Visit Your Local PBS Station PBS Home PBS Home Programs A-Z TV Schedules Watch Video Donate Shop PBS Search PBS
WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

Your StoriesAbout Fred Friendly SeminarsFred Friendly Seminars
Awareness
Patient Files
The Challenge
Your Stories
Outreach
Resources
About the Program
About Fred Friendly Seminars
Our Partners

Elizabeth Wertz
Pittsburgh, PA


Our 14-year-old daughter began having seizures when she was 10 weeks of age. Since that time, she has been on multiple medications, participated in study trials, had brain surgery, had a vagus nerve stimulator implanted, and is scheduled for back surgery next month to correct scoliosis. She does not speak, wears a diaper, has a gastrostomy button, and requires complete care. We finally have a nurse who comes to the house after school and on Amanda's days off. These nursing services have significantly assisted our family in caring for Amanda. My husband and I work full time, and we have two other children -- a 17-year-old son and a 9 year-old daughter. As you can imagine, we have good days and bad days. We have been through many battles through this time and are always looking for ways to improve Amanda's quality of life.

YOUR STORIES
Zoe Albright, Stroke
Betty Bennett, Kidney Disease
Roxanne Bedford-Curbow, Seizures
Valerie Brekke, Fibromyalgia
Lily Casura, Chronic Fatigue
Billie Davis, Peripheral Neuropathy
Penny Day, Chronic Obstructive Pulmonary Disease
Julia DeJesus, Seizure Disorder
MS Patient, Fairfax, VA
Charisse Farmer, Hydrocephalus
Katherine Fielder, Chronic Pain
Zoe Francis, Juvenile Diabetes
James Hines, Hemochromatosis
William Holford, Emphysema
Nancy K, Chronic Fatigue Syndrome
Patricia Lawson, Natural Rubber Latex Allergy
James Locke, Crohn's Disease
Gary Maslow, various
Kathy Matthews, Parkinson's
Andrea Meyer, MS
Gina Owens, Chronic Fatigue Immune Dysfunction Syndrome
Alicia Salas, Chronic Pain
Allison Scott, Chronic Pain
Deborah Serrano, Stroke
Becky Shively, Phenylketonuria
Jennifer Smallin, Type I Diabetes
Joanna Southerland, Diabetes
Alina Valdes, Cystic Fibrosis
Elizabeth Wertz, Seizures

WHAT WOULD YOU DO?
Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

Home | Awareness | Patient Files | The Challenge | Your Stories | Outreach | Resources
About the Program | About Fred Friendly Seminars | Our Partners | Site Map | Credits

© 2001 Fred Friendly Seminars, Inc.