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WHO CARES: Chronic Illness in America
WHO CARES: Chronic Illness in America

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Pam Schmidt
Arlington, MN


I have a 44 year old brother with PKU. He was born in 1958 before testing and thus was not diagnosed until 1960 and then put on the diet at that time. He is mentally handicapped but does well living in a small group home. He was put on the diet until 17 and then they said that the brain had developed to the point that the diet would not affect him anymore. Now just 3 months ago he was put on the diet saying that the high phen. levels do cause many problems. He has improved in just about everything!!! What a miracle from God. I so far have not been able to find any one with PKU that is his age that is living. Is there anyone out there that could help me get in touch with someone who has PKU that is around 45? Thank-you and if I can be of assist to anyone please feel free to e-mail me. Thanks again... God bless you all Sincerely Pam Schmidt

YOUR STORIES
Karin M. Amour, Fibromyalgia
Lyssa Bode, Chronic Fatigue Immune Disfunction Syndrome
Frankie Campling, Chronic Fatigue Syndrome
Laura Cerasuolo, Fibromyalgia/Myofacialsyndrome
Karen Cerio, Fibromyalgia
Rhonda Dewinter, Various Immune Diseases
Jennifer Embree, Fibromyalgia/Raynaud's Syndrome
Lynne Enman, Turner Syndrome/Various
Fibromyalgia Patient, Covington, KY
John Kennedy, Chronic Fatigue Immune Disfunction Syndrome
Susan Larick, Fibromyalgia
Melissa Lawler, Fibromyalgia
Irene Leeder, Fibromyalgia/Various
Cait Lommel, Pseudotumor Cerebri
Jennifer Munn, Chronic Lyme Disease
Robin Poole, Fibromyalgia/Lupus
Pam Schmidt, Phenylketonuria
Lynn Tonoli, Various
Various Patient, Haughton, LA
Suzanne Witt, Muscular Dystrophy/Fibromyalgia

ARCHIVED STORIES

WHAT WOULD YOU DO?
Jose Pedro Greer, Physician
W.F. Nagle, Physician
Ronda Riebman, Exercise
Cathleen Schilling, Case Manager
Jim Sykes

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