Advice and Services for Caregivers
» "So Far Away -- 20 Questions for Long Distance Caregivers"
» Eldercare Locator
»Sick to Death and Not Going to Take It Anymore!
» Family Caregivers Alliance
» Elder Issues
» National Family Caregiver Support Program
» National Institute on Aging
» Caregiver Resource Directory
» Well Spouse Association
» A Call to Action
End of Life Issues
» Growth House: Guide to Death, Dying Grief, Bereavement and End of Life Resources
A site offering a wide range of help and guidance for families/caregivers of the elderly and those with life-threatening illnesses.
» Handbook for Mortals
An online consumer guide for end of life care. Chapters include: Living with Serious Illness; Enduring and Changing; Finding Meaning; Helping Family and Loved Ones; Getting the Help You Need; Talking with Your Doctor; Advance Care Planning; Coping with Events Near Death; Enduring Grief and Loss.
» Aging with Dignity -- Five Wishes
A Five Wishes document helps a person express how they want to be treated if they are seriously ill and unable to speak for themself. According to this Web site: "It is unique among all other living will and health agent forms because it looks to all of a person's needs: medical, personal, emotional and spiritual."
» Center for Practical Bioethics
An organization at the forefront of aging and end-of-life issues and the ethics questions surrounding them, this group is also a resource for policy ideas for the government and other organizations.
» National Hospice Foundation
An organizaiton that promotes hospice care and educates families and professionals about caregiving, terminal illness, loss, and bereavement.
» National Hospice and Palliative Care Organization
Web site of the "largest nonprofit membership organization representing hospices and palliative care program and professional in the United States," The NHPCO advocates on behalf of hospices, their patients and their patients families.
Long-Term Care Planning & Financing
» "Retirement Savings and Long-Term Care Needs: An Overview"
From The Retirement Security Project, a joint initiative of George Washibngton University and the Brookings Institute, this report is a a clear and concise summary of what the government will cover for long-term care through the federal-state funded Medicaid program (and eligibility criteria for Medicaid); what Medicare covers and how it fails to support the most needed kinds of care; how long-term care insurance works and who purchases it; and the gaps that exist in America's system of financing long-term care.
An online service provided by the National Council on Aging, BenefitsCheckup allows people to find programs that can help them meet health care costs.
» Center for Medicare and Medicaid Services (CMS)
CMS is a federal agency that administers the Medicare program and works in partnership with the states to administer Medicaid.
» National Association of Professional Geriatric Care Managers
This association offers information and referral services to find help in coordinating care for a loved one.
» Partnership for Prescription Assistance
This program helps qualified people who lack prescritpion coverage to get needed medicines.
» Alzheimer's Diesease Education and Referral Center
A service of the National Institute on Aging, the center offers free publications and information on diagnosis, treatment, care, caregiver needs, long-term care. They also offer advice and information at their toll free phone number: 1-800 438-4380.
» Alzheimer's Association
A national voluntary heatlh organization supporting Alzheimer's research and care, it offers information and support to patients and families.
One City At the Forefront
» Foundation on Aging -- Changing the Face of Aging
Kansas City, Missouri and its environs have taken a leadership role in collating resources and partnerships to help the elderly and their caregivers. Their Web site offers a glimpse of what they've done.
» National Center on Elder Abuse
The Center promotes understanding and action on elder abuse, neglect and exploitation.
» Partners Against Pain
A group providing information, education and advocacy on better pain management.
» American Pain Foundation
A foundation dedicated to eliminating the undertreatment of pain.
» National Pain Foundation
Another resource site for managing pain for families and caregivers.