Resources for Viewers
Advance Directives Hospice/Palliative Care Patient & Family Help Bone Marrow Transplants
- Caring Connections
Provides a basic primer on advance directives as well as state specific forms that you can download.
- Five Wishes
Provides instructions on how to create a living will that claims to address your "personal, emotional and spiritual needs as well as your medical wishes" in a user-friendly way. The Five Wishes document meets the legal requirements of 42 states.
- Myths and Facts
Information about advance directives from the American Bar Association [PDF].
Legislation on advance directives vary by state. FindLaw has put together a brief guide to the laws in all 50 states.
- The Physician Orders for Life Sustaining Treatment (POLST) Paradigm
This was designed as a supplement to traditional advance directive documents. POLST is intended for patients with advanced frailty and/or serious illness. The form, which must be filled out with a physician, covers a range of patient preferences including CPR, resuscitation, the use of antibiotics, artificial nutrition and comfort care.
Patient & Family Help
- Family Caregiver Alliance
Founded more than 30 years ago, this organization is a comprehensive advocacy group that offers fact sheets, resource guides and public policy information for caregivers.
- The AARP's Caregiving Resource Center
The center offers planning advice -- legal, financial and emotional -- for family members who are caring for parents or loved ones.
- Caring Connections
The organization provides practical guides to on how to plan for caregiving and how to cope -- both financially and emotionally -- with serious illness.
- Family Care Navigator
It offers an easy to use state-by-state guide to resources for family caregivers.
- Well Spouse Association
An organization dedicated to providing support to the spousal and partner caregivers of the critically ill and/or chronically disabled.
- CPR and DNR
A primer of what is involved in CPR and DNR [do not resuscitate] from the Family Caregiver Association.
- Feeding Tubes and Ventilators
A primer from the Family Caregiver Association.
- Life Support Methods
An overview of the different methods of life support commonly used in ICUs from the Society of Critical Care Medicine.
- MY ICU CARE:
The Society for Critical Care Medicine's guide for families navigating the world of ICUs.
- Ventilation Beyond the ICU
A useful guide for patients and families facing long-term mechanical ventilation.
- Caring Bridge
The organization allows patients, family and friends to create free websites that help people stay connected and informed during serious illness.
- Death with Dignity
An advocacy organization dedicated to "provide options for the dying to control their own end-of-life care." In addition to legislative information, the site provides comprehensive guides for patients and families.
Bone Marrow Transplants
- Be the Match
A national registry of more than 8 million bone marrow and umbilical cord blood donors. Information on how to donate, and how to locate donors is available on the site.
- The Blood and Marrow Transplant Information Network
It offers detailed background information, resource guides and information on how to locate a donor, and a searchable database of transplant centers around the United States.
- The National Bone Marrow Transplant Link
A resource designed to provide "social and emotional" support for patients, their caregivers and families. The site has a free online library of journal articles and other reference materials.
- Gift of Life
It has bone marrow, blood stem cell and umbilical cord registries, and facilitates transplants for children and adults suffering from life-threatening diseases like leukemia and lymphoma.
- American Society of Hematology
It promotes research care, education and advocacy for further understanding disorders affecting the blood, bone marrow, and the immunologic, hemostatic and vascular systems.
- The Leukemia and Lymphoma Society
A society that funds blood cancer research, education and patient services with the goal to cure leukemia, lymphoma, Hodgkin's disease and myeloma.
- International Myeloma Foundation
This foundation aims to improve the quality of life of myeloma patients while working towards prevention and a cure.
- Multiple Myeloma Research Foundation
It pursues the development of myeloma treatments to extend the lives of patients and lead to a cure.