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WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

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Roxanne Bedford-Curbow
Olathe, KS

Hi and thanks for this website! I am a single mom of three. I do not have insurance for myself, therefore, I do not do unhealthy things. I became ill in late '99 with pneumonia and flu-like symptoms. I quit my second job but I felt worse after. I noticed a new gas smell in my basement. I called the gas company and the maintenance but I was told that it is okay to smell it and it cannot hurt me in the way I had explained. I was having seizures but didn't know what to call them. I did not want to believe them but I didn't know what else to do or who to call. I became even worse and in August of 2000 I had a seizure, blacked out, fell to the floor and convulsed.

To make a long story short, the leak was fixed, I am much better but I am changed and I deal with some pain, anger, mistrust and very victimized feelings among others and it is now my job to have my symptoms put down in the medical books for others who are suffering. I was misdiagnosed with epilepsy. Please help me to help others know of this danger. People can live very ill for a long time in this condition. Medication can only cover up the real problem.

Zoe Albright, Stroke
Betty Bennett, Kidney Disease
Roxanne Bedford-Curbow, Seizures
Valerie Brekke, Fibromyalgia
Lily Casura, Chronic Fatigue
Billie Davis, Peripheral Neuropathy
Penny Day, Chronic Obstructive Pulmonary Disease
Julia DeJesus, Seizure Disorder
MS Patient, Fairfax, VA
Charisse Farmer, Hydrocephalus
Katherine Fielder, Chronic Pain
Zoe Francis, Juvenile Diabetes
James Hines, Hemochromatosis
William Holford, Emphysema
Nancy K, Chronic Fatigue Syndrome
Patricia Lawson, Natural Rubber Latex Allergy
James Locke, Crohn's Disease
Gary Maslow, various
Kathy Matthews, Parkinson's
Andrea Meyer, MS
Gina Owens, Chronic Fatigue Immune Dysfunction Syndrome
Alicia Salas, Chronic Pain
Allison Scott, Chronic Pain
Deborah Serrano, Stroke
Becky Shively, Phenylketonuria
Jennifer Smallin, Type I Diabetes
Joanna Southerland, Diabetes
Alina Valdes, Cystic Fibrosis
Elizabeth Wertz, Seizures

Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

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