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WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

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Rhonda Dewinter
Dayton, OH


I live with six immune diseases every day of my life. I have worked since I was 16 and now at 47 can no longer work, it is not a nice feeling. On top of the symptoms I deal with everyday, I can no longer contribute to the financial needs of this family and with me seeing the doctor all the time, they are considerate. Then you have the doctors, many of whom mean well and are trying to help and then there are those who are no help at all. They look at you like you are crazy when you tell them what you are experiencing symptom-wise and then you start to doubt yourself. If more doctors or politicians got these diseases you can bet that more dollars for research would be going to it. The person I used to be is gone and I am being held hostage in a body that could not possibly be mine. I gave 20 years of my life to health care in America and now it has turned it's back on me when I need it most, all the family's whose members I have taken care of would not have wished this on me. I took care of them like they were my family, and now who takes care of me? I have a few serious diseases and then there is fibromyalgia. I would not wish this disease on my worst enemy, yet it has been deposited with me. Our health care system will not even call it a disease; they call it a syndrome. Well wake up, if this is not a disease I don't know what is! It has taken over every aspect of my life; it keeps me from being the wife, mother, and grandmother that I should be. It rules every single minute of every single day of my existence. Is that a disease? There is no cure and they don't know why we have it. There are more of us all the time and yet they can't spend the precious money to find its causes or cure it. And to all those that control whether we can qualify for disability, I sure hope you don't get it, or then, maybe I do because then we would qualify. I want the old me back, I would settle for just one day; does that tell you anything? I need to close now as I can only sit at the computer for a short time because of the pain. Walk a mile in these fibromyalgia shoes of mine and see what gets done to find a cure.
Sincerely Rhonda

YOUR STORIES
Karin M. Amour, Fibromyalgia
Lyssa Bode, Chronic Fatigue Immune Disfunction Syndrome
Frankie Campling, Chronic Fatigue Syndrome
Laura Cerasuolo, Fibromyalgia/Myofacialsyndrome
Karen Cerio, Fibromyalgia
Rhonda Dewinter, Various Immune Diseases
Jennifer Embree, Fibromyalgia/Raynaud's Syndrome
Lynne Enman, Turner Syndrome/Various
Fibromyalgia Patient, Covington, KY
John Kennedy, Chronic Fatigue Immune Disfunction Syndrome
Susan Larick, Fibromyalgia
Melissa Lawler, Fibromyalgia
Irene Leeder, Fibromyalgia/Various
Cait Lommel, Pseudotumor Cerebri
Jennifer Munn, Chronic Lyme Disease
Robin Poole, Fibromyalgia/Lupus
Pam Schmidt, Phenylketonuria
Lynn Tonoli, Various
Various Patient, Haughton, LA
Suzanne Witt, Muscular Dystrophy/Fibromyalgia

ARCHIVED STORIES

WHAT WOULD YOU DO?
Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

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