muscles.'"
It really changed the way I viewed situations, from me needing help, to him being a more empathetic person that wanted to help.
Kids have such wonderful imaginations.
A cane becomes a magic wand.
So what I saw as my shortfalls turned out to be great adventures for my son.
There was one birthday party that we missed, and I had so much guilt, but instead we filled a bath with his own ball pit.
Tough days are still tough for me, but remembering how he sees those days is what's important and what keeps me going.
Do you like it?
- Yeah.
(Julie laughs) - He doesn't mind the days that we cuddle up and watch a movie.
He doesn't mind bringing all of his favorite toys and playing in a fort.
I think he just wants love.
And that is never in short supply in this house.
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