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WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

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Jennifer Munn
Islip Terrace, NY


In 1996 I was unable to function. Doctors tested me for things and decided that I had Chronic Fatigue Syndrome. Doctors were dismissive and annoyed by me asking for help to live my life. I became totally disabled in 1997. In January 2001, I was finally correctly diagnosed with Lyme Disease and several co-infections. The testing is poor although I had had a positive test back in 1996 which was ignored because I didn't have "swollen joints." (I now do get swollen joints at times.) My disease is severe and disabling and now I will be treated aggressively for years to get better. I will be lucky if I am ever well. No one understands how a 27 year old woman can be so ill and how doctors can be so clueless. I've found that I'm not alone suffering with Chronic Lyme Disease.

YOUR STORIES
Karin M. Amour, Fibromyalgia
Lyssa Bode, Chronic Fatigue Immune Disfunction Syndrome
Frankie Campling, Chronic Fatigue Syndrome
Laura Cerasuolo, Fibromyalgia/Myofacialsyndrome
Karen Cerio, Fibromyalgia
Rhonda Dewinter, Various Immune Diseases
Jennifer Embree, Fibromyalgia/Raynaud's Syndrome
Lynne Enman, Turner Syndrome/Various
Fibromyalgia Patient, Covington, KY
John Kennedy, Chronic Fatigue Immune Disfunction Syndrome
Susan Larick, Fibromyalgia
Melissa Lawler, Fibromyalgia
Irene Leeder, Fibromyalgia/Various
Cait Lommel, Pseudotumor Cerebri
Jennifer Munn, Chronic Lyme Disease
Robin Poole, Fibromyalgia/Lupus
Pam Schmidt, Phenylketonuria
Lynn Tonoli, Various
Various Patient, Haughton, LA
Suzanne Witt, Muscular Dystrophy/Fibromyalgia

ARCHIVED STORIES

WHAT WOULD YOU DO?
Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

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