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WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

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Frankie Campling
Oxford, UK


In December 1988 I was a successful career woman with a company making high tech scientific equipment. After emergency major surgery, things started going wrong. A year later, after another operation, I had to retire on medical grounds. I found myself in the limbo of chronic fatigue syndrome/ME (CFIDS for American readers). On the whole though I was lucky. Oxford where I live is a centre of medical excellence and I was referred to a psychiatrist Michael Sharpe who was doing research on treatment for CFS. We got on well and he taught me a lot about managing CFS. I think that we taught each other. I started doing telephone counselling for people with CFS, which gave him a new insight. 10 years later, even though he had moved away from Oxford, we wrote a book on CFS together. Previously I had published a patient information booklet (something between the leaflets available from the self help groups and the many books on ME) Now I find myself still disabled with CFS, but with a really good quality of life. I can sympathise whole heartedly with sufferers who have been treated really badly by doctors and be grateful that I have had a very different experience. My aim now is to help sufferers to manage themselves rather than waiting for someone to give them a cure. Life isn't too bad. Being an acknowledged author is fun - a change from my previous career and probably more satisfying.

Frankie Campling

YOUR STORIES
Karin M. Amour, Fibromyalgia
Lyssa Bode, Chronic Fatigue Immune Disfunction Syndrome
Frankie Campling, Chronic Fatigue Syndrome
Laura Cerasuolo, Fibromyalgia/Myofacialsyndrome
Karen Cerio, Fibromyalgia
Rhonda Dewinter, Various Immune Diseases
Jennifer Embree, Fibromyalgia/Raynaud's Syndrome
Lynne Enman, Turner Syndrome/Various
Fibromyalgia Patient, Covington, KY
John Kennedy, Chronic Fatigue Immune Disfunction Syndrome
Susan Larick, Fibromyalgia
Melissa Lawler, Fibromyalgia
Irene Leeder, Fibromyalgia/Various
Cait Lommel, Pseudotumor Cerebri
Jennifer Munn, Chronic Lyme Disease
Robin Poole, Fibromyalgia/Lupus
Pam Schmidt, Phenylketonuria
Lynn Tonoli, Various
Various Patient, Haughton, LA
Suzanne Witt, Muscular Dystrophy/Fibromyalgia

ARCHIVED STORIES

WHAT WOULD YOU DO?
Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

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