WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

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Allison Scott
Ann Arbor, MI

I've been dealing with chronic pain for 23 years now; I'm 35. I'm one of the lucky ones. I get a break from my pain every so often. There is no accurate diagnosis, no planned therapy, no guarantees with surgery for me. It's a mystery that I've learned to deal with on my own with very little help from the medical professionals I've seen about my condition. It stops me from doing certain things. It keeps me from being as active as I would like. It's kept me home from work on numerous occasions.

The thing I would like most to see the medical profession do is acknowledge the wisdom of the patient. I've taken quite a few different pain medications, most of which have the potential and reputation of being addictive. I can honestly say that I have never been addicted simply because I didn't follow the doctors orders in how to take the medication. Studies have shown that when a patient controls the dosages they have better pain management and lower addition rates than when the standard orders are followed. More aggressive pain management should be high on everyone's list. The body can heal better when there is no pain. Physical, emotional and mental stress levels are lower and therefore allow for quicker and better healing. And yet some doctors just refuse to see the wisdom of aggressive pain management. I really don't understand that at all.

Zoe Albright, Stroke
Betty Bennett, Kidney Disease
Roxanne Bedford-Curbow, Seizures
Valerie Brekke, Fibromyalgia
Lily Casura, Chronic Fatigue
Billie Davis, Peripheral Neuropathy
Penny Day, Chronic Obstructive Pulmonary Disease
Julia DeJesus, Seizure Disorder
MS Patient, Fairfax, VA
Charisse Farmer, Hydrocephalus
Katherine Fielder, Chronic Pain
Zoe Francis, Juvenile Diabetes
James Hines, Hemochromatosis
William Holford, Emphysema
Nancy K, Chronic Fatigue Syndrome
Patricia Lawson, Natural Rubber Latex Allergy
James Locke, Crohn's Disease
Gary Maslow, various
Kathy Matthews, Parkinson's
Andrea Meyer, MS
Gina Owens, Chronic Fatigue Immune Dysfunction Syndrome
Alicia Salas, Chronic Pain
Allison Scott, Chronic Pain
Deborah Serrano, Stroke
Becky Shively, Phenylketonuria
Jennifer Smallin, Type I Diabetes
Joanna Southerland, Diabetes
Alina Valdes, Cystic Fibrosis
Elizabeth Wertz, Seizures

Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

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