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WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

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Julia DeJesus
San Bernardino, CA


My 10-year old daughter was diagnosed with a seizure disorder at five months. She also has multiple developmental disabilities. She tends to become ill, and with the illness comes more seizures. I am a single mother. I have to leave work to care for my child. I have used up all my paid leave time. My employer does adhere to the Family Medical Leave Act (FMLA), and I am allowed so many hours of leave under FMLA. However, not all instances when I need to be off work fall under FMLA, and then I am left without leave time and without pay. My supervisor requires a doctor's note each time I am off work, even though not every illness needs a doctor visit. I feel I am stuck in a never-ending loop. It would help to be able to work at home when needed, and to have to family sick leave available.

YOUR STORIES
Zoe Albright, Stroke
Betty Bennett, Kidney Disease
Roxanne Bedford-Curbow, Seizures
Valerie Brekke, Fibromyalgia
Lily Casura, Chronic Fatigue
Billie Davis, Peripheral Neuropathy
Penny Day, Chronic Obstructive Pulmonary Disease
Julia DeJesus, Seizure Disorder
MS Patient, Fairfax, VA
Charisse Farmer, Hydrocephalus
Katherine Fielder, Chronic Pain
Zoe Francis, Juvenile Diabetes
James Hines, Hemochromatosis
William Holford, Emphysema
Nancy K, Chronic Fatigue Syndrome
Patricia Lawson, Natural Rubber Latex Allergy
James Locke, Crohn's Disease
Gary Maslow, various
Kathy Matthews, Parkinson's
Andrea Meyer, MS
Gina Owens, Chronic Fatigue Immune Dysfunction Syndrome
Alicia Salas, Chronic Pain
Allison Scott, Chronic Pain
Deborah Serrano, Stroke
Becky Shively, Phenylketonuria
Jennifer Smallin, Type I Diabetes
Joanna Southerland, Diabetes
Alina Valdes, Cystic Fibrosis
Elizabeth Wertz, Seizures

WHAT WOULD YOU DO?
Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

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