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Q: What symptoms are related to Gulf War Syndrome?
A: A bunch -- mood swings, night sweats, insomnia, fatigue, joint and
muscle pain, blurred vision -- burning urination, diarrhea, short term memory
loss -- I'm trying to remember them all -- the rashes, fungus on the toenails
-- like, my big toe is being eaten away by this old fungus thing. Gosh,
there's just so many.
Q: What about cancer?
A: I think there's three strong types of cancers. It's melanoma,
lymphoma, and testicular is one of the other cancers that is killing a lot of
the Persian Gulf vets... There's about 57, 50- -- I think there's 57 to 60
symptoms that they -- there used to be just 50 symptoms which like in '93 I
matched 47 of 50 symptoms, but now they've raised it up more because there's so
much abnormality going on with us -- it's like a Persian Gulf veteran can wake
up one day and feel good enough, like me.
I was in a wheelchair for years and -- for a couple of years anyway -- I
still use a cane for long -- long distance walking or like in the mall or
stores or something. I have to use my cane, I'm a high fall risk and with bad
feet I walk with a wide gait. Around the house here from -- you know I can use
walls or doorways to get through, I don't have a problem with that, but I know
like Colonel Smith, for instance, a good friend of mine, I have his permission
to talk about him any time I want -- he has days he'll call me, he's chipper,
he's up, he's fed the dogs and you know he's ready to start the day, but
because we feel good some days we overdo it so the next day --
Like tomorrow I probably won't do anything. I'll probably just sit, relax,
watch TV or something like that because I'm doing this today and I've got some
things I have to do yet -- later tonight, but when we feel good and you're up
and everything, you overdo it because you want to be that old human being that
you were again. Every time I go to Washington, like the five days I spent out
there a couple of weeks ago, that just killed me. For like a week, I just laid
around, my feet were swollen, I was hurting.
Q: So why do you think that a lot of Gulf War veterans with Gulf War
Syndrome -- some are worse than others? Why do some have different symptoms
than others?
A: Well, medically speaking I don't know. I mean I'm not a scientist or
a doctor. My opinion of what I've learned and what I've talked to doctors
about and stuff is everybody's immune systems are different, everybody's amount
of exposures were different. Some people took pills, some didn't. Some got
shots, some didn't. Some was at Khamasiyah and many weren't. You know I think
it depends on your personal structure...
Q: What is your response to the Presidential Advisory Committee's
conclusion that the unexplained symptoms of Gulf War veterans are most likely
due to stress?
A: What I respond to the Presidential Advisory Committee's conclusion,
both in the interim report and the final addition, of most of symptoms being
caused by stress basically, phooey on them. You don't have five members of
your own committee come out behind the chairman's back and say they don't agree
with that that they believe that there's more to it than just stress. I'm much
more enlightened by the final conclusion than the interim report since they are
suggesting that the investigation be taken away from the Pentagon and put into
somebody else's hands. That's quite exciting. I'd like to see the Pentagon
stripped of all doings with this issue.
If the Presidential Advisory Committee wants to blame some of this on stress,
I think they have to right to because they've seen a lot of stress. In two
years, they have seen nothing but stressful veterans getting up there and
testifying, but I come back to the Presidential Advisory Committee -- Ed
Berris testified about his son dying, Carolyn Berris testified about her
husband dying. Not one person on that committee asked questions. If I could
have got up there, I would told 'em shame on all of you. You know, you don't
have a man come up here in tears testifying that his son has just died in
December of cancer and you don't have one question for him? You don't have a
young beautiful woman, this -- I mean she was gorgeous -- get up there and
testify about her young husband dying in December and not ask a question. You
know, if they want to say it's stress, we can say that they're part of that
stress.
We're tired of misrepresentation of the truth and the PAC, the members of the
PAC that -- like Dr. Lashoff -- I asked Dr. Lashoff in Detroit, or in Chicago
when I testified in July of last year -- I said "you're a doctor, why don't you
examine a few of us?" She says "well, I can't do that." "Why not?" Don't
even give a conclusion if you don't know all the answers.
Don't tell us that it's stress, if you can't tell us that it's something else.
There's no doubt in my mind that stress can cause some problems. I'm dealing
with it right now. When I was in my marriage I think that stress made some of
my symptoms worse, like maybe my diarrhea, my vomiting, my hives and my rashes
and stuff. I think stress caused that worse. I don't think it's what gave it
to me, but I think it made it worse because now that I'm away from her and I
have less stress the rashes aren't re-occurring as much, my vomiting and
diarrhea has subsided quite a bit. So I can believe and I will give 'em that
some stress can make things worse, but it's not the cause of our illnesses.
How does stress cause brain damage with scarring? How does it cause chemical
sensitivity? I believe, if I'm right, one of the most stressful jobs in this
country is air traffic controllers. How come air traffic controllers don't
have the same illnesses we do? How come policemen who face battle every day
throughout this whole country, why aren't they complaining that they have
chronic fatigue syndrome, brain damage, colon damage, stomach damage, chemical
sensitivity, cancer, fungus on their feet, rashes? You don't hear that.
That's stress. Those are stressful jobs. ....
Q: Tell me what you did to get other people to understand that something
in the Gulf was making you and others sick.
A: Well, basically just by the phone, by television and the internet. I
created a web page and tried to put as much information on there as I possibly
could. I have tried to network with many other veterans, I've tried to -- you
know through national media exposure, that was one of the best. How we got it
to England was I've done two documentaries -- two or three documentaries over
there and I've done quite a few up in Canada and that's what we were actually
reaching out for and I've got a message on my answering machine now from some
Japanese guy. He wants to do an interview for Japan television -- but that's
basically because we've offered our help to Japan. We said if you give us the
information of why only 13 died and 5,000 were sick, we'll let you know what we
know about saran and everything, but just networking, phone calls, hours and
hours and hours of on the phone and interviews.
Q: How much time do you spend everyday, or per week?
A: Well, it used to be hours. I mean just from the time I woke up until
the time I'd go to bed at night I was on the computer, but going through what
I'm going through now which was held against me -- they said I was too much
hours on the computer and not enough with the children -- I've broke it down to
where about Monday, Wednesday and Friday I work on the issue all day. Days
that I don't have the kids, I'm on it all day, all night. I'm on my web page
and I'm a co-commander of a chat room from about midnight to 4:30 in the
morning I'm on that and then during the days when I do everything else. I've
been doing a lot of public appearances lately here locally, like an Honorary
Grand Marshall of a parade on July 4th, and a I was a guest speaker at an air
show in Alcart, and I've been trying to do a lot of things like that 'cause
I've spread myself out so far nationally that I've kind of neglected some of
the local things that I was supposed to be doing around here.
Q: Tell me, how did you get the congressmen to listen to you?
Congressmen and senators.
A: Well, the first phone call I made to Fred Upton -- it wasn't a
problem. I mean he said you're my constituent, he actually did what a
congressman is supposed to do. We put him in office to help us, I had a
concern, and boom, he helped and he still is helping today. Same thing with
Senator Reigle. Once I had their attention, I think their friends that sit on
you know in chairs and committees and in congress, I think they probably said
well, if they believe, then we must believe him too. One thing that helped me
was '93 testifying in both the House and the Senate that day. Like Joe
Kennedy, when I went to meet him a couple of weeks ago, I mean he walked in,
he's like "Brian" you know, "how ya doin'." Liza Mianus, the woman that I'm
working with over there, has like her investigator -- she's kinda like my
liaison, I'm a liaison for the vets for him. She went over to Lane Evans just
to see -- 'cause she gets a lot of paranoid theory in there -- so she went over
to Lane Evans on the committee and says "hey, I got this guy named Brian Martin
I just met with" and they're like "oh, yeah" you know "he's testified to us
before" and Lane Evans goes "how's he doing" because I meet with a lot of Lane
Evans's staffers around here since he's from Chicago.
Q: Congress members and the senators -- do they rely on you a lot for
information?
A: They rely on all of us. I mean if there's something that I don't
know, I'll find it out. You know. Somebody out there that I work with or
network with.
Q: Do you feel a bit used?
A: No, not at all. I believe this is the way the American system
should work. Constituents have a concern, they call their congressman, their
congressman helps them, and if it's a long going concern, then the congressman
sticks with 'em. Like Congressman Shays one time -- it was right after they
admitted to Khamasiyah, I was on the Today Show, and I had just flown in from
New York and the phone was ringing. And it was Congressman Shays. He says
"Brian can you be here in four hours to testify?", and I told him "I'd love to
sir, but you know there's just absolutely no way. I just got in from New York,
I'm tired, there's no way I could make it to DC and testify for what you want
to put me through", and he says "well, hold on, I'm gonna call you in a half an
hour---
And I got a call back and on the speaker phone, he goes "the committee is in
here right now Brian", he goes "everybody say hi to Brian" and they're like
"hi, hi" and all that and I'm trying to remember okay, "hi, Congressman Tolins,
hi Congressman Sanders." I'm trying to remember who's on the committee, who's
on the committee -- and what they did is they asked me about 45 minutes of
questions over the phone and I answered them because Steven Joseph was
testifying to them and I guess -- now I didn't see it on C-SPAN 'cause I went
to bed immediately after they interviewed me over the phone, but Dr. Murphy
called me the next day and said that -- she said that when Joseph was talking
that if Shays didn't mention my name one time, he mentioned it 200 times. He
kept saying "well, I just hung up with Brian Martin", and this and this and
this, and that makes me feel good because I've worked very hard for that
respect.
I've made it a personal standard of mine never to say anything to the press or
to Congress or to anybody that I don't have a document to prove. I've seen too
many Gulf War groups and Gulf War advocates get thrown to the wayside because
they've exaggerated numbers or they've -- you know they just didn't have the
files to prove what they were saying and I won't do that and I think that's why
my reputation is so good in Washington is because they know when they call on
me I'll work hard for 'em, I'll put together the proof and the evidence that
they need for what I'm saying, and I'm always willing to speak in front of
them.
Q: Tell me what media spots you've done-- any radio or media spots,
newspapers?
A: Yeah, mainstream. Phil Donahue, Montel Williams, 60 Minutes twice,
Tom Snyder twice, Fox's Front Page, Fox's In the Morning, or whatever, the
Today Show, CBS This Morning, Good Morning America, America This Morning or
whatever that's called, oh boy. I'm trying to remember them all. 34 national
television appearances I've done. This show right here will be 35, 'cause PBS
is national, right? Yeah, this will be 35 for me. Radio, you name it, I've
done it. I mean a lot here in Michigan. A lot out of California. I do a lot
out of California. Some out of Texas. Oh, geez, I've got a media list.
I've been on C-SPAN a couple of dozen times I think, I don't know. C-SPAN I --
when I did the Today Show, I met Steve Scully who is -- at that time, he was a
spokesman for SIDS, him and his wife had lost two kids by SIDS, and I was
giving him my card and he goes "let me give you mine", and he's the political
editor for C-SPAN. So now whenever there's a hearing I go "Steve", he goes "All
right, I'll have a crew there."
So I truly believe that I have a really big mouth and I have a lot of
cahonies to kick in doors and I think God figured out how to use both of them.
I'm not a highly religious person, but I see things unfold in front of me that
only God could be responsible for. Like me doing the Today Show and sitting in
the Green Room meeting the political editor of C-SPAN. You know, that's a
perfect resource for me. I mean, God, now we've got C-SPAN at every hearing
that we have. You know I think these things happen for a reason
Q: What is like being the Khamasiyah kid?
A: The Khamisiyah kid is actually a name that was given to me by the
media. The only part of my life that has actually changed is I have been
totally vindicated. The people that have talked about me and said you're a
fake, or you're a liar, or you know you weren't exposed to anything, or how
could you be this sick if -- you know six months over there or whatever. Now
they know. Just a quick side bar, my own grandmother has disowned me. My
mother's mom has disowned me. She has seen me at my worst, she has seen me
crawl across the floor, she has seen blood come out of my ears and my nose and
she has been there when I was at my sickest. My mom's sister, my aunt, my
mom's uncle which is also my uncle, and my mom's mom which is my grandmother
have all disowned me in this family and made it a personal goal to tell
everybody in the family that I'm still faking and that I'm sick and there's no
way that I have these problems and there's no way all these Persian Gulf
veterans are sick because he was a World War II veteran and, you know, of
course there's a jealousy issue with that.
But when they admitted to that tape and they admitted to Khamisiyah and they
admitted to my unit being exposed and then they admitted to 98,900 and some
other people being exposed, it was probably a joyous day. It wasn't a victory
day because we're still sick and it's sad to know that parts of the different
entities of my government would lie to me and so many other people that did
what was asked of us to do, but it's changed me because I have more confidence
about when I speak to congress or when I speak to the media I think that they
look at me a lot different and say, you know, this guy was right and it makes
me feel good because I've -- I'm not a college graduate, I'm not a genius, I'm
not -- I haven't invented something that's changing the world or anything like
that, all I had was a stupid little video camera at the right time at the wrong
place and a stupid little video tape that happened to show something bad and
you know I don't want it to change me. I mean I don't want to -- I don't want
to go down as history as the Khamisiyah kid, I'd rather go down in history as
being a loving father and a good friend to everybody that I've met, but it's
definitely given me a new respect out there, I mean between the vets and
congress and media, they definitely found a new respect for what I've done.
Q: You must know that there are critics out there. Regarding stress, for
example, it's well established that post war neuroses are common and that
complaints such as rashes, headaches, fatigue, blurry vision happen to a
majority of returning soldiers throughout history. What do you say to this?
A: I would look at it as what their stresses were. If the VA diagnoses
somebody with PTSD, it's on them to tell the vet and their service officer what
the stressor was that caused the PTSD. Too many times PTSD is being diagnosed
and there is no stressors as given as the cause. I believe that like in my
situation where the most stressful thing that happened to me -- I mean I lost
my best friend over there, but anybody that knew that they were going to war
knew that you're probably gonna die of lose a friend or somebody. You know, I
was mentally prepared for that, but it still hurt. It hurt like hell to lose
my best friend, but I think that me not getting mail or most of the members of
my unit not getting mail in a timely fashion didn't cause brain damage. I
think if some of these guys were -- that were in like the APCs, the armor
personnel carriers that were hit with friendly fire, I think some of the M1s
that were hit with friendly fire, I think their stress levels are very high and
I think some of their problems could be caused by that anxiety and that stress
of knowing you know they were that close to death, they probably did lose
somebody in their crew that they trained with, that they probably drank with,
hung with on weekends, played cards with, whatever. Yeah, that can cause a lot
of stress, but when you talk about like the stress causing symptoms, what about
the illnesses?
Can stress cause inflammatory bowel disease? Or heart attacks? Can it cause
a crystallizing of the valves, can it cause high platelets around the blood
cells around the heart? Can stress cause brain damage? Can stress cause
testicular cancer? I mean when they say stress, specifically talk about what
stress can cause and weed it out from the illnesses and the real symptoms.
Migraine headaches, yes, can be caused by stress. My headaches are caused from
a scar on my temporal lobe. So, yeah, you know you're gonna have both either
way, and I agree there's stress. I said this earlier. But you have to look
at the individual, you can't just listen to two years like the PAC did --
listen to two years of testimony and then clump us all together. They didn't
hear from 700,000 people. They need to individually try to find out what
stressors were.
Q: Here's a tough question for you. Some people are skeptical of your
health-- good-looking appearance, alert manner, and the fact that you're out
there as a spokesman for lots of vets. You're traveling, you're spreading the
word, and doing all this while you're suffering from Gulf War Syndrome. You've
got 100% disability. How can you do all of this and still be disabled?
A: Well, because I'm disabled, I have to be bed bound? I mean I have to
be in a wheelchair? I have to be in the hospital? How do MS patients get
around? How do AIDS people get around? I mean they're dying, you know,
they're dying at a rapid pace, they know they're dying, but they get around.
Ryan White. Don't you think he was a strong little boy?
Like I said earlier, I have been very fortunate. I've made the contacts, I've
opened the doors and until either they resolve the issue -- not the veterans,
the government--resolves the issue and makes everybody fess up and they do
what's right, I'll be in this issue for everybody. I have now the money. I
mean the compensation that they're paying me gives me the money to do this. It
would be very easy for me to turn my back on this issue and say "well, I've got
my money, now I'm just gonna sit and live a non-stressful life." I don't have
to be on the phone paying $2,800 phone bills a month. I don't have to be on
the internet. This is my third computer in three years. I don't have to do
any of this. I do it for them. I do it for the vets. I do it for their
wives' and for their children.
I'm in a lot of pain when I'm done with it. I take my time, I work this
issue when I'm able to work it. When I'm walking, if I know I've had enough, I
sit down. You know, I'm not stupid, I don't push myself to where it's gonna
kill me. The TV shows that I do. I'm taken care of. When I get to a hotel I
like -- I make sure there is fresh fruit there, I make sure there is plenty of
fluids for me to drink, I make sure that I'm on a chemical free floor.
You know, I have people ask me about smoking. How do you smoke? Dr. Claudia
Miller has asked me "how do you smoke?" Dr. Murphy suggested I don't -- or
that I don't quit smoking because, like if you had perfume on and I smelled it,
I light up a cigarette, I can't smell it no more. So it doesn't effect me.
Cigarettes are effecting me I think, I mean they told me last October I have a
lung disease, but they said it's not due -- I've got a minor -- in the minor
and major parts of my lungs, but it's not due to smoking. They don't know what
it's due to, but I have a lung disease. Cigarettes aren't helping it, but it
keeps me -- if we're driving down the road and a bus is in front of me and the
exhaust is real bad, I roll up the windows and light up a cigarette. I can't
smell it no more. Now I'm not throwing up, I'm not gagging, I'm not heaving,
I'm not running my car into a telephone pole because I get dizzy all of a
sudden. I'm very aware of what's around me, I'm very careful, I'm very
cautious, flight arrangements, stewardesses and -- I mean I make sure all of
that is taken care of. I do get around very well for the disability that they
have me at, but, like I said, squeaky wheel syndrome. How much of that do you
think was added on, you know? I know I have Reiter's syndrome because I've had
civilian doctors tell me.
Q: Are you concerned -- because of your illness, are you concerned about
giving blood?
A: Yeah. I will never give blood. I mean I don't care if there is a
national crisis for blood, there's no way. I don't know what little funny
animals are swimming around in my blood and I don't think the VA knows and I
don't think the Pentagon knows and if they do know, they're not admitting it so
why would I want to go and give blood and possibly make somebody sick? I
called my local Red Cross here and I asked 'em, I said "do you have a screening
process, a questionnaire, do you ask 'are you a Persian Gulf veteran' or 'have
you been exposed to anything'", she said "no, all we do is an AIDS test on the
blood." I don't agree with that. You know, there's more illnesses out there,
there's leukemia, there's -- I mean there's all kinds of illnesses that blood
carries and why they're just worried about AIDS I don't understand. We've
written letters to Elizabeth Dole that went unanswered. We have gone as far as
to even call meat markets and slaughter houses and say -- you know, it's kinda
morbid, but there are people that believe in bestiality and what if somebody
with Gulf War Syndrome or AIDS or something like that had sex with a cow or a
goat . You know, we've actually asked the questions to cover all grounds
kinda, if someone had a sex with a cow that had Gulf War syndrome could it get
in the meat? We couldn't get answers from that. So, you know, we're not
getting answers from the Red Cross, we're not getting answers about a lot of
our concerns and these seem like silly little concerns, but there our
concerns....we really care about the American people not being afflicted with
this.
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